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[Headline] Local activist fights for independence in Chicago Desert Sentinel By Gary Bosworth Special to the Sentinel It is not normal Mothers Day present from a very unusual person. Susan Cote travelled to Chicago for Mothers Day, not to be with her mother, but instead to fight for the right of all mothers to live independently in their own homes instead of being forced to give up their independence in nursing homes. Cote has had cerebral palsy since birth, which has caused her need the assistance of wheelchair. She is joining about 250 other people from around the country. The will be all converging on Chicago in their wheelchairs to lobby for re-directing 25% of the existing nursing home federal dollars into attendant services so people are not forced to live in nursing homes against their will. American Disabled for Attendant Programs Today (ADAPT) has chosen Mothers Day for this intensive lobbying effort because over two-thirds of the people in nursing homes are somebody's mother. What better way to express gratitude to mothers everywhere, than show solidarity with the dreams of living independent lives. Cote, a mother of two teenagers herself, expresses it by saying, "It is important for people to understand that people do not end up in nursing homes because of the disabilities they develop. All persons with disabilities, no matter what their age are entitled to the right to be given the opportunity to live independent, productive lives in the community by being allowed to continue to live in their own homes." Over $20 billion dollars a year are spent by the federal government to subsidy nursing homes at an average cost of well over $30,000 per person each year. An equivalent amount of attendant services cost from $4,000 to $8,000 a year--a mere fraction of the nursing home cost. Cote, who eight years ago, worked herself as a Certified Nurse's Aide in a nursing home facility sees it as a simple choice for the government to make. "Why spend four times the money on something people don't need, don't want, and limits their own freedom.
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Sun Times, May 11, 1992 Photo by Brian Jackson: A line of police hold a long metal barricade in front of them. On the other side a row of wheelchair demonstrators with ADAPT are lined up toes to the barricade. A man in a wheelchair (Mark Johnson) is in the forground looking sideways to the camera, beside him to his left is a small woman in a chair (Cassie James). Three people down another protester (Brian from Houston) faces the camera and is wearing numerous buttons. Another police officer stands behind Mark, with his hands on his hips. Caption: Able to protest Police keep demonstrators in wheelchairs from advancing Sunday alter a protest of Health and Human Services Secretary Louis W. Sullivan's commencement address at the University of illinois at Chicago. The disabled activists were protesting "warehousing" people with disabilities in nursing homes and other institutions. Russell Goode, a Louisville, Ky., member of American Disabled tor Attendant Programs Today, said, “What we really want is Sullivan to reallocate 25 percent oi the money they give lor nursing homes to us and Medicaid or attendant programs.“ The money would enable disabled people to hire attendants, he said.
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Chicago Defender, Monday, May I I, 1992 Title: Sullivan speaks, get heckled at UIC by Dobie Holland Screaming slogans such as “You're killing us," a group of physically-disabled persons disrupted the commencement speech of Health and Human Services (HHS) Secretary Dr. Louis W. Sullivan Sunday at the University of Illinois-Chicago. Security personnel removed the partially wheelchair-bound group from the UIC Pavilion and escorted them outside, where they joined 500 other protesters from 25 states who picketed outside during the ceremonies. John Gladstone, a Americans Disabled for Attendant Programs Today (ADAPT) member from Philadelphia, explained the group's militant tactics: “These are radical times. You can only write so many letters. l wrote so many letters to Mr. Sullivan that I had writer's cramp." ADAPT, a national Civil Rights agency, is concerned with Bush Administration policies that have resulted in widespread budget cuts in state Medicaid funding. The reductions, ADAPT members say, will force disabled people to live in nursing homes. The group is calling for 25 percent of Medicaid funds to be ear-marked for community-based nursing centers, which will enable many disabled citizens to live independently from nursing homes. “They're warehousing us (in nursing homes)," Gladstone said. “I've lived in nursing homes for 14 years and I have seen some of the brutality that goes on there." Gladstone said nursing homes are guilty of inhumane treatment and neglect of patients who are unable to defend themselves. The environment in nursing homes, Gladstone added, is not conducive to leading a normal adult lifestyle. "When you live in these nursing home facilities, they take your life away. When I first went into a nursing home, I was in a walker but they wouldn't let me walk and they put me in a wheelchair — now I can't walk," he said. Sullivan, who was under tight security, was not available for comment after the ceremonies. The HHS secretary delivered his address despite the nterruptions and emphasized a need for sensitivity and caring toward all humans.
