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Beranda / Album 381
Tanggal pembuatan / 2013 / Juli / 16
- ADAPT (744)
The Disability Rag July/August, 1992 [This article continues on ADAPT 738, 733,728, 724, 748, 743 and finally 737; however the entire text is included here for easier reading. ] Photo by Tom Olin: A policeman holds a wooden barricade while another tries to pull a protester who is lying on the ground by his pants legs backward and out from under the barricade. The protester is holding onto something above his head. On one side a third policeman seems to be coming over and on the other side a man (Frank Lozano) and his guide dog (Frazier) are coming over. Title: On the barricades With ADAPT by Mary Johnson photos by Tom Olin “I am tired of rules and regulations. And them telling me what you have to do. None of them has worked for me as good as being at home. In nursing homes, they put you on sleeping pills to keep you from getting aggravated with what will occur. “You can’t pay —— you don’t have any money to pay an attendant at night, when you’re on SSI. All of these things they’re constantly cutting. I haven’t been in a nursing home for 15 years — and I don’t plan to go.” It's Saturday night in Chicago. Nearly 300 ADAPT members have gathered in a meeting room in Chicago’s Bismarck hotel, getting ready for the group’s May 1992 assault on the Windy City. People are telling their stories. Many are there because there was a nursing home in their past — or they don’t want one in their future. The next day the group will swoop down on the University of Chicago's commencement exercises. U.S. Department of Health and Human Services Secretary Louis Sullivan is speaking, and some in the group can't believe their late-breaking good fortune at getting another shot at hassling the Secretary who has steadfastly refused to meet with them to discuss redirecting Medicaid funds to in-home attendant services. A planned Mother's Day March to a graveyard — to symbolize how this nation kills its mothers in nursing homes — is cancelled. “I was never for that dead stuff anyway," ADAPT organizer Mike Auberger says. The week's events are debated. Somebody wants to know why they see police taking photos of them whenever there's an ADAPT action. There's an attorney available for people who get arrested, the group is told; they‘re given his name, as well as ADAPT organizers to contact if they get arrested. “I’m telling you — and it’s the most important thing I'm gonna say." Auberger warns the group. “have your medications with you if you're going to get arrested. Have ‘em labelled. No pill boxes; bottles. Make sure it has your name on it — nobody else's. Make sure there’s no illegal substances on you; no weapons. ‘Cos this is going to follow us down the road.” As it turned out, Chicago was mild compared to Orlando's confrontations last fall, in which nearly all ADAPT activists were thrown in jail — some in solitary confinement — for the week. In Chicago, only 10 people would be cited and fined in Monday’s confrontation at the HHS regional offices in downtown Chicago, and only 4 police-tagged “leaders” arrested the next day at American Medical Association headquarters; all were released at day’s end. Perhaps the national outrage in the wake of the Rodney King beating acquittal in Los Angeles a few weeks before had made Chicago police, considered to be some of the most brutal, cautious. The University of Chicago graduation turns out to be a beautiful Chicago spring day. Police and Secret Service are allowing ADAPT members into the auditorium without any hassle. Later, though, Jim Parker is asked to leave. He protests loudly as police haul him out a side door: “Why am l the only one being asked to leave?” About that time Tim Carver of Tennessee simply rolls off into the men's room, unnoticed, to wait out the sweep. Several ADAPT members unfurl a large FREE OUR PEOPLE banner over the wall below their seats, off in the “handicapped section" where the Secret Service have relegated them. Big burly Secret Service men with their walkie-talkies run over quickly and reach down to pull it up. Bob Kafka and Allen Haines are as determined that they won’t succeed. A kind of arm wrestling match ensues with Kafka and Haines holding firmly to the banner to keep it hanging over the wall where it forms a backdrop to the stage area where Sullivan will be speaking. The Secret Service have the advantage of leverage; they’re taller. One especially burly guy finally wrests the pole with its banner away from them and with a contemptuous jerk, flings it high into the bleachers behind them. “Clear ‘em out," mutters an all-business police captain. Four cops to a chair seems to be the agreed-on method of removal. Paulette Patterson of Chicago is removed this way. Over on the side, Anita Cameron and Jim Parker, back in and out of his wheelchair, and Frank Lozano, minus dog Frazier, are scooting down the steps on a side tier, trying to make it down to where Sullivan will speak, but they're caught and removed, too. “Get as close to the doors as possible,” says Bob Kafka to the other activists who have now been ejected from the back of the building. With police blocking doors. clots of ADAPT move to every entrance. Well, almost every one. Jean Stewart and Eleanor Smith use Stewart's crutches to pound on the metal doors, trying to create a disturbance inside, as the graduation ceremonies begin. Inside, though, the noise is barely audible. Nancy Moulton of Atlanta is sitting quietly on the ground, leaning on a door, with her guide dog Nan beside her. “Get up,” say a blue shirted Chicago cop. Moulton doesn‘t move. Nan rests her head on Moulton’s leg and rolls her eyes up at the cop towering over them. Now there are 4 Chicago cops and one guy who must be from the Secret Service hanging over Moulton and her dog. “If you don't move, we’ll have to grab you. and the dog will attack,” the cop persists. Still Moulton sits. “If you’re concerned about the dog, move!” the cop barks. Moulton gets up, worried that the cops will hurt Nan. While some block doors, others pass out leaflets to latecomers. The chants of “hey hey, ho. ho, nursing homes have got to go!" change to “We want Sullivan!" The police have barricaded the exit with blue sawhorses that read “police line." A pickup truck from the University's facilities management is unloading yellow university police barricades. A lady inside the back of the auditorium, hearing the faint chanting coming from outside, mutters, “they're not making friends." She‘s with the university. The University of Chicago is so large that commencement is held in two shifts; a morning one and an afternoon one. Sullivan has finished speaking and the crowd is emerging from the pavilion. They walk down the long fence of police barricades, while ADAPT chants and hands them leaflets: “Wanted: Sullivan. For crimes against disabled people." Inset picture: Beefy policeman with his cap down over his nose leaning forward. Caption: “If you care about your dog, move!” Article continues: It's lunch. ADAPT always feeds its activists. Today it‘s Burger King. Attendants and other walkies pass out cokes and burgers. Nan, Moulton’s dog, gets some much welcomed ice cubes from the big bag under the tree, put into the little folding plastic water bowl Moulton carries with her. A new crowd is coming to the arena. They, too, get leaflets and chants. Tim Craven has been ejected when police found him inside, but not before he and the other two who had hidden themselves in the press box get off a few good chants in Sullivan’s direction. A reporter for Habilitation, a disability magazine out of Seattle, has marched up to Sullivan, she reports, and asked him the questions ADAPT has so long wanted to ask him. To every single question, she says, he has responded, “It's a very nice day." Most of the students don‘t want to talk to a reporter. They have no comment. Some think that it‘s wrong of ADAPT to spoil their special day. Others think the group has a right to make itself heard — just not here, not now. One woman who has read the flyers says that "they don‘t want to be prisoners in nursing homes." A man, who hasn‘t read one, says he doesn’t know what they're protesting about but he thinks they have a right to do it. His daughter is graduating today —— with a degree in special education. Each ADAPT contingent blocking an entrance has its contingent of cops. The two `groups` joke with each other and pass the time in small talk. It's a lot like a chess game, says Haines; this trying to puzzle out where Sullivan‘s going to exit. Just about the time it occurs to several of the organizers who have been trying to psych out from which exit Sullivan will be spirited away that the one exit that has no guards on it is the parking lot entrance, a police car comes screaming down the street, makes an abrupt U-turn, and, at that moment, Sullivan's car, driven by Secret Service, shoots out of the entrance. Several ADAPT wheelers are on his tail in a flash, but it's too late. Sullivan again escapes— but the point, say the activists, has been well made to the over 10,000 people who have attended. Thousands of flyers have been passed out. PHOTO by Tom Olin: Inside a cavernous arena filled with people, two plain clothes police or Secret Service men have an ADAPT person (Bob Kafka) by the arms and are trying to lift him. He is sitting on the steps of an aisle leaning forward. To their right a young man in a button up shirt and jeans, a graduate, looks down at them. Caption reads: Getting to see Sullivan. Not. ADAPT makes no effort to block the streets surrounding the Pavilion. Monday‘s a different story. By 11am, both State and Adams Streets are blocked. Downtown Chicago is taking the flyers as fast as they’re being passed out. Many of them are surprisingly in agreement with ADAPT’s call for 25% of the current Medicaid money to be redirected to in-home services. One businessman engages Bob Kafka in a long and intense discussion over the merits of attendant services. He has buddies who were in Viemam, he says, and want the same thing Kafka does. He gives Kafka his card. Many other people are giving ADAPT members their cards, too; they are interested in the issue. Nobody, they say, has brought it up before. Certainly not the Chicago Tribune, which, instead of covering the baccalaureate brouhaha, runs a feature story on a college camp-out. “What I‘m looking for is a reasonable atmosphere to address the issues." Delilah Brummet Flaum, HHS’s Region V Director, would have to shout to make herself heard over downtown Chicago traffic and hundreds of milling demonstrators. And she‘s not shouting. She has come down, along with Chester Stroyny. Regional Director of the HealthCare Financing Administration and HCFA official David DuPre. in response to ADAPT demands. They want to meet with “officials”; they’ve blockaded the Region V HHS headquarters and aren‘t letting anyone in or out — unless they're willing to climb and crawl over protesters. About 20 activists have gotten all the way up to the HHS offices on the 15th floor, and have a bunch of police in there with them. It’s lunchtime by the time Flaum, Stroyny and DuPre are trotted out to Karen