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Home / Albums / Chicago, Spring 1992 51
- ADAPT (740)
Photo by Tom Olin?: A huge crowd of ADAPT folks are gathered on the stree and sidewalk in front of the Regional HHS headquarters, a building with ornate lamps on its front. The crowd faces the building and fills the street. Visible are Jimmi Shrode (in the purple shirt) Claude Holcomb (in the forground, hair in braids, with a black and red jacket over the back of his chair. Gene Rodgers (with his back to the building in a grey cap), Frank McGee (in a black Tshirt and ADAPT headband) Tari Susan Hartman (visible just over Jimmi's left shoulder) and dozens and dozens of other protesters. [If you can identify others please contact us so we can include their names.] - ADAPT (711)
Chicago Tribune, Wednesday Chicagoland PHOTO by Tribune's Val Mazzenga: People in wheelchairs are lined up in the street along a curb, facing into a building with white square columns. People in business attire are on the sidewalk. Beth McDaniel, Sherri and Tim Craven are among those on the line. Behind them in a scooter and tiger strip cap is Walter Hart. Caption reads: Protesters from American Disabled for Attendant Programs Today gather Tuesday outside the American Medical Association headquarters, 535 N. Dearborn St. Several arrests were made. Title: Wheelchair users’ suit seeks access By Rob Karwath Two wheelchair users sued the state Tuesday, alleging that tight security measures at the State of Illinois Center have restricted disabled people’s access to the government office. The U.S. District Court suit, which seeks to be certified as a class action, was filed a day after the state rolled out an unprecedented show of force in anticipation of a raucous protest by a disabled-rights group demanding more govemment funds for home-care programs. The protesters, from American Disabled for Attendant Programs Today (ADAPT) blocked access Monday at 105 W. Adams St., which houses some federal agencies. On Tuesday, building managers ordered the evacuation of more than 1,000 workers at the American Medical Association headquarters, 535 N. Dearbom St., because of a daylong ADAPT demonstration. AMA spokesman Arnold Collins said workers in the building were told to go home, starting at 3:15 pm. The building was evacuated floor by floor, and some workers were escorted out of side doors to avoid the congregation of demonstrators in front of the building. “The building was evacuated so that there wouldn’t be a crunch,” Collins said. “And also because there are people out there who are trying to stop other people from leaving." ADAPT demonstrators had formed a circle around the building’s front door in an attempt to block it. ADAPT spokesman Tari Susan Hartman declined to say where the group would protest Wednesday. But state officials were girding for a demonstration at the 16-floor state building, 100 W. Randolph St. The lawsuit, filed by an ADAPT member and another wheelchair user who is not a group member, contends the tight security from the state Department of Central Management Services allows walking people access to the building but deprives wheelchair users of unrestricted movement. The suit seeks immediate easing of security measures. The suit’s two named plaintiffs contend they experienced difficulty getting around the building Monday, the first day that all workers and patrons had to ride an escalator to the second floor if they wanted to catch an elevator upstairs. One of the plaintiffs, ADAPT member Paulette Patterson, said she had to specially request an elevator ride to the building's basement concourse of restaurants when she wanted to meet her daughter there for breakfast Monday. Patterson also said that when she wanted to return to the first floor, she had to shout to a Central Management Services police officer on the first floor to come down and get her. "They have set up a situation where, if you are not in a wheelchair, you generally have to ask permission to go anywhere in the building," said lawyer Matthew Cohen, who filed the suit. A hearing on the suit is scheduled for Wednesday morning. State officials declined to comment on the suit, but they have said they are trying to be sensitive to the needs of all people using the building. State officials contend the extra security, which includes stationing police officers in all elevators and positioning of dozens of barricades outside, will be needed if ADAPT tries to block access to the building. But in two days of dealing with the extra security, many of the building’s 3,000 workers have accused the state of overreacting. Many also have expressed concern that all wheelchair-using workers and patrons will have to prove to police that they are not protesters before getting upstairs. On Monday, a wheelchair-using worker from the state Department of Rehabilitation Services reportedly had to show three pieces of identification before building police would let her upstairs. Also on Tuesday, Gov. Jim Edgar’s Department of Human Rights sent a memo to Edgar's office reminding the administration that it has a responsibility to keep the building open for all who want to use it. - ADAPT (699)
A group of ADAPT protesters stand and chant in front of an almost life sized portrait of IL Governor Edgar with flags on eithere side of it. All are Chicago ADAPT members. From left to right they are a woman (Julie___) in a Chicago ADAPT "ADAPT or Perish" tshirt, a woman standing, a man in a wheelchair (Rene Luna) holding a poster that reads "nursing home industry owns Edgar." All three have power fists raised in the air. On Rene's right side is a man (Fred Stark) in an ADAPT tshirt with the no steps logo but Free Our People written across the bottom; it was our transition shirt when we were transitioning from American Disabled for Accessible Public Transit to American Disabled for Attendant Programs Today. - ADAPT (705)
Chicago Tribune Photo by Eduardo Contreras: An Asian-American man (Ken Heard) with pulled back hair and large glasses, a white jacket and pale jeans sits in his foot controlled power wheelchair. He blocking part of an escalator, and what he is not blocking, the police officer that is trying to stop him is blocking. The officer's arms are crossed across his chest and Ken has his hands in his pockets. Caption reads: Ken Heard blocks the entrance to an escalator Wednesday in the State of Illinois Center as part of an ADAPT protest. - ADAPT (719)
Sun Times, May 11, 1992 Photo by Brian Jackson: A line of police hold a long metal barricade in front of them. On the other side a row of wheelchair demonstrators with ADAPT are lined up toes to the barricade. A man in a wheelchair (Mark Johnson) is in the forground looking sideways to the camera, beside him to his left is a small woman in a chair (Cassie James). Three people down another protester (Brian from Houston) faces the camera and is wearing numerous buttons. Another police officer stands behind Mark, with his hands on his hips. Caption: Able to protest Police keep demonstrators in wheelchairs from advancing Sunday alter a protest of Health and Human Services Secretary Louis W. Sullivan's commencement address at the University of illinois at Chicago. The disabled activists were protesting "warehousing" people with disabilities in nursing homes and other institutions. Russell Goode, a Louisville, Ky., member of American Disabled tor Attendant Programs Today, said, “What we really want is Sullivan to reallocate 25 percent oi the money they give lor nursing homes to us and Medicaid or attendant programs.“ The money would enable disabled people to hire attendants, he said. - ADAPT (710)
Chicago Sun