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Photo by Tom Olin?: A group of Chicago police men are huddled by the door of a car. There is a camera person in the foreground. They appear to be helping someone they are guarding in or out of the vehicle.
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Photo Tom Olin?: A view from on high of the line of the ADAPT march down a Chicago street. The line is mostly single file with a T at the front. On the sides a few walking people with ADAPT are helping and police are walking along the street side of the march. On the sidewalk a TV cameraman is filming. From the front of the march left to right you can see Jerry Eubanks being pushed by Bill Henning, Bob Kafka, and Paulette Patterson. Behind them is another row of three activist including Paulette Sanchez and one woman pushing a wheelchair with a small coffin in it. Behind them is another row of three Dorothy Ruffin, a small person behind the coffin and Debbie ______, behind them is someone in a white shirt and Sparky Metz, then George Roberts in a cap and behind him Janette Roberts is holding his chair, next to her San Antonio Fuentes, behind him is possibly Walter Hart and Bobby Thompson is a bit out of the line, then three people, then someone being pushed possibly by Bill Scarborough, then Danny Saenz, then Jennifer McPhail in a purple shirt behing pushed by Richard Zapata, someone is rolling beside them and Babs Johnson is walking beside them too. Behnd that group it gets more difficult to make out faces, but the line goes on out of the top of the picture.
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Chicago Tribune Tribune photo by Carl Wagne: A march of ADAPT through the streets of Chicago. In front, left to right: a man in a red Chicago ADAPT "ADAPT or Perish T-shirt with a picture of man evolving from monkey to ape to man to wheelchair user, a man with no legs (Jerry Eubanks) in a manual chair chanting and holding a poster that reads "Free Our People" and being pushed by a man (Mark Pasquesi), a woman (Paulette Patterson) holds a bullhorn in front of her face, a man in a fishing hat (Bob Kafka) and yellow ADAPT shirt with a sign that reads "Attendant Services NOW!!". Behind the first man is a nab with a head pointer being pushed by a man (Tim Wheat) in a purple ADAPT shirt. Behind Paulette is a man in a suit in a wheelchair and beside him another man (possibly Michael Champion) and behind them a woman (Cassie James) in a power chair, and beside her a woman in a red shirt. As the line goes back it becomes less clear to distinguish people. Title: Disabled protest funds allocation Members of a disabled rights group begin a march from the Bismark Hotel to the regional offices of the Department of Health and Human Services at 105 W. Adams St. Monday to attempt to talk with representatives. The demonstrators, from the group American Disabled for Accessible Public Transit [sic](ADAPT), were protesting to have more money allocated for home care, rather than nursing home care. ADAPT wants the govemment to institute a policy to fund community-based attendant service allowing disabled people to stay home.