Tamley, Bob Kafka and Teresa Monroe and the others in the middle of Adams Street. ADAPT wants them to call Sullivan, to make him come back to Chicago and meet with them. Flaum can’t do that. “I am willing to do anything else you want us to do. to do try to get this resolved,” she’s saying. But she wants the group to be "more reasonable." She tells Tamley that she is “well aware" of ADAPT’s concerns, and that “the Bush Administration is working on non-institutional care options." Anna Stonum asks more questions. People in the crowd are starting to yell that they can’t hear. Flaum is telling Kafka that “shutting down a building“ is not the way to get a meeting with Sullivan. Kafka responds that they‘ve sent at least four letters to Sullivan and he's never responded to a single one. “You know as well as I do that the Secretary sets the tone for the discussion,“ Kafka lectures her. Kafka and DuPre engage in a debate about facts and figures. They can't trip Kafka up; he seems to know as much if not more about the issue than these folks do. At times the officials even seem to agree with him. Not, however, when he charges that “nothing the Secretary has said or done" changes anything “because he's in the pocket of the nursing home industry." “We disagree with that," say all three officials simultaneously. “We do favor the de-institutionalization model." “The damn Secretary has not said one thing — ever - has not even said the word ‘attendant services’ publicly," Kafka yells, and swears that ADAPT will continue to hold the building. “This is not being positive," says Flaum. “These are peoples' lives you’re talking about.” Kafka retorts. Photo Inset: The head of Bob Kafka, looking very intense, below the words "The damn Secretary has never even said the word 'attendant services' publicly." Article continues: “You don’t know what it’s like,” Monroe shouts at the officials when Kafka's done. “I want to talk to Sullivan. You get him here. He has no idea. Don't tell me Sullivan knows.” Monroe’s point, which she makes to Flaum, is that the money should go directly to the disabled person “because no person knows better what they need than the disabled person. Let us have our dignity.” She argues with Stroyny over nursing home inspections. Mark Johnson accuses Sullivan of “being in the pocket of the nursing homes.“ And meetings like this, he charges, aren’t worth a thing “unless there’s a commitment." The group, hearing Johnson, takes the cue: “We want a commitment!" One of the workers in the HHS office has come out for lunch and now finds she cannot get back in over the demonstrators. Still, she thinks what they're doing is “positive.” She’s a volunteer in a nursing home herself, she says, “And I know they’re the pits. People who don't frequent them don't know. These people who are walking around here” — she gestures to lunch-hour Chicagoans moving up and down the street-- “they could become victims of nursing homes, too. I look at these people here" —— and now she means ADAPT — “and I know I wouldn’t want to be jailed up in a nursing home." But then, she believes in protesting, she says. “I think protests are fine. I'm in tune with them. I was with Martin Luther King back in the 60s." she says. “I was in jail with Dr. King. I was 14 years old. That was just what you did; you went to jail. Some of our young people don't understand. “This is how to explain it,” she continues, warming to her subject. “These people want to get heard. We couldn’t get heard in Birmingham, either. That‘s why we marched on Washington." She won’t identify herself, though, but will only say she’s a spectator. But she works upstairs in the HHS office, she says. “And they got time to listen to that TV stuff — people come in talking about that, they make a big deal about the stuff they see on TV. And they got these people out here and they don‘t want to pay attention. When I was upstairs, they were callin’ ‘em ‘beasts’ and “vultures.” It is a measure of the erosion of belief in the system that has become the trademark of ADAPT that, when an EMS ambulance pulls up to the door and the word goes out that police are bringing down a man who’s had a heart attack, the thought passes among the group that this is yet another ploy. They think the stretcher rolled into the lobby and up on the elevator may be a ruse to make them move away from the door, which they nonetheless do, not wanting it to be said that they cared not for another disabled person who might be in danger. And when the man is brought down on the stretcher, there is more speculation: wasn’t he one of the officials out here earlier? Did the confrontation and excitement give him a heart attack? Is he faking? Is it really a medical emergency, or just :1 move to get someone out of the building who has an important meeting to attend and doesn't want it stopped by cripples? No one remembers the man in the stretcher more than a few minutes after the ambulance pulls away, lights rotating, into the Chicago traffic. Jane Garza from El Hogar del Nino is with the protesters. blocking a door by leaning against it. She’s part of the protest. she says: disabled herself, though she knows she doesn’t look it. She works in early childhood education. Some of the signs protesters are carrying were made by the children at her center, she says. “It's a way to bring them into it," she points out. The parents of the disabled kids at the center “are all reasonable people,” she says. “So they understand my being at an activity like this." If she gets arrested, she says, she has an understanding with her agency: they will bail her out. She’s been arrested with ADAPT before. she says; that was in Montreal. She’s been with ADAPT protests in Washington — the one to get the ADA passed; and one in St. Louis. “No one wants to see their child in a nursing home. People can really relate to that." She says the group at her door has been talking to passersby all day about the issue. “I was on the verge of going into a nursing home myself, back in ’82.” says this woman who doesn’t look disabled. When she had her aneurism and was in rehabilitation, she says, the Illinois Department of Rehabilitation Services gave her money with which she was able to pay two people — one for the morning, and one for the evening. “I just needed help getting up and then getting to bed. I was so weak. I just needed minimal assistance, somebody there to help me get dressed. But without that program. they would have put me in a nursing home.” Illinois Gov. Jim Edgar’s budget cuts have forced the Department of Rehabilitation Services to extend a freeze on intakes in that program through the end of 1993. and Edgar, Chicago ADAPT charges, is trying to eliminate a yearly cost-of-living adjustment for attendants. "After I got stronger, I was able to manage on my own. But look at how many people are in my shoes!” she says. “I worked; I had money. I was a social worker back then: one who had to apply for public aid just so I could get assistance." Insert picture: A person (possibly Lonnie Smith) with his head to one side and below the words “We want them to see what it’s like for us.” Article continues... The philosophy and tactic of doorblocking: Let people go in and out, if they’re willing to climb over you and your chair to do it. Arrest is not the objective here; inconveniencing people is. “We want them to see what it's like for us.” says one who has engaged in many door blockings. Photo by Tom Olin: A policeman stands in the middle of the street legs braced in a wide stance and arms streched out. He is holding a man with a cane (Gary Bosworth) with one hand and with the other hand and foot trying to hold back a man (Bob Kafka) in a manual wheelchair who is bent forward pushing. Other police officers are standing in the street, a supervisor is watching, as is a TV cameraman. Other protesters are partially visible at the edges of the scene. Chicago police have a black and white checkered band around their hats that is very distinctive. Article continues- Tuesday morning's Chicago Tribune, instead of covering ADAPT's HHS confrontation. reports on stepped-up security measures at the downtown State of Illinois building where. the Tribune reports, in error, ADAPT was "supposed" to be demonstrating Monday. ADAPT, it says, changed its mind. In fact, ADAPT planned to hit state offices on Wednesday. Speculation abounds as to who fed the paper the false information, the effect of which is to make ADAPT look disorganized. It later becomes apparent that state officials have had a hand in it. There is nothing in the Tribune about the people who stopped along State Street and asked questions, about Flaum, about any of it. The Sun-Times carries a photo inside. At the comer of State and Grant, a baby-blue police wrecker, the same blue as the cars, as the barricades, has blocked a curb ramp. ADAPT has blocked four intersections adjacent to the American Medical Association. Wheelchairs are stretched across 16 streets. At the intersection of Wabash and Grand, in the back, Paulette Patterson is hassling the policemen, mouthing off and chasing them with her motorized chair. It seems she is trying to get arrested. The police are being friendly enough. It won't be until noon that things will get rough. The cops will barricade the main entrances to the glass-walled fortress: many ADAPT members will take that as their cue to launch themselves out of their wheelchairs onto the high-curbed stoop around the building, crawling up to bang and hammer on the wooden barricades. A few find satisfaction in pounding on the glass walls. This will happen, though, only after the confrontation — the confrontation that resulted in Jerry Eubanks of Chicago being dropped from his wheelchair: picked up by his neck, it seems to other protesters, who holler for an “Ambulance! Now!”; the confrontation that causes Patterson to roll from her wheelchair and shriek at the top of her lungs, kicking her legs wildly as police try to pick her up. The police back off; when they come at her again, her screams again drive them back. Finally, Patterson is left alone, and, once more in her wheelchair, rolls off to the side, where she admits slyly and with her trademark smile that she enjoys discomfiting police. “They don't wanna mess with me," she says proudly. Suddenly they are all there again, surging at the entrance, trying to get up the high curb. Stephanie Thomas and Diane Coleman and others are wedging themselves in next to the Chicago Transit Authority paratransit vehicles that are a sure sign of arrests: it's the only way police can haul off a wheelchair to the hoosegow. Allen Leegant is diving under a barricade trying to get up to the entrance. Chris Hronis and Arthur Campbell are trying to follow; they are caught by police. Campbell is carried, spread-eagle, by four cops, directly to a CT A van. Cameras are everywhere; TV crews have materialized out of nowhere. Campbell has been arrested. Mike Auberger has been arrested. Campbell and Auberger are each put into his own van. The police have their eye on Mike Ervin. When you catch a snatch of cop-to-cop talk, you learn they're trying to pick off those they figure to be the leaders. “What the cops never understand is why the