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- ADAPT (1000)
20 — ETC ' NOVEMBER 22, 1996, IN THE NEWS Photo by T. Nash: A young man in a manual wheelchair is next to a police officer by a building wall. A small group of other people are in the background between them. Caption reads: ADAPT acts up at the Marriot Title: Disability actions impact gay community by Rob Nixon Atlanta - Forceful, effective street activism is not dead, it's just being conducted from wheelchairs. And the outcome of recent high-profile protests by disabled people will have a direct affect on many lesbians, gay men and people with AIDS, according to leaders in the disabled community. Close to 500 members of the disability rights activist group ADAPT (American Disabled for Attendant Programs Today) came from around the nation to Atlanta, Nov. 2 — 6, marching on Centennial Olympic Park, shutting down Georgia Democratic Party headquarters and traffic on Memorial Drive and disrupting a national convention site. And they left town with commitments from both Pres. Bill Clinton and Speaker of the House Newt Gingrich (R—Ga.) to introduce and support legislationon home and community-based services. At issue is a system in which the elderly and disabled who depend on Medicaid for their care are forced into nursing homes instead of being allowed to use the coverage to fund services that would allow them to stay at home. ADAPT wants at least an initial 25 percent of public money to go toward providing home care, a proposal strongly challenged by the multi-million-dollar nursing home industry, which stands to lose money if the ADAPT plan is adapted. “Our tax money now goes into putting people into institutions that cost somewhere between $40,000 and $100,000 a year, whereas home and community-based services start as low as $8,000 a year," explains Zan Thomton, community organizer for the federally funded non-profit Disability Action Center based in the Atlanta area and a self-proclaimed “rabble rouser" with ADAPT. As an open lesbian, Thomton also sees the issue as relevant to the gay community. “This was part of Sharon Kowalski's issue, because what her lover, Karen Thompson, was fighting for was to get her into their home and out of the nursing home where [Kowalski's] biological family chose to keep her," Thornton says, refen'ing to the case of the lesbian couple separated in the late 1980s when one of them became severely disabled after an accident. After years of legal battles, Kowalski was finally retumed to Thompson's disability-accessible home. Thomton also says the issue is important for disabled gays who may be forced into nursing homes where they are not wanted and are treated badly. Such problems would be avoidable under the ADAPT plan, says Eleanor Smith, founder and coordinator of Concrete Change, an organization that advocates for disability-accessible housing. “A lot of institutions militate against even heterosexual sex; that's doubly true of gay and lesbian disabled people who want to maintain their erotic and affectional lives," says Smith. “Anti-gay policies and homophobic individuals who have care and control of your immediate life is a scary thing. They can make your life hell, and they do. By receiving vouchers to pay for home care, it's up to you to hire and fire your own help. There are problems with home care, too, but at least you have some choice and control." Smith points out the issue is equally important to people with AIDS who have progressed to the stage where they have functional difficulties and require daily care. “They need and deserve the kind of support that would allow them to be in the place of their choice," Smith says. “Many would choose to use a voucher and stay in their own home." To achieve its goals, ADAPT has functioned over the last 20 years or so similar to ACT UP. The group maintains no official membership or hierarchy, preferring to operate, Smith says, on the basis of “if you do it, you're in it." ADAPT started in Denver with actions that blocked buses to draw attention to the lack of disabled access to public transportation. Such protests eventually led to having access codified in the Americans with Disabilities Act (ADA). “During the fight for ADA passage, gays and lesbians and disabled people hung together and did not allow themselves to be - ADAPT (100)