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Chicago Tribune Tuesday, May 12, 1992 Title: State thwarts protest, so disabled switch site By Rob Karwath A threatened demonstration by wheelchair-bound protesters prompted an unprecedented show of force Monday at the 16-floor glass-and-steel State of Illinois Center. The demonstrators instead targeted federal offices several blocks south, leaving 3,000 state workers walking along barricaded corridors and past security checkpoints in the building at 100 W. Randolph St. Workers had to tell uniformed police where they were going. Security guards manned the elevators. A trip from an upper floor to a main-floor coffee shop became a half-hour journey. The preparations were made for a group that has become increasingly militant, with members at times chaining themselves to objects and forming chains of wheelchairs. After experiencing a day of the clampdown, most employees interviewed said they thought the state Department of Central Management Services, which runs the building, has overreacted. “It's ridiculous," said Peggy Craddieth, a secretary at the Illinois Pollution Control Board. “Even during Operation Desert Storm they weren’t this tight.” State officials said the tight security will continue all week, or at least until the protesters from Americans Disabled for Attendant Programs Today (ADAPT) leave town. The heavy security seemed out of place to those familiar with the idea behind the wide—open state building. Architect Helmut Jahn created the building to symbolize the openness of a properly run democracy. Jahn’s concept was former Gov. James Thompson's frequent retort to anyone who criticized the building as a poor use of space. “There’s a general discomfort all across the office about this,” said Rob Cushing, a lawyer in the lllinois attorney general‘s office. He said of the demonstrators, “We shouldn't have to go through all of this to deny them their right to protest.” Central Management Services officials said they never intended to create a problem with the extra security, which included calling all department police in on their days off and hiring l6 private security guards at a cost of about $2,000 a day. Instead, department spokeswoman Helen Adorjan said the state was simply trying to keep the building open after receiving a call from ADAPT warning that the group might try to block doors and elevators at the building this week. The group is protesting what it believes to be a lack of government funds for programs that allow disabled people to live at home and avoid nursing homes. ADAPT did block doorways and elevators Monday in at least one Loop building where federal offices are housed. Diane Coleman, an organizer in ADAPT, said Monday that the group went to 105 W. Adams, the Bankers Building, because it houses one of the regional offices of the Department of Health and Human Services. “There have been movements by `groups` like this before, but they were neglecting civil rights tactics—taking it to the streets,” she said. “And we'll do it until we win this issue. Six times the money goes to nursing homes and other institutions than to home and community-based services. We want 25 percent of that nursing home budget to go to home care." Many State of Illinois building workers said they were concerned that everyone entering the building was barred from the Easement and first-floor elevators, which were roped of and guarded by Central Management Services police officers. Yellow and black paper signs directed workers and patrons to an escalator that took them to the second floor where they were allowed to board the elevators. The escalator guaranteed that any wheechair-bound protesters wouldn‘t make it beyond the ground level. But some state workers said they were concerned that wheelchair-bound employees and disabled people with state business had to specially request that an elevator descend to the first floor and then convince building police that they were not protesters. “ls it fair for someone who shows up in a wheelchair to have to declare their business?" asked Alex Des Chenes, a contractor with the state Department of Public Health. “Have you seen the tapes of what the have done in other cities?” Anforjan said. “This group completely immobilizes activity. They need to be able to express themselves, but we need to keep the building operating." But, in an effort to prevent a disruption, workers said all of the extra security only ended up causing a disruption. The building's Lake Street entrance was open, but a large steel gate inside the revolving glass doors sealed it off to all but riders of the CTA subway trains below. A newsstand and a Chinese restaurant located inside the entrance were empty as most of their customers were forced to bypass them. Even some of the Central Management Services police running the elevators said they disagreed with the security plan and would have tried less-disruptive measures. “Everybody’s complaining about this," said one officer, shaking his head as he punched elevator buttons. “It‘s crazy." Tribune photo by David Klobucar: A mass of people are clustered in one big not. ADAPT protesters in wheelchairs are on the street and people in suits and similar work outfits are making their way down the log jammed sidewalk, up to the police barricades. A woman in a dress is stepping over and through two of the protesters so she can continue in the street. Between the street and the sidewalk a metal police barricade is partially visible, and two uniformed officers appear to be casually trying to hold the barricades up. Caption reads: Protesters from Americans Disabled for Attendant Programs Today block an entrance to the U.S. Health and Human Services Department on West Adams Street Monday.