demonstration continues after they’ve hauled off the folks they think are leaders," says someone who is blocking a street. “They can’t figure out that arresting leaders doesn’t work; that as soon as they arrest someone, somebody else just moves in." Susan Nussbaum, blocking a side door, answers questions about whether the movement will ever see violence. “There’s always the potential for violence," she is saying. “But it would be good if that could be understood in the context of a larger issue. “I am not in favor of getting my head beaten in." At 3:15 the building starts to empty out. ADAPT has managed to block all the exits, so AMA workers and officials alike are subjected to a gauntlet of taunts as they trot, under tight police protection, down the ramp to the alley and across to the parking garage. The taunts seem mostly to be of the “AMA Shame On You” variety. When ADAPT members arrived at AMA headquarters in the morning, they found tables set up with water coolers and cups of refreshing water awaiting them. Later, the AMA‘s Department of Geriatric Health would confirm for a reporter that the AMA had done this so the disabled people wouldn't get overheated and get sick. Many protesters were wary of the water. Some suspected it had been spiked with Valium: others thought it a ploy to get them to have to pee later on, adding to their discomfort and hopefully ending the demonstration early. Much of the water was left untouched. Water was also running through hoses into the sprinkling system of the AMA‘s lawns. This had the added effect of keeping protesters off the grassy knolls fronting the building. Shortly after ADAPT arrived, one demonstrator had parked his chair on the hose while others moved across the area to block doors. Later, the water was simply turned off. Insert picture: A head and shoulders picture of a protester chanting, with the words "AMA: Shame on you!" "People are dying shame on you!" Article continues- The AMA’s flak, Arnold Collins, was standing around with the TV and radio reporters most of the day. The AMA had issued a statement insisting it “supports the home care objectives of ADAPT." Dr. Joanne Schwartzberg, Director of the AMA's Department of Geriatric Health, said in the news release that a meeting the previous Thursday with ADAPT had been “productive” and that the two `groups` had “considerable common ground.” Campbell, who attended the meeting, had a different analysis. He said he believed Schwartzberg truly had no understanding what ADAPT wanted; that some of their ideas had been totally inconceivable to her. Schwartzberg said ADAPT was the first group she had ever met with and felt “hostility.” “It was a great shock," she said. “I always thought of myself as being a great advocate. But I wasn’t an advocate enough for them." Schwartzberg said that ADAPT didn’t understand that there were “really frail people in nursing homes — a kind of frailty that these disabled don’t have. “I was really scared that the demonstrators might get harmed, the way they throw themselves out of their chairs.” she went on. “They’re very courageous; I think they're a little reckless. Luckily, nobody’s gotten seriously hurt." “Do you think she really believes the things she says, or do you think it’s just a pose?” a filmmaker wondered. The AMA had issued “a guideline for medical management of homecare patients," she said, and they were putting on 8 seminars for doctors “in managing home care.” She knew ADAPT wanted AMA members to divest themselves of their financial interest in nursing homes and cut nursing home admissions. But the AMA couldn‘t do that, she explained patiently. “We are a voluntary body. not a regulatory body." “They couldn't understand why we couldn‘t do more." she said. The Chicago Tribune was still concerned about the State of lllinois building. Every day Tribune stories had chronicled the increasing security at the site. On Tuesday, Paulette Patterson and another disabled woman filed suit in U.S. District Court alleging denial of access due to increased security. Though a temporary restraining order was not granted, Patterson’s attorney, Matthew Cohen, said filing the suit had had the desired effect. The Tribune covered the suit. Photos by Tom Olin: 1) Two protesters (Spitfire and Jimmi Schrode) in the march raise the power fist to woman leaning out of a second floor window yelling and giving them the thumbs up. Below on the sidewalk most people are just walking by but one older man looks on. Spitfire is wearing her combat helmet. 2) A line of ADAPT protesters face a set of barricades on the other side of which are a line of policemen holding the barricades with both hands. Midway down the line of protesters, a man in a wheelchair (Danny Saenz) is turned toward the camera and another protester (Chris Hronis). 3) Close up of a man in a wheelchair (Rene Luna) who sits in front of an almost life sized portrait of IL Governor Edgar. Rene is holding a poster that reads "nursing home industry owns Edgar." Article continues- Finally, on Wednesday, ADAPT obliged the Tribune and state officials by staging a protest at the building, drawing attention to stale policies that were cutting people off from attendant services in Illinois. On Thursday. the Tribune ran a long story on ADAPT. Calling them "a group of vociferous activists savvy in street action." It quoted a miffed Chicago official who refused to be named saying that "one of the strongest points in their civil disobedience is making themselves look as pathetic as possible.“ “The group's history is rife with attention-grabbing acts of protest." said the Tribune. which compared them to ACT-UP and Earth First! protest `groups`. "Though some may question their tactics. none can doubt they have impact.“ said the Tribune. the end - ADAPT (752)
San Francisco Chronicle S.F.Police Being Trained How To Arrest Disabled Protesters San . Francisco police are bracing for a demonstration this month in which they may arrest dozens of wheelchair-bound protesters, an event that poses special problems for officers. Groups of officers have been taking a two-hour class at the Police Academy aimed at teaching them how to arrest and search disabled people and prevent wheelchairs from being used as weapons. The demonstration is planned in conjunction with the October 1'/-23 [sic] annual convention at Moscone Center of the American Health Care Association, an organization of nursing home and residential-care facility operators. A Denver group that goes by the name ADAPT, an acronym for Americans Disabled for Attendant Programs Today, plans to have 400 protesters at the convention, said Michael Auberger, its organizer and co-founder. ADAPT wants some of the federal money that goes to nursing homes and residential-care facilities to go for attendant care for disabled people who live on their own. “Over the years, we've used various tactics in different situations," Auberger said. “We're very confrontational, and we're going to make sure we get in their face." The Police Academy courses are being taught by Paul Imperiale, the mayor's disability coordinator. He said officers are learning how to search a -person they have arrested without harming the person. Police also are being warned that some protesters may have life-support devices that must be handled with care. Vans with special wheelchair lifts will be available to take away arrested demonstrators. - ADAPT (745)
Fourth Wave Magazine (Washington University) [This article continues in ADAPT 729, 721 and 739, but it is included here in it's entirety for easier reading.] Wheelchair Warriors Story and Photographs by Jan Neely Editor's note: Last May, Fourth Wave editorial intern Jan Neely and I flew to Chicago for our first ADAPT demonstration. ADAPT (or American Disabled for Attendant Programs Today, as it is more formally known), first took to the streets 12 years ago in Denver, Colorado, to fight for wheelchairaccessible public transportation. Today, with the passage of the ADA securing transportation access, ADAPT has taken on the nursing home industry, institutions and the United States government in an attempt to provide community based personal attendant care and housing to all persons with disabilities in all 50 states. Here’s what happened: ..... Editor Photo: A city sidewalk jamed with wheelchairs and a couple of cameramen standing beside them between parked cars. Larry Biondi is on front right side of the photo. People are basically lined up waiting to move out. Article begins: DAY ONE: ADAPT arrives in Chicago. Its my first demonstration and my first job as a photojournalist. "Click, click" goes my camera. Everybody else may look cool. but I'm shakin' in my shoes. Try to picture 300 people (most in wheelchairs) on the same mission. No pro-nursing home advocate is safe here! I feel as if I've just entered THE ADAPT ZONE! Actually, the first day was mellow and taken up with pre-action planning. ADAPT doesn't have any membership rules or requirements. You just have to believe that people with disabilities have the right to live without putting up with abuse of any kind. I'm real excited because this is the first group I've ever been involved with that has people with all kinds of disabilities, not just developmental disabilities. DAY 2 Here's ADAPT (photo 1) blocking the doors of the auditorium in hope of catching Dr. Sullivan when he leaves. The Chicago police and the Secret Service put up barricades and pushed back the activists. Victoria Medgyesi, editor of Fourth Wave and my traveling buddy, used her press pass to get into where Dr. Sullivan was to ask him some questions. He refused to talk to her about Medicaid, ADAPT or nursing home abuse. PHOTO 1: A line of Chicago police officers face off against a line of ADAPT protesters in wheelchairs who come up to about the middle of the officer's chests. In the forground there is a barricade, but further back they are just right up against each other. PHOTO 2: Three men in wheelchairs (__________, ___________ and JT Templeton sit in an open area in front of a barricade. Behind the barricade is a crowd of people. JT holds a poster that reads "Sullivan where are you?" Article continues... DAY 2 cont. Usually ADAPT doesn’t go around the country crashing graduations, but this one was different (photo 2) Here we are at the University of Chicago where Dr. Louis Sullivan, Secretary of Human and Health Services, is speaking to students who are going to be medical professionals. For the past two years, ADAPT has been trying to talk to Dr. Sullivan about redirecting 25 percent of the Medicaid budget for personal attendant care into a home-based program. But he has refused to talk to ADAPT or to change the rules. As the graduation crowd went in, ADAPT passed out flyers. As l told one person, “What if you become disabled someday? What if your family couldn't take care of you?" As for the police, at this time they just stood back and watched. One of the reasons ADAPT has public demonstrations is to make the public aware of what's important to people with disabilities. Actions like this keep us going to meetings back home even though what we say is usually ignored. DAY 3 The next day we went to one of ADAPT's all time favorite