Rocky Mountain News, Mon., June 7, 1982 Denver, Colo. p.37 WE’RE ACCESSIBLE! We set our sights on July 1 for increased accessibility. We've beat our goal by nearly a month. During peak hours 50 percent of all Denver-area local service is now equipped with wheelchair lifts. Nearly 100 percent of off-peak local service is now accessible. Please check your schedule for times of lift-equipped buses. Trips will be marked with the wheelchair symbol. If you need special assistance in learning how to use the lift, just give us a call at 628-9000, extension 2118. We are pleased to be able to accommodate our handicapped patrons with expanded service nearly one month ahead of schedule! (signature) L.A. Kimball Executive Director and General Manager 3 PHOTOS (in clockwise order; no credits given). First: A man in a wheelchair sits on a lift into the front door of a city bus. An access symbol is visible by the driver's door of the bus. Second: A woman in a manual wheelchair entering the front of an accessible bus, by the farebox. Three: An RTD bus with RTD "The Ride" written on the side of the bus. In large print at the bottom it says: Striving for the Best Service RTD The Ride - ADAPT (10)
Denver Post Photo by David Cupp: A semi dark room with sun streaming in the window at the back. Silhouetted against the window is an oxygen tank. In the foreground a young man (Michael Smith) with dark beard lies in bed, sheets drawn up to his chin, and his long dark hair laid out on the pillow above his head. He is looking at a young woman (Ellen Finch) who sits by the bed on his left. She is wearing a kerchief and baggy top and fades into the darkness at the bottom edges of the photo. In the black on the right side of the picture, these words are printed in white letters: - And I shall surpass any mountain, or ill or death itself - Mike Smith caption - Bureaucracy Adds a New Handicap for Residents of Atlantis Project Muscular dystrophy patient Mike Smith talks with Ellen Finch, an attendant at Atlantis Community in southwest Denver where he and seven other handicapped persons are living. Smith, 21, and four other Atlantis residents didn't receive their Social Security checks earlier this month because of foul-ups by the federal Social Security Administration, the U.S. Postal Service in Denver and a Lakewood nursing home. - ADAPT (1)
[This continues on ADAPT 2 and 3, but the entire text has been included here in ADAPT 1 for easier reading.] [letterhead] Atlantis Community Inc 2965 west 11th avenue denver colo 80204 303 893 8040 [Headline] The Atlantis Story In June of 1975, Atlantis was born as an alternative to the lives that young disabled persons were being forced to endure in nursing homes and state institutions. Early in 1974, a group of concerned disabled people and able-bodied allies began educating themselves to the plight of the young disabled adult. They found that the majority of these young people (some as young as twelve) who were living in nursing homes were virtually trapped in a stagnating, paternalistic prison where civil rights were blatantly violated, medical care was poor and impersonal, and individual initiative and self actualization were hostilely discouraged. The group that later became Atlantis began looking for alternatives to the prejudiced, dehumanizing lives these young people were seemingly doomed to continue. The first attempt was to create a special youth program in a nursing home, the object of which was to provide normalizing educational and social experiences. The program was to a large degree successful in terms of individual liberation, but it soon became apparent that the humanistic goals of the Atlantis group were in direct conflict with the profit making motivation and paternalistic traditions of the nursing home industry. It was then that the Atlantis Early Action Project was conceived - early in 1975. The goals were clear: to allow every disabled individual, regardless of the extent of her/his disability, the same rights and responsibilities of their able bodied peers - the freedom to choose a lifestyle and fulfill personal goals in education, employment, and personal growth, and freedom from a punitive traditional system that stigmatizes the disabled and segregates them from the mainstream of society. The planning started in January of 1975. Public housing units were leased from the Denver Housing Authority in the Las Casitas Development. Funds from the Colorado Division of Vocational Rehabilitation were secured to renovate the apartments and make them accessible to wheelchairs. In June, the first eight residents moved in. All were former 'patients’ in nursing homes, all had the courage and the desire to live on the outside. In a little over two years, Atlantis has grown from eight residents and a volunteer staff to an attendant staff of forty individuals and forty participants/residents. Seventeen of the residents presently live in the Early Action site, which has become a transitional living center, the remainder live in private sector apartments throughout the city and receive services from Atlantis. Traditionally the young disabled person has been denied the right to an adequate education or meaningful employment and has been sent to nonaccredited, segregated ‘special’ schools or to sheltered workshops to count fish hooks or untangle old phone cords for five cents an hour. Those who reside in nursing homes are often provided with no programming at all. At Atlantis, we try to assist the individual