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Chicago Defender, Tuesday May 12, 1992 Sengstacke Newspaper vol. LXXXVII- No.6 35 cents, 40 cents outside Chicago and suburbs Title: Disabled group blockades street by Dobie Holland Likening the plight of the disabled to that of the Civil Rights movement, Americans Disabled for Attendant Programs Today (ADAPT) staged a blockade of downtown streets Monday in an effort to gain an audience with Health and Human Services Director Dr. Louis W. Sullivan. Sullivan, however, refused to meet with the group and 10 ADAPT members were arrested on criminal trespassing charges according to HHS and police officials. “Our ghettos are the nursing homes and facilities for the mentally retarded. Society doesn't want to recognize us. They want to put us in these ghettos," said ADAPT coordinator Bob Kafka of Austin, Texas. Hundreds of ADAPT members rolled their wheelchairs and formed a human chain in the middle of Clark and Adams streets and swamed HHS’ regional offices to demand a meeting with Sullivan. The group wants 25 percent of Medicaid funds channeled to community-based nursing centers, which would permit many disabled citizens to live at home, ADAPT representatives said. "The American Disabilities Act is very similar to the Civil Rights Act of 1964," Kafka said. “Very few people want to talk about the discrimination against the disabled. "They don't want to consider us as people and they just want to put us all in nursing homes,” Kafka continued. “Most people think a nursing home is a nice place for little old ladies...well, it's not.” Kafka, who is wheelchair-bound, said he has never been in an institution but recent political policies of the Bush Administration are making it possible. Title: ADAPT blocks street The American Health Care Association, a formidable nursing lobby, and the American Medical Association are also responsible, Kafka noted. Kafka said nursing homes have become big businesses and doctors have become owners of nursing homes, which motivated both `groups` to, support the institutionalization of the disabled. The group has been attempting to meet with Sullivan for more than two years, Kafka said. with all of their requests being rejected. A spokesperson for HHS told the group that Sullivan was contacted but said his schedule would not permit him to meet with them. On Sunday, a small band of disabled activists disrupted Sullivan's commencement address at the Univelsity of Illinois at Chicago, although the secretary did not acknowledge the ADAPT members. Guests to the gaduation day ceremonis filed past police barricades, while the activists, many in wheelchairs, circled outside the doors of the UIC Pavillion, chanting “We want Sullivan.” The demonstrators made same demands. urging the Bush Administration to redirect 25 percent of Medicaid funds currently budgeted for nursing homes and other institutions to set up community-based programs to allow the disabled to live on their own. An estimated 1.6 million disabled people now live in nursing homes. which Kafka said is a more expensive and less humane option than helping the disabled live independently.
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Photo by Tom Olin: A policeman stands in the middle of the street legs braced in a wide stance and arms stretched out. He is holding a man with a cane (Gary Bosworth) with one hand and with the other hand and foot trying to hold back a man (Bob Kafka) in a manual wheelchair who is bent forward pushing. Other police officers are standing in the street, a supervisor is watching, as is a TV cameraman. Other protesters are partially visible at the edges of the scene. Chicago police have a black and white checkered band around their hats that is very distinctive.
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Chicago Tribune, Wednesday May 13, 1992 Chicagoland Three Tribune photos by Charles Osgood and Michael Fryer: 1) Two policew officers hold a double leg amputee (Jerry Eubanks) by his arms as he leans forward in this chair. Jerry has a grimace on his face. Behind them are a swarm of other Chicago police. 2) A woman (Eileen Spitfire Sabel) in a helmet and shirt that reads "I don't get mad I get arrested." She sits cross-legged a top the front hood of a car, her arms outstreched, chanting or yelling. 3) Three policemen look down as an ADAPT protester (Bernard Baker) crawls between them under a police barricade. Caption reads: Protest at the AMA Members of American Disabled for Attendant Programs Today and others stage a demonstration Tuesday at the American Medical Association, 535 N Dearborn St. Eileen Sabel (top right) wanted to get arrested but failed. Story page 3.
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Photo by Tom Olin: A woman in a striped suit, (the Regional Director of HHS, Delilah Brummet Flaum) stands by a car at the edge of the sidewalk. She is clutching a cup of coffee in one hand and in the other a briefcase and large envelope. Behind her several men in suits follow closely behind her looking like they might push her forward. At her feet however, a man (Bob Kafka) sits on the ground blocking her. To his right a woman in a scooter (Barbara Bounds) leans forward to block that side of the woman's path, while a policeman tries to wrest the controls of her scooter from her. To the woman's right is a man in a scooter (Larry Biondi?). Bob is leaning against the back of this scooter.
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Chicago Tribune Wednesday May 29, 1992 Stateville: The State of Illinois Center was on lockdown again Tuesday after reports that “visually-impaired” demonstrators were on the way to terrorize the building. This time state troopers were on hand. "And orders were that no one would be allowed up to Jim Edgar’s office, where disabled protesters last week emptied a catheter into a gubernatorial wastebasket. The precautions weren’t needed. No protesters appeared.