places to "act up": the state office of Health and Human Services. It was only a few blocks away from our downtown hotel. so all 300 of us got in a single line and went for a little walk. Did I say little? Wait a minute. a line of 300 people in wheelchairs plus their supporters? Little? I will admit it was the most incredible thing I have ever seen. ADAPT does not stop when it goes on one of its “little walks." It does not stop for lights, trucks, cars, cops, or anything else. It also goes right down the middle of the street. But that's not to say ADAPT isn't nice, oh no! All along the way ADAPT gave the people of Chicago (who lined up on the curbs to watch as we wheeled and walked by) little gifts of knowledge: flyers with the real scoop on nursing homes. PHOTO 3: Amid a long line of ADAPT folks marching in their wheelchairs, a man (Mark Johnson) in a wheelchair talks with a man (Bill Henning) and a woman who are walking beside him. PHOTO 4: A city street lined by tall buildings, is filled by ADAPT protesters apparently crowded from one side to the other. Several people standing closest to the camera but facing away (Jimmi Schrode is on the far left) raise their hands, thumbs up. Article continues... DAY 3 cont. It was a thrill to watch ADAPT in action. When the whole group got to the Federal building, it was a big mess. We blocked off streets and almost shut the building down. As ADAPT told the police, the media and all the people who gathered; “We declare this building a Federal nursing home... only this time, no one goes in or out without our permission! " The reason many activists do this is because they once lived in nursing homes and other institutions and know how bad those places are. Boy, can I relate. I have mild cerebral palsy and I’m lucky to have always lived at home. But will I always be lucky? I feel that as long as there are institutions, they will be a threat to the kind of life my friends and I want to live. This laid-back looking guy is Mike Auberger. He is one of the original ADAPT activists. ADAPT may look like a bunch of disorganized hippies who lost the map to Woodstock 20 years ago, but the opposite is true. In Mike's backpack is one of ADAPT's three cellular phones and the base walkie-talkie! Bill Scarborough, an activist from Texas, keeps the computer nerds in the know by sending the word out from his laptop computer to computer bulletin boards across the country. ADAPT also has a media person who goes to whatever city ADAPT is demonstrating in several days ahead to let people know whats going to happen. PHOTO 5: A very intense looking man (Mike Auberger) in a power chair is sitting sideways to the camera. Behind him is some kind of vehicle and the ADAPT crowd filling the street. Tisha Auberger (Cunningham) is squatting on the bottom right of the picture. After nine long hours of blocking the building's doors, representatives from HHS finally agreed to meet in the street with ADAPT. It turned into a regular media pow-wow. Activists told the administrators and the media what was needed by people with disabilities. Photo 6: A gaggle of reporters and photographers tightly encircle the Regional HHS Director and several ADAPT protesters (Teresa Monroe, center, and Bob Kafka, right side). Article continues... We talked and they listened, but I have a feeling the concern I saw on those experts' faces was just the same old B.S. All of ADAPT's demonstrations are non-violent, but they are important battles in a war fought by people who are fighting to lead decent lives. The possibility of being arrested did make me nervous. It made me feel a little better when ADAPT told the new people that, if you got arrested, the group would never leave you alone. They said ADAPT would tell the cops your needs, get you a good lawyer, and stay on the outside of the jail chanting so you would know ADAPT was with you. Photo 7: Portrait shot of a man (Gene Rogers) with long brown hair and glasses, sitting in his wheelchair. He is wearing a T-shirt with a larger than life sized photo of Rev. Martin Luther King Jr's face and the words "VIOLENCE IS IMMORAL" and a lengthy quote below that is too small to read in the photo. Article continues... DAY 4 As l was getting dressed I thought to myself “Today ADAPT is taking on the AMA." Oh God. what have l gotten myself into? l mean the AMA! The Big Brother of the medical world; the people who are not only in charge of admissions to nursing homes, but who are also in charge of giving prescriptions to people like me. I thought: What if my doctor saw me and did not like what I was doing with ADAPT? Would he stop giving me my blood pressure pills that I can't afford to buy? What would happen then? What about the others? Aren't they in the same boat? I got a lot more out of my trip to Chicago than just a story and a few good pictures. I met some people who are important to the disability rights movement. I felt accepted and I came home with the feeling that together we can really change things. People with disabilities need to keep talking. We need to demonstrate. We need to tell the so-called "experts" the real truth and try not to be too afraid while were doing it. Insert text box: Incitement, Stephanie Thomas Editor. What's happening on the front lines? Read INCITEMENT, the official newsmagazine of ADAPT, and learn the who, what, when, where and why behind today's headline news. Free! To order contact: ADAPT/INCITEMENT 1339 Lamar SQ DR Suite B, Austin, TX 78704 (512)442-0252 Second text insert at end of article: Jan Neely is a photography student at Olympic Community College and an editorial intern at Fourth Wave. She is active in People First of Washington. the end - ADAPT (801)
The Washington Post, Metro Section 5/6/93 [Headline] The Disabled Plan to Show Washington They're Enabled—and Entitled By Liz Spayd, Washington Post Staff Writer Michael Auberger has shackled his wheelchair to city buses in Dallas. He has barricaded hotel entrances in San Francisco, and he has thrown himself in front of federal buildings, government officials, even oncoming traffic, all to draw attention to the rights of the disabled. This weekend, Auberger and hundreds of other activists from across the country plan to converge on Washington for a three-day blitz of demonstrations and marches in what promises to be the largest protest in history for people with disabilities. “We've written the letters, made the phone calls, had the meetings, and the bottom line is we're still being treated like second-class citizens." said Auberger, co-founder of ADAPT, an activist group that is spearheading the activities. “lf those channels don't work, you take to the streets." Organizers say the immediate purpose of the demonstrations is to demand that the federal government commit more money to helping disabled people live at home, instead of in institutions. At the same time, they want to continue the larger campaign for equal rights that produced the Americans With Disabilities Act, landmark legislation that went into effect last year. A march to the White House and a memorial service for Wade Blank, who was a leader in the movement, are expected to draw the largest crowds, both on Sunday. What may draw the most attention, however, are demonstrations on Monday and Tuesday, when protesters are expected to disrupt Washington with human blockades of buildings and streets. The exact places and times for those actions aren't being disclosed, but the targets could include public buildings, such as the Capitol and the White House, and some federal agencies. “We like to preserve the element of surprise," Auberger said. ADAPT — an acronym for American Disabled for Attendant Programs Today — has been staging protests every six months for more than a decade to fight what it says is the inhumane treatment of the disabled at nursing homes and other institutions. The group said it hopes to redirect 25 percent of the $23 billion in Medicaid funds currently budgeted for nursing homes into programs that would enable those with disabilities to have attendants in their homes. Currently, each state sets policy for how much Medicaid money will go toward attendant care programs, but there is no national policy. [Subheading] Disabled Activists Plan 3-Day Protest The strike on Washington is timed to pressure the Clinton administration into focusing on people with disabilities as part of its package of health care revisions, due out soon, activists said. "Clinton has talked about change and says he wants people to be able to live at home, but what we're looking for is more than just words," said Bob Kafka, an ADAPT organizer in Texas who plans to bring a caravan of about 50 people to Washington. In the past, ADAPT activists have drawn attention to their cause by employing sometimes sensational tactics. They have done belly crawls across hotel lobbies in San Francisco, clawing at passersby. They have taken sledgehammers to street curbs in Denver to protest sidewalks that were inaccessible to wheelchair users. And they have swarmed and blockaded buildings in virtually every major U.S. city; a demonstration in Chicago last spring forced the evacuation of more than 1,000 American Medical Association workers and created disruptions in a half-dozen other downtown facilities. Though such events have attracted media attention, some individuals and `groups` sympathetic to ADAPT’s cause question how effective they are in achieving the larger goal of attaining more money for in-home care. “We're sympathetic to their concerns, but we think the tactics they use bring attention to ADAPT and not the problem," said Claudia Askew, a spokeswoman for the American Health Care Association, which represents 11,000 nursing homes and is a frequent target of ADAPT protests. Disabled people also are somewhat splintered over whether ADAPT's approach helps or hurts their cause. “There are people with disabilities that think ADAPT is a little extreme," said Patrick McCurdy, vice president of Marylanders for Adequate Attendant Care, a group that generally relies on peaceful protests and negotiations to lobby for in-home care. McCurdy did defend ADAPT's technique as a necessary part of an overall approach to force change in a society that he said has long ignored the rights of disabled people. Few spoke up for those rights until recently, but the Americans With Disabilities Act provided new protections to disabled people and helped forge a civil rights movement among the 43 million people with physical or mental impairments. “A great byproduct of the [disabilities act] is the new sense of confidence and empowerment it has instilled within the disability community," said Justin Dart, chairman of the President's Committee on Employment of People with Disabilities, a small federal agency. “It's generated an enormous infusion of dignity and pride." Gregory Dougan, a District resident, said the renewed sense of hope is one reason he will take part in Sunday's march. Dougan, who was born with cerebral palsy and uses crutches, said he is fortunate to be able to live at home. But several of his friends live in institutions because they can't get the in-home care they need. And on Sunday, Dougan said, he will be thinking of them. "I'll be tired at the end of the day," he said, "but my crutches and me are going to that march." - ADAPT (1013)