in fulfilling whatever goals s/he outlines. At the present time, residents are attending Denver Opportunity School, Boettcher School, and several of the area colleges. In addition, a constitutional law suit has been initiated by an Atlantis resident in an attempt to change existing laws which deny equal educational opportunities to the disabled. With funds from the Denver Opportunity School, Atlantis operates an Adult Education Center which offers individualized courses in remedial basic skills, speech therapy, and Braille. In an employment and basic life enrichment program financed by the Colorado Division of Vocational Rehabilitation, Atlantis provides a variety of employment opportunities to disabled persons and seeks out employment possibilities in the Denver-Metro area. In keeping with the Atlantis Charter, fifty percent of all positions at Atlantis are occupied by disabled individuals. Our experience has shown that merely providing housing and attendant services does not fully equip the disabled person coming out of an institution to lead an independent, self-directed life. For this reason, special programs have been initiated to aid residents in acquiring the skills necessary to take responsibility for their own lives. Home Training Classes, where residents meet in seminars and share ideas and skills, are held to teach how to organize and maintain an apartment. A Consumer Advocate teaches residents how to perform their own consumer activities such as budgeting money, using a checking account, and buying food and clothing. Other advocacy services available include a twenty four hour a day Crisis Hotline, a Financial Coordinator who assists individuals in getting their public assistance benefits, a Housing Information Service, a Legal Advocacy Service, and a Counseling Referral Service. Disabled persons are not 'sick' people. They do not require a 24 hour a day medical staff of nurses and aides to supervise their personal needs and social activities. What is needed is a consistent source of reliable assistance when they want it. In an attempt to break the traditional concept of home health care - Atlantis hires a pool of professionals who are trained and supervised by a Rehabilitation R.N. Attendant assistance is scheduled as it fits into individual routines and responds to individualized needs. Emphasis in health care is on teaching people to monitor their own - to be aware of their particular needs and be capable of getting those needs filled either self—sufficiently or with assistance. Staff is available on a twenty four hour a day basis in case an emergency arises, and can be reached by a call to the Crisis Hotline. The resident is responsible for scheduling baths, meals, etc. There are no rules governing any individual's mobility or social life. We uphold the right of the disabled to take responsible control over their own lives. Disabled people do have special medical needs. Nurses, attendants and physicians who work with them should have this specialized knowledge. The Atlantis attendant staff is trained in areas of special health concern such as skin, bladder and bowel care, and routine medical needs. Atlantis makes full use of existing medical facilities, primarily the Denver General Health System. We are oriented toward rehabilitative activities and any person who has the desire for rehabilitation is given the opportunity to explore it. Many who were diagnosed at an early age as unrehabilitatable have shown tremendous progress when allowed access to therapists and equipment. It is our belief that any disabled person should have the right to choose where and how s/he wants to live. We believe that the same monies that are provided to house someone in an institution should be made available to those who wish to live independently. We are working to this end. At the present time, an institution in Colorado receives upwards of $600.00 a month in tax money to provide custodial care for a ‘patient’. That same person, once out of an institution, is eligible for maximum public assistance Payments of $402.00 a month to support her/himself and purchase attendant services. Many receive less than the full amount. We can find no valid justification for this huge discrepancy which results in the taxpayer supporting the highly lucrative nursing home industry and discourages the disabled and elderly from pursuing independent and meaningful lives. Our philosophy envelopes the ideas of individual liberty and opportunity, and we are aware of the process that must take place. Liberation from the stagnation of institutional life needs to be coupled with a viable process by which disabled persons can integrate themselves into society as self-fulfilled, independent citizens. It is our hope at Atlantis that by bringing disabled persons together, they can, through shared energy and experience, teach and support each other in achieving freedom and growth.