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USA TODAY Wednesday, May 13, 1992 (The nation's newspaper. No.1 in the USA... 6.6 million readers a day) NATIONLINE from USA Today's National News Network Title: Disabled demand services, rights PHOTO by Eugene Garcia. Agence France-Presse: A uniformed female Chicago Police officer is standing, bracing herself slightly as she grabs the arm and armrest of a man (Bill from Georgia) in a scooter. Bill is leaning back away from her and yelling or chanting as the two of them lock eyes, both determined. Behind them is a cluster of other people, in wheelchairs and standing, in the middle of the street looking around. Caption reads - CHICAGO PROTEST: A demonstrator blocking an entrance to the American Medical Association headquarters yells as he is removed by police. Protesters seeking more services and rights for the disabled are demonstrating at various sites in Chicago this week.
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Chicago Sun Times, 3/13/92 TWO PHOTOS by Sun-Times photographer Al Podgorski: First photo is of a person (Eilene Spitfire Sable) in a helmet and white sweatshirt making a peace sign as she faces off with a uniformed Chicago police officer, over a police barricade. Spitfire faces away from the camera and teh officer's face is somewhat obscured by her hand and the visor on his hat. On Spitfire's back are the words "NEVER SURRENDER." Second picture is of two trim uniformed Chicago police officedrs holding on to the wheelchair and arm of a large man in a manual chair (Jerry Eubanks,) Jerry, who has no legs, is leaning to one side and has his head hanging over. His button down shirt has come mostly open and hs is grimmacing. Behind this trio, a crowd of ADAPT protesters (including Lujuina Votaw) are sitting together, guarded by more uniformed officers. Caption reads: Disabled rights activists keep police busy Tuesday at the American Medical Associatlon building. LEFT: Eileen Sabel of Phlladelphia takes a peaceful approach. RIGHT: A protester is removed after blocking a van that contained an arrested demonstrator. Disabled take home-care protest to AMA's doorstep By Larry Weintraub, Staff Writer ln a third day of protests in support of home care instead of nursing home admissions, disabled rights activists Tuesday disrupted traffic and activities at the American Medical Association headquarters at Grand and State. Four demonstrators were arrested and one was injured. Two police officers were hurt and streets around the AMA building were blocked—first by protesters in wheelchairs and later by police. The demonstrators arrived at about 11:30 a.m. and surrounded the building at 515 N. State, said police Area 6 Chief of Patrol John Walsh. About six hours later, police officers escorted a caravan of wheelchairs south on State toward the Bismarck Hotel, where the group, American Disabled for Attendant Programs Today (ADAPT), has been staying. In the interim, the activists pounded on windows, shouted slogans, blocked entrances and generally tried to shut down the building. When the AMA began sending workers home at 3:30 p.m., about 20 demonstrators dropped out of their wheelchairs and crawled to confrontational positions. One man, Michael Auberger, 38, of Denver, was charged with battering a police officer. Officials said he rammed his mechanized wheelchair into East Chicago District Patrol Officer Robert Weston, injuring Weston's leg. The injured protester, a 38-year-old man who asked that his name be withheld, was treated for bruises at Northwestern Memorial Hospital and released. The other disabled persons arrested, a man and two women, were charged with disorderly conduct. ADAPT members, about 300 from 40 cities in 25 states, are holding a national convention here. They have been protesting the amount of federal and state funds spent on housing disabled people in nursing homes, rather than on attendants whose assistance would permit them to live at home, according to one spokesman, Mark Johnson of Atlanta. Johnson said his group targeted the AMA Tuesday “because nobody can go into a nursing home without a physician's referral, so they can play a pivotal role in reforming the system." Johnson said the lack of money for in-home care forces disabled people who could get along on their own with minimal assistance “to go on public aid and to live where they don't want to live." In-home care is far cheaper than nursing home residence, he said, and 80 percent of disabled people who live in nursing homes would rather live at home. Joanne Schwartzberg, director of the AMA‘s department of geriatric health, said the association agrees that “home care is the first choice for long-term care" and the AMA has a long history of support for it. However, the organization can only suggest guidelines to its members, she said. “Most disabled persons obviously don't belong in nursing homes." said Schwartzberg, “and we offered at a meeting last Thursday to work with them toward mutual goals—increasing the amount of home care and possibly drawing model home-care legislation for states that have no such provisions." The group demonstrated Sunday at the University of Illinois at Chicago, where Health and Human Services Secretary Louis Sullivan was speaking, and Monday at 105 W. Adams. where the department has offices. ADAPT plans to move its protest to the State of Illinois Center today. Meanwhile Tuesday, two women who use wheelchairs filed a class-action federal lawsuit charging that "oppressive" security measures Monday at the State of Illinois Center denied them equal access to facilities there. An emergency hearing on the matter is scheduled for today before U.S. District Judge Milton I. Shadur. Contributing: Jim Casey, Rosalind Russi