Incitement [This picture contains an article and the "ADAPTed" lyrics to a song. The article text continues in ADAPT 1012, 1011, 1010 and 1009, but is included here in it's entirety for easier reading. The lyrics appear here after the complete article.] Photo: A man (Cisneros) and woman (Julian) sit with heads bowed writing on pads in their laps. At their feet a woman (Searle) sits on the floor her arm extended, speaking forcefully. Behind her Three guys in wheelchairs sit in front of a mostly obscured crowd. One other wheelchair user is visible between HUD Secretary Cisneros and Deputy Sec. Julian listen as Jean Searle tells it like it is! Norbert _______, Alfredo Juarez, Jose Lara and Sean Pevsner watch the fireworks. Photo: Holly G Gearhart [Subheading] DEEP IN THE HEART OF TEXAS THE EYES OF TEXAS ARE UPON YOU! Five hundred strong ADAPT took on the third largest city in the United States, Houston Texas, which is home to the third largest nursing home corporation in the nation, Living Centers of America, LCA. As if anticipating ADAPT’s impact, Houston had record high temperatures of over 95 degrees each day. But ADAPT’s stalwart troops withstood the melting temperatures for one of the hottest actions yet! Action started Monday morning as wave after wave of wheelchair warriors reached the front door of Living Centers of America. Transporting these record numbers was quite a trick, especially since Houston’s traffic is known for bumper to bumper log jams on the maze of highways which crisscross its 596 square mile face. Living Centers of Americas corporate headquarters stand alone on the feeder road of IH-10. As if built for defense, this industry giant is surrounded by flat grassy fields, impossible to approach undetected. Clearly everyone could not gather before we entered the building, so speed was of the essence for the first arrivals. Unloading with efficiency learned from experience, the leadership team and first arrivals rushed through the front doors and the lobby. Building security began to realize something funny was going on. As they insisted we sign-in the guest register, we piled in the elevators and headed up to the eighth floor to find LCA corporate mogul Edward Kuntz and his cohorts. Photo by Cante Tinza Inc.: A tight shot of a crowd of ADAPT protesters in front of Living Centers of America glass building. Folks look hit and one woman is holding a poster over her head that reads: I'd rather go to jail than die in a nursing home!! Caption reads: Barbara Hines, AJ and tons of others gave Living Centers of America a does of their own medicine when their office was turned into a nursing home for the day. Last year, in Texas alone, Living Centers amassed $39.28 million in revenues after allowable expenses, according to state human services department cost reports. Nationally, LCA increased their net revenues $185 million, 26%, from 1994 to 1995. Over 50% of their revenues come from Medicaid and other public funds. And 100% came from the lives of people like you and me who do not have a fair choice to stay at home and with attendant services. Insert footnote: When reporting this to the public, ADAPT of TX used to use the term profits, but the Texas nursing home industry threatened to sue us if we used that term. FYI The American Heritage Dictionary defines profits as "the return received on a business undertaking after costs have been met." Your guess at the difference is as good as ours. [back to article] Kuntz and his top level cronies personally pulled in over $2 million in salaries and perques in 1994. This cozy financial package allows Kuntz’s family to live in a genteel little village on the outskirts of Houston. On another much less prosperous edge of Houston, over 200 kids with disabilities are kept on the second floor of the "Thomas Care Center" one of Living Centers’ nursing homes. Fenced in with barbed wire, some do not even leave the grounds to go to school. This is just one of the 209 nursing homes with over 24,000 beds which help pay for the comforts of Kuntz, his staff, board and shareholders. The second wave of ADAPT’s activists went to deliver some barbed wire to Kuntz’s home (since it was apparently good for the kids at Thomas Care Center we figured his family deserved the same protection) but found that -- learning of our plan in advance -- the family had moved down the road a ways. Helpfully, a neighbor phoned the Kuntzes with the unpleasant news of our attempted visit. [Subheading] MEANWHILE, BACK AT THE OFFICE Back at the eighth floor of corporate headquarters, the first arrivals headed into the offices to seek out Kuntz. Doors were locked in our faces and one man pulled a sofa across a hallway to block our passage. However, it was obvious our message had already penetrated the office. ADAPT’s chants rang through their halls, and downstairs van-load after van-load of ADAPTers kept pouring into the building, packing the lobby. Houston police, apparently unable to arrest people in wheelchairs, tried to negotiate, Kuntz hid for the first few hours, but as the building owner grew more and more tense, Kuntz was forced to respond. ln paternalistic frustration police arrested five people who could walk (some with disabilities that were not visible ones.) Negotiations progressed at a snail’s pace, while the police dragged hundreds of ADAPT members out of the building. In the end, Kuntz agreed to meet with representatives from each of the ADAPT `groups` that had come to Houston. The police delivered him outside, where he read a typed, prepared statement of the same old tired lines AHCA folks always use. Then he scurried back inside. << Photo by Cante Tinza, Inc.: Protesters are standing and sitting jammed in by the front of a building. Their mouths are open yelling, one person has a bullhorn and several have their arms raised in the air. Caption reads: Outside the Republican Headquarters ADAPT cheered upon hearing the party chairman had arrived and agreed to our demands. [Back to article] [Subheading] BACK TO THE BEGINNING The Houston event started Sunday with a day of workshops and a Housing Forum with HUD Secretary Henry Cisneros. The workshops were an excellent exchange of information on everything from promoting state versions of CASA (the Community Attendant Services Act, ADAPT’s draft legislation) back home, to developing real housing opportunities for people with disabilities. Justin Dart welcomed ADAPT and Cisneros to his old stomping grounds: Texas. At the forum Cisneros seemed to pick up on many housing issues and was supportive of "visitability" (adaptive or universal design offering basic access so people can visit family, friends, etc.) in addition to better alternatives and more consumer control. However, he was either unwilling or unable to see the problem with HUD sponsoring finance packages for nursing homes and other institutions. In fact he referred to nursing homes as a housing opportunity for older Americans, and seemed to think because people were older they would somehow require such "housing." Clearly, the Secretary’s understanding of disability discrimination is superficial -- at best. More education will be necessary. [Subheading] WE’RE HERE, WE’RE THERE, WE’RE EVERYWHERE Tuesday dawned with the same blistering heat as before. But ADAPT activists were as fired-up as ever to tackle the day’s targets. With over 500 people we could again divide and hit two places in one day, thereby reinforcing our message to the target, namely the leadership of the party in power, the Republican party. Speaker Gingrich and his cohorts still had not lived up to his promises to introduce CASA and include its principles in Medicaid reform proposals. Despite its adherence to the professed Republican values, the party generally has ignored the benefits of CASA: supporting family values, cost effectiveness and getting government out of people's lives. Photo by Carolyn Long: Three women in straw cowboy hats stand in a line arms around each other grinning. Caption reads: Free at last, Donna Redfern, Kathleen Sacco and Marita Heyden finally came out of jail. Bill Henning and Mike Butte were released earlier that day. [Back to article] Half of ADAPT headed for the Harris County Republican Party, and half for the district office of Tom Delay, the US House of Representatives’ Majority Whip (they guy who lines up the votes in favor of the Contract on America). [Subheading] NO ACCESS TO THE REPUBLICAN AND DOLE ELECTION HEADQUARTERS The two actions worked like a charm. ADAPT surrounded the converted gray house where the Harris County Republican Party Headquarters are located. Ironically, this inaccessible building was also the Presidential Campaign headquarters for Dole, who sells himself as the "disability candidate." After quite a wait staff finally located Gary Polland, Chairperson of the Harris County Republicans. In the meantime, ADAPT folks sang the staff numerous versus of "Deep in the Heart of Texas," ADAPT style (see below) When Polland arrived he was very receptive to our demands. He understood that our reform proposal CASA, met many of the Republicans’ goals, and that choice of services was the way to go. He faxed the letters to Dole, Gingrich, Delay and others regarding our concerns and promoting support of our CASA. He also spontaneously offered to have ADAPT representatives present our proposed Party Platform language to the Texas Republican Party Platform Committee when they met to prepare for the state Convention. [Subheading] DON’T DELAY, DELAY All of the 200 crack ADAPT troops who went to Representative Delay’s office managed to get inside the building unhindered, and most made it up to the second floor where Delay had his office. ADAPT’s negotiators were tough, at one point wadding into a ball a draft statement Delay’s staff offered and throwing it back across the table at them. After intense lengthy negotiations, Delay produced a letter committing that he would meet with ADAPT. [Subheading] FREE AT LAST Around midnight that night the last of the five arrested and jailed the first day were released to a rowdy welcoming home crowd of ADAPTers. [Subheading] DAVID AND GOLIATH On Wednesday ADAPT went all together to confront the potentially largest and most heinous enemy of long term care. This menace, lurking just on the horizon, is corporate managed care; this time in the form of one of the industry giants -- Cigna. Although police had spotted us gathering in a nearby empty parking lot, as van load after van load of activists unloaded, they could not stop us as we began to roll. Cigna is one of the biggest insurers handling managed care, a real mover and shaker in the health care arena. As both private and public health care systems move closer and closer toward the managed care model, many problems are surfacing for people with disabilities who have health care needs. Not least among these are the needs for long term care. Long term care is not considered as profitable as acute health care and therefore is less desirable to the managed care corporations. They tend to try and "cream" the most profitable services and ignore the rest. Marching in the front doors, we headed for the elevators to the 12th floor. Leaders demanded to see the CEO as ADAPTers kept filling offices after office and hall after hall. Once the 12th floor was packed, people went for the 11th and 13th floors, and still the lobby remained full of chanting protesters. We took building security and occupants by complete surprise. Working upstairs, a mother of a child with a disability heard the protest and came down to thank ADAPT for lighting for her son. "I worry about him having to go to a nursing home someday. It’s a frightening thought!" she said, and she is right. After some masterful negotiations upstairs and several rounds of ADAPT’s "Deep in the Heart of Texas" from those downstairs in the lobby, Cigna’s Houston CEO Richard Todd, came down to read their letter agreeing to meet with ADAPT to discuss our concerns. The air rang with cheers for ADAPT’s third day of victories. The building chief of security said to one of the day leaders that he was not too happy with our tactics, but the protester pointed out to him that training like this would have cost him over $1,000 a day, yet we had given it for free. The security chief looked amazed, but admitted with a grin it was true! Photo by Cante Tinza, Inc: Between two gleaming metal walls of elevators ADAPT protesters fill all the available space. Facing in all directions waiting for elevators, the group is packed together. Caption reads: ADAPT filled the lobby and several floors of Cigna. We don't want managed care to manage us out of the picture. [back to article] [Subheading] HAVE NO FEAR, ADAPT IS HERE With the largest numbers we have ever had, ADAPT was tested in our ability to work as a team. Each local group had worked hard and in almost every case was able to bring more activists than ever before. Many new faces and many new places were among us. Our people were tested in our faith in one another, and learned the strength we can harness when that faith is kept. Despite some wrinkles, we bested the tests of heat, lack of elevators and transportation. People put up with half hour long waits to get down from the hotel rooms to the staging area, inaccessible vans with make-shift ramps, long cross-city trips on Houston’s traffic-jammed highways, police targeting walking protesters, and record high temperatures and humidity. We put up with these hassles to get across a message, FREE OUR PEOPLE. Acting together ADAPT, once again, was a force to be reckoned with. ADAPT’s message was sent to as many players as possible: day one to the private corporations who seek tremendous profits from the current warped system, day two to the political forces which could effect change but don’t, and day three to those who seek to control the system as it moves to "public- private partnerships." Next stop ATLANTA! [The end of this article] Lyrics Deep in the Heart of TX (song to the tune of Deep in the Heart of Texas) We take no crap Cause we're ADAPT CHORUS: Deep in the Heart of Texas Nursing homes stink They're worse than you think Deep in the Heart of Texas Politicians lie We all know why Deep in the Heart of Texas We'll put a cowboy boot Up the ass of Newt Deep in the Heart of Texas But have no fear ADAPT is here Deep in the Heart of Texas It is my place To get in your face Deep in the Heart of Texas You will be trapped Cause we're ADAPT Deep in the Heart of Texas We want CASA new We don't care how Deep in the Heart of Texas We're making a plea To just be free Deep in the Heart of Texas Rather live in my home Not a nursing home Deep in the Heart of Texas So just be sure What we stand for Deep in the Heart of Texas We take no crap Cause we're ADAPT Deep in the heart of Texas - lyrics by Zak Zakarewsky - ADAPT (779)
ADAPT MEETS WITH CLINTON Thirty national disability rights `groups`, among them ADAPT, met with President Clinton on Tuesday, July 27 to discuss Clinton's agenda on disability issues. Clinton and the disability `groups` agreed the three main issues at this point are ADA, Health Care and Personal Assistance Services. The President confirmed his strong commitment to enforcement of the ADA and opposition to weakening of the law, something that has been rumored to be in the wings. He also affirmed his commitment to including people with disabilities in health care reform. Mike Auberger, national organizer for ADAPT, presented the piece on personal assistance services. Auberger outlined the concern of ADAPT, and the disability community generally, with the current promotion of a states rights approach to community based services. Right now our nation warehouses over two and a half Million people with disabilities in nursing homes and other in stitutions at a national cost of approximately $140 Billion each year. Over half our states have chosen not to provide attendant services at any real level, while all have significant nursing home programs. A national attendant services program MUST: (1) be mandated, and (2) have minimum standards below which a state cannot fall. Challenging the President to stop the warehousing of people with disabilities in these institutions, Auberger said "you have the ability, and hopefully the desire. ADAPT challenges you to free people." Though the meeting was scheduled for 20 minutes, it went on for an hour. Clinton began the meeting with a relay call to Senator Harkin’s brother (who is deaf) in honor of Monday's deadline for a national relay service. As Auberger left the White House he thought of the irony that ten years ago he and other ADAPT members had lain in that very street (Pennsylvania Ave.) blocking buses with their bodies for the right to ride. Protests got ADAPT into this meeting and clearly protest will bring us victory. - ADAPT (755)
TITLE: Clinton, disability rights advocates reach accord on attendant services by Gary Bosworth, special to Access USA News Photo (possibly by Gary Bosworth): A line of ADAPT protesters, mostly in wheelchairs are chanting on the sidewalk outside a large stone building. Quinn Brisben and Ken Heard are at one end and Bob Kafka at the other. You can see barricades behind them. Caption reads: Members of ADAPT protest in front of the Marriot in San Francisco during the annual convention of the nursing home lobby, American Health Care Association. [This article continues on ADAPT 754 but the entire text is included here for easier reading. There is a statement by Gov. Clinton after this article.] On Monday, October 19, the Clinton/Gore campaign released a policy statement that forcefully supports attendant services for persons with disabilities instead of institutionalization The agreement worked out was the culmination of more than a month's negotiation between the Clinton/Gore campaign and the disability rights group ADAPT. In September, ADAPT contacted both the Bush/Quayle and the Clinton/Gore campaigns about the issue of attendant services. Both campaigns were asked to issue policy statements supporting independence for persons with disabilities through attendant services. A mid-October deadline for the statement was given because ADAPT was going to be In San Francisco for a national action at the site of the annual convention for the nursing home lobby, American Health Care Association (AHCA). While the Bush/Quayle campaign ignored the request, Clinton/Gore worked on a statement that was faxed to ADAPT as they were arriving in San Francisco on October 17. The Clinton/Gore statement went a long way to addressing the needs of attendant services, but was still missing the fact that a major crux of the problem had to with the bias in how federal regulations favor more expensive nursing home care instead of less expensive, more efficient attendant services Without the additional language, ADAPT went ahead with its planned non-violent protest march on Monday, October 19. Over 400 persons with disabilities marched in two `groups`, targeting the headquarters of Bush/Quayle and Clinton/Gore simultaneously. In response, the Bush/Quayle headquarters not only blocked off all wheelchair access to their headquarters, they also installed barricades blockading the entrances outside manned by platoons of police, Over at the Clinton/Gore headquarters no barricades were erected as more than 100 persons in wheelchairs from twenty states occupied every nook and cranny of the headquarters, leaving several dozen protesters lined up outside as police looked on without barricades After several hours of the occupation, an updated version of the earlier statement was faxed directly to ADAPT at the protest, from the Clinton/Gore national headquarters. The new revised statement was read to the assembled crowd of wheelchair warriors by Clinton’s director on national disability policy, Bobby Simpson. The final proposal is a far-ranging progressive document that: (1) persons with disabilities must be given the right to choose consumer-driven, community-based attendant services versus institutionalization, (2) employment as attendants by young women and men will be encouraged as an option under the National Service Trust Fund service to their community, (3) appointing a task force that will submit a reform package within the first 100 days of the Clinton Administration to overhaul federal regulations to remove their overwhelming institutionalization bias and instead propose regulations to make attendant services more available, and (4) the task force will include members with disabilities from prominent disability rights `groups` such as ADAPT. With this victory, the occupation was called a success by both the peaceful protesters in their wheelchairs and the workers of the Clinton/Gore campaign. That was in sharp contrast to the mood at the Bush/Quayle headquarters where the republican campaign refused to negotiate and instead issued a statement that the efforts by ADAPT were 'counter-productive' and 'a disservice to the disabled'. The next day, the mood changed again when California’s budget cuts in the state SSI/SSP of 16 1/2percent and attendant services of 12 percent were the subject of the action. The two sites targeted were the federal building and the state building in San Francisco. The police were caught off guard being stationed only at the state building. The federal protective service in charge of the federal building wasn't ready either. What followed was a declaration by ADAPT that the federal building was being turned into a nursing home for the day with all access in and out shut down. Police responded with mass arrests of 49 protesters in the plaza in front of the federal building as the protesters linked arms and wheelchairs together. The remainder of the group then continued on to the state building. Police had removed troops from the state building to go to the federal building. No arrests occurred at the state building as the group chanted and passed out fliers to passers-by. The 49 arrested were held for the day, ticketed, and released down at pier 38, which the police turned into a huge booking and holding facility. On the final planned day of protests, Wednesday, the AMCA convention hotel was the site of the dally protest. Police arrested 114 persons that day when the driveways and streets in front of the Marriott hotel were blocked by people using wheelchairs. It took hours to transport those arrested back down the pier. This prompted Mike Auberger of ADAPT to comment, "If I knew I would be spending so much time here I would have brought my fishing pole.” When released, the group marched in formation backto their own hotel for a night of celebration. It was a long week of work done getting the message out to the general public about the issue of attendant services as a basic civil rights issue. Among the celebrations held Wednesday night was a special wedding ceremony of two ADAPT protesters from Philadelphia and a musical concert put on by performers with disabilities that lasted into the wee hours. By all accounts, the week was a success. Even the police mentioned several times they were totally unprepared for the dedication and training of ADAPT members during the action to the point of admiration that the protesters never lost sight of why they were there - to expose the inhumanity of locking up persons with disabilities into nursing homes, when attendant services are less expensive, more humane, and let individuals retain their civil rights. the end TITLE: Statement of Governor Clinton on Personal Assistance Services I support efforts to make affordable personal assistance services available to Americans with disabilities. We must ensure that all people have the opportunity to live independent lives. People who have disabilities and have a need for personal assistance services should have maximum control over the care they receive. Personal assistance serves must be consumer driven- they must be met by the needs and desires of the user, not the dictates of the supplier. I believe that personal assistance services are of the utmost importance. I understand that every person has different needs. For this reason, I believe that every person has the right to personal assistance services. I believe that personal assistance services should be provided by a wide range of qualified individuals. In my proposal for a National Service Trust Fund, I have suggested that young men and women who go to college can pay for their education by spending two years working in jobs which serve our community - teaching our children, policing our streets, rebuilding our infrastructure. Employment in personal assistance services should be an option in this program, and I hope thousands of men and women choose it. This is only one of many ways in which we can expand the scope of available services. Personal assistance services should be a part of any comprehensive health care reform plan. For this reason, I intend to appoint a task force, including individuals with disabilities, on the role of personal assistance services and long term care in health care reform. Among other things, this task force should examine the role of federal regulations and funding which creates a presumption in favor of institutionalized care over home and community-based services. I have promised to submit a reform package to Congress in the first 100 days of my Administration. The task force will submit recommendations on reform in that time period. It is time for America to realize that silence on issues of concern to people with disabilities is as damaging as prejudice. As President, I will work with individuals with disabilities to empower people to live independently, I will bring people together and make this plan a reality. - ADAPT (768)
San Francisco Examiner TITLE: Disabled protest for more funds for home attendants Subheading: Entrances to downtown Marriott are blocked By Wylie Wong of the Examiner Staff, October 19, 1992 About 300 demonstrators in wheelchairs blocked the entrances to the San Francisco Marriott, calling for more funds to allow the disabled to live outside of nursing homes. Sunday's protest was designed to drew attention to the 16 million disabled people who have no choice but to live in nursing homes, said the Rev. Wade Blank, a co-founder Americans Disabled for Attendant Programs Today (ADAPT). The protesters targeted the American Health Care Association, a nursing-home trade group whose members are staying at the Marriott on Fourth and Minion streets while attending a convention at nearby Moscone Center. ADAPT wants 25 percent of the $27 billion paid to nursing home operators under the Medicaid program to be used to help disabled people pay for personal attendants. But the Bush administration and the health care association, which represents about 10,000 nursing homes, oppose the plan. Only $600 million of that money currently is used for in-home attendant care, said ADAPT co-founder Michael Auberger. Police escorted the protesters on the eight-block trip from their Market Street hotel, and watched as they barricaded themselves at the Marriott's entrances. The protesters chanted. "Down with nursing homes, up with attendant care.” Police were able to keep some entrances open for hotel guests. No arrests were made. Kimberly Horton, who lived in a nursing home from age 6 to 21, described her experience as “living in a prison." "They take away your personal dignity," she said. "You had to eat what they put in front of you. They'd get angry at me for wetting my bed, but wouldn't help when I had to go.” Protester Blane Beckwith, a Berkeley resident, has a personal attendant who takes care of his everyday needs, from taking a bath to preparing food. But state budget cuts have slashed eight hours of care per month. As a result, he has only half an hour per week for grocery shopping with his attendant. "No one can shop for groceries in half an hour, My mother helps me, but she's 62 and can't do it forever." he said. Horton, who wants to take writing classes and become a free-lance writer, fear that more budget cutsar will force him to live in a nursing home. "A nursing home is stifling," he said, "You have no social life. You can't work." Conventioneers who walked past the protesters were unimpressed. "I have no argument with wanting more attendant care,” said John Jarrett, who runs a 79-bed nursing home in New York. "But they shouldn't take it from the elderly,” who would be hurt if ADAPT funding plan were implemented, he said. The demonstrators plan to protest the convention through Friday. A police commander said 90 police officers were on hand. “They haven’t been violent,” he said. “They’ve been very cooperative.“ Last week, officers took two hour classes at the Police Academy to learn how to arrest and search disabled people without harming them. PHOTO by Michael Macor, Examiner: The front of the ADAPT group marching down a downtown street and in the background the line of marchers goes out of sight. Paulette Patterson, Julie Nolan, Carla Laws, Brooke Boston? and Bob Kafka among those leading the march. Photo caption: Disabled people from the group ADAPT make their way down Mission Street to the Marriott Hotel. - ADAPT (767)
San Francisco Chronicle, Monday, October 19, 1992 TITLE: S.F. Protesters In Wheelchairs Bar Hotel Exits By Dan Levy, Chronicle Staff Writer Hundreds of demonstrators in wheelchairs calling for a national program for home attendant care surrounded a downtown San Francisco hotel last night in a noisy protest. The protesters blocked the driveway and main entrances to the San Francisco Marriott hotel on Fourth Street for more than an hour, disrupting the opening night convention activities of the American Health Care Association, which represents the nursing home industry. Police in riot gear formed a narrow corridor for hotel guests to pass in and out of the hotel on the Market Street side, but the building was blocked at Fourth Street by about 300 demonstrators -most in motorized wheelchairs, some with dog guides — chanting “Up with attendant care, down with nursing homes." There were no arrests. Attendant care advocates have urged that $25 million of the federal Medicaid budget currently allocated to nursing homes be used to create a national program for home care. Wade Blank, a founder of the Denver-based advocacy group, American Disabled for Attendant Programs Today, said home attendant care is less expensive than institutional care and allows disabled people to live in their communities. - ADAPT (1018)
Houston Chronicle Tuesday May21, 1996 Headline: 5 arrested after building is taken over in protest [page has a crease down the middle so some text is hidden, most was able to be figured out] by Lisa Teachey -- Houston Chronicle About 400 disabled people took over a westside building Monday until police arrived to move the protest outside. Members of American Disabled for Attendant Programs Today, most of them in wheelchairs, blocked the entrance and elevators leading to Living Centers of America at 15415 Katy Freeway at about 10:30 a.m. Five people who refused to leave the building were arrested for criminal trespass, said Houston police Capt. D.E. Watkins. None of the arrested was wheelchair bound. The protest was staged because ADAPT wants a larger share of the federal money dedicated to nursing home care to go to programs that provide in-home care or community-based care for the disabled. “We're tired of the nursing home industry keeping a lock on over 85 percent of the long-term care money,” said protester Diane Coleman. “If a person needs long-term care, they should be able to say where they [obscured partially here] get, not the system.” Federal money is set aside through Medicaid for nursing home care as well as for attendant-care and community-based programs, said Katherine Hinson, of the Texas Health Care Association, a trade organization that represents long-term care facilities. “They want to take money from one under funded program and put it in another under-funded program,” Hinson said. “There’s not enough money to go around. We've asked them to join us to get more funding for all.“ Living Centers is a long-term health care corporation that operates nursing facilities, rehabilitation centers a other types of facilities. “Their main quarrel is with the government,” said Edward Kuntz, Living Centers chief executive officer. “They want additional funding." Kuntz said he agrees with ADAPT's call for more money, “but not at the cost of long-term nursing facilities." - ADAPT (749)
The Disability Rag, July/August 1992 $2.50 Photo by Tom Olin: A policeman us bent forward doubled up, holding a small woman (Spitfire aka Eileen Sabel) from crawling between his legs and under the police barrier behind him. Spitfire wears a white shirt which says in black letters "Never Surrender." Beside them a man (Bernard Baker) is lying on the street under the barrier holding one of its bars. Under his legs is another wooden barrier that has been tipped over and above his head is another barrier of some kind that says "street operations." Title: On the barricades with ADAPT story, photos page 4 [article begins ADAPT 744 and entire text is included there for easier reading.] Boxed inset: Inside: Dying to get out p.12, John Hockenberry - anger and access p.30 - ADAPT (1031)
Houston Chronicle, Wednesday. May 22. 1996 [p. 22A] [Headline] Disabled protesters take over headquarters of county GOP By JENNIFER C. WANG Houston Chronicle Groups of protesters, most of them in wheelchairs, barricaded two local political offices Tuesday to demand changes in the way disabled people receive care in America. About 100 supporters of the advocacy group American Disabled for Attendant Programs Today took the Harris County Republican Party and denied party Garry Polland access to the building until he agreed to help their cause. A second group of about 150 ADAPT supporters blockaded and occupied U.S. Rep. Tom DeLay’s office in Sugar Land, until DeLay agreed to meet with them. ADAPT is a nonprofit group of activists who want federal funding for disabled and elderly care to be diverted from nursing homes to programs that provide in-home care or community-based care. ADAPT staged a similar demonstration Monday at Living Centers of America, one of the nation's largest operators of nursing homes, rehabilitation centers and other facilities. “Politicians in Houston are very important within our government. So, we want to make our case heard,” said Kathleen Kleinmann, an activist who traveled from Washington, Pa, to protest in front of the Republican Party Headquarters. "We are committed to getting attendant care as a national right. It is basically the same type of services as nursing homes - aides would help you get out of bed in the morning, help you get your food... but it keeps you in your own home and it gives you freedom," Kleinmann explained. At the Monday protest at the Living Centers of America, five people were arrested and spent the night in jail. Tuesday's protesters narrowly escaped arrest by Stafford police when DeLay, who is in Washington DC, agreed to meet with them next month. Both groups of protesters declared their demonstrations a success. Polland agreed to write presumptive GOP presidential nominee Bob Dole, Speaker of the House Newt Gingrich and DeLay, urging them to meet with ADAPT at the party's state convention in August. Polland said he disagreed with ADAPT’s proposal to mandate a redistribution of funds, but that the group's demands are in line with Republican initiatives promoting choice, empowerment and health care vouchers. “This is really a Republican agenda," Polland said. “The system mandates certain types of treatment. That‘s their complaint." Mike Oxford, an ADAPT activist from Kansas said because meetings in the past with Dole and Gingrich have yielded no action, the group is cautious about promises for action from Polland and DeLay. “The problem with vouchers is it's like giving somebody a dollar and saying, ‘Here, go to Red Lobster.’ You‘ve got choices, but you've got to have resources to back that choice up, otherwise, it's meaningless," Oxford said. ADAPT, which stages two national protests each year, said it has more activities planned for Houston throughout the week but declined to reveal where or when. “We're going to dog this issue until we get it," Kleinmann said. “We're not going to give up. Never." PHOTO by John Everett / Chronicle Group of at least eight ADAPT protesters in wheelchairs and standing fill a small office with a door and reception desk. They are talking with a man in a white shirt and tie. One protester holds a sign that reads "Too Sexy for your Nursing Homes!" Caption reads: Harris County GOP chairman Gary Polland, standing, talks with members of an advocacy group for disabled rights Tuesday during the group's protest over the way disabled people receive care. - ADAPT (775)
San Francisco Examiner Title: DISABLED PROTEST IN S.F PHOTO by Michael Macor: A Squad of five or more police in white riot or motorcycle type helmets grab at a man with CP (Chris Hronis) who is coming out of his wheelchair. Beside him another man in a chair (George Florum) holds the back of Chris' chair, and in front of George another person, partially obscured, in a power chair, is pulled in tight and parked. Caption: Chris Hronis is put back in his wheelchair after blocking the entrance to a health-care convention at San Francisco’s Marriott Hotel on Sunday. He was among 300 wheelchair-bound demonstrators calling for more funding for home attendants so people with handicaps can live outside of nursing homes. [A-4] - ADAPT (904)
DISCLOSURE 7 JULY-AUGUST 1995 [Image] Man in ADAPT T-shirt [Jim Glozier] walks in line of protesters mostly in wheelchairs. With his left hand he is driving a little boy's [Kyle Glozier] motorized wheelchair. Kyle is wearing a bandana headband and in front of him is a small briefcase sized box [a communication device] attached to his wheelchair. Jim and Kyle are looking ahead with determined expressions. Several others are visible behind them. [Image caption] Kyle Glozier, right, and his father Jim were part of the ADAPT, Americans Disabled for Attendant Programs Today, march through Washington, D C. as part of the group's national action In May. [Headline] Health-care industry, Newt, Shalala forced to ADAPT or perish The national action of the Americans Disabled for Attendant Programs Today can easily be summarized. As they have for several years, the hundreds-strong national organization of the disabled went to Washington to pursue their goal of more federal support for home care and other programs instead of massive subsidy of the nursing home business. Here's how ADAPT leaders summarized it: Newt saw. Newt ran. Newt slept in a hotel. Donna Shalala, secretary of Health and Human Services, saw (Monday). Donna Shalala came (Wednesday). Donna Shalala was impressed. Donna Shalala wrote a letter supporting ADAPT's Community Attendant Services Act. The Health Care Finance Administration Director saw. HCFA met with more than 30 local ADAPT groups and plans to learn more. HCFA came. HCFA is beginning to understand. Manor Care corporation saw. Manor Care heard the issues and the demands. Manor Care locked their doors. Manor Care learned what nursing home life is like--Welcome to the nursing home, you can't get out! ADAPT's lawyer is working on the tickets given to 110 arrestees. The 700 leaders at the ADAPT conference made progress on their goal of a new law to provide a community-based alternative-to nursing homes and institutions for people with developmental dis-abilities. Called CASA, the Community Attendant Services Act, the law they propose would redirect the huge federal subsidies to the nursing home industry toward community-based alternatives that treat people with dignity. Newt Gingrich's landlords at 110 Maryland Ave., N.E. must be getting tired of seeing activists of every stripe trample their lawn. Just weeks after NPA visited the building on the last Sunday in April, ADAPT showed up twice in two days , barring entrance to the building for most of one day. Although they won't meet with Newt until September, Shalala did come to the conference, where she read a statement of support for the organization's goals. "I want to take this opportunity to reaffirm our support for the principles of emphasizing home- and community-based services and offering consumers the maximum amount of choice, control, and flexibility in how those services are organized and delivered," Shalala told the four hundred people gathered at the conference. Maybe the best summary came from Norbert Holmblad, who wrote in the group's magazine, Incitement: "This is the first time I completely crossed the line on something this large and important....I'm sure they won't forget or easily forget the messages that our pathetic, ragtag, but very powerful group made." - ADAPT (816)
This Week in Healthcare Photo: Protesters in wheelchairs sit in a group chanting. Their signs read: "Is there a nursing home in your future?" and "Our Homes not Nursing Homes." Front row left to right is George Roberts with Larry Biondi and another person behind him, and Stephanie Thomas and Karen Tamley with signs. Caption reads: Wheelchair-bound members of ADAPT, a patient-advocacy group, disrupt AHCA’s meeting. Title: Disabled protest AHCA approach in lobbying for reform by John Burns [This article contines in ADAPT 815 but the entire text is included here for easier reading.] Nursing home providers weren’t the only ones recommending comprehensive long-term-care reform last week during the American Health Care Associations convention in Nashville, Tenn. More than 250 people, many of them disabled and wheelchair bound, demonstrated outside—and inside—the convention's Opryland Hotel headquarters to protest the AHCA’s lobbying of the Clinton administration for increased federal funding for nursing home care. The incident was the latest in a series of clashes between healthcare provider and consumer groups reacting to President Clinton's healthcare reform plan. Last month, the American Association of Retired Persons and Families USA, a consumer advocacy group, launched separate advertising campaigns attacking the lobbying efforts of several healthcare special-interest groups (See related story, p. 60). Early in the week, Paul Willging, AHCA’s executive vice president, outlined the associations agenda for reform to an audience of more than 2,000 nursing home administrators. More than 4,000 people attended last week's convention, the largest turnout in eight years. The group represents about 10,000 for-profit facilities. Mr. Willging commended the Clinton administration for the inclusion of steps in its reform plan to improve long-term-care financing. The plan calls for the creation of a long-term-care insurance market to help residents pay nursing home costs. “We've argued for years that the private sector offers an answer to escalating Medicaid spending... and to the forced impoverishment of millions of Americans due to their long-term-care needs,” Mr. Willging said. The AHCA’s platform for reform calls for a private-public partnership for long-term-care financing. Under their vision of coverage, private insurance would pay a large portion of nursing home costs, while the federal government would pay for the poor. However, eliminating the "imprisonment” - not impoverishment—of nursing home residents was the battle cry of hundreds of protesters from a group called Americans Disabled for Attendant Programs Today. The organization is a Denver-based patient advocacy group representing people with disabilities who would rather live at home than in nursing homes. Throughout the week, ADAPT members protested outside the Opryland Hotel, demanding that the group be allowed into the convention to debate its agenda. The group’s primary goal is to shift at least 25% of Medicaid spending now designated for nursing homes so the money could be used to develop home- and community-based long-term-care programs. The AHCA, which denied access to ADAPT members, did offer to meet with them in a closed-door session, said Claudia Askew, an AHCA spokeswoman. However, after talks broke down on Sept. 28, ADAPT protesters stormed the hotel, disrupting the convention and hotel traffic for hours. Nearly 100 ADAPT members were arrested. “We think we share a common goal of supporting additional funding for home-care services,” Ms. Askew said. “But, after today, I don’t know if we can come to any agreement.” This isn't the first time the association and ADAPT have clashed. Last year, ADAPT staged a similar protest during the AHCA’s convention in San Francisco, resulting in numerous protester arrests, she said.