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Chicago Tribune, Wednesday Chicagoland PHOTO by Tribune's Val Mazzenga: People in wheelchairs are lined up in the street along a curb, facing into a building with white square columns. People in business attire are on the sidewalk. Beth McDaniel, Sherri and Tim Craven are among those on the line. Behind them in a scooter and tiger strip cap is Walter Hart. Caption reads: Protesters from American Disabled for Attendant Programs Today gather Tuesday outside the American Medical Association headquarters, 535 N. Dearborn St. Several arrests were made. Title: Wheelchair users’ suit seeks access By Rob Karwath Two wheelchair users sued the state Tuesday, alleging that tight security measures at the State of Illinois Center have restricted disabled people’s access to the government office. The U.S. District Court suit, which seeks to be certified as a class action, was filed a day after the state rolled out an unprecedented show of force in anticipation of a raucous protest by a disabled-rights group demanding more govemment funds for home-care programs. The protesters, from American Disabled for Attendant Programs Today (ADAPT) blocked access Monday at 105 W. Adams St., which houses some federal agencies. On Tuesday, building managers ordered the evacuation of more than 1,000 workers at the American Medical Association headquarters, 535 N. Dearbom St., because of a daylong ADAPT demonstration. AMA spokesman Arnold Collins said workers in the building were told to go home, starting at 3:15 pm. The building was evacuated floor by floor, and some workers were escorted out of side doors to avoid the congregation of demonstrators in front of the building. “The building was evacuated so that there wouldn’t be a crunch,” Collins said. “And also because there are people out there who are trying to stop other people from leaving." ADAPT demonstrators had formed a circle around the building’s front door in an attempt to block it. ADAPT spokesman Tari Susan Hartman declined to say where the group would protest Wednesday. But state officials were girding for a demonstration at the 16-floor state building, 100 W. Randolph St. The lawsuit, filed by an ADAPT member and another wheelchair user who is not a group member, contends the tight security from the state Department of Central Management Services allows walking people access to the building but deprives wheelchair users of unrestricted movement. The suit seeks immediate easing of security measures. The suit’s two named plaintiffs contend they experienced difficulty getting around the building Monday, the first day that all workers and patrons had to ride an escalator to the second floor if they wanted to catch an elevator upstairs. One of the plaintiffs, ADAPT member Paulette Patterson, said she had to specially request an elevator ride to the building's basement concourse of restaurants when she wanted to meet her daughter there for breakfast Monday. Patterson also said that when she wanted to return to the first floor, she had to shout to a Central Management Services police officer on the first floor to come down and get her. "They have set up a situation where, if you are not in a wheelchair, you generally have to ask permission to go anywhere in the building," said lawyer Matthew Cohen, who filed the suit. A hearing on the suit is scheduled for Wednesday morning. State officials declined to comment on the suit, but they have said they are trying to be sensitive to the needs of all people using the building. State officials contend the extra security, which includes stationing police officers in all elevators and positioning of dozens of barricades outside, will be needed if ADAPT tries to block access to the building. But in two days of dealing with the extra security, many of the building’s 3,000 workers have accused the state of overreacting. Many also have expressed concern that all wheelchair-using workers and patrons will have to prove to police that they are not protesters before getting upstairs. On Monday, a wheelchair-using worker from the state Department of Rehabilitation Services reportedly had to show three pieces of identification before building police would let her upstairs. Also on Tuesday, Gov. Jim Edgar’s Department of Human Rights sent a memo to Edgar's office reminding the administration that it has a responsibility to keep the building open for all who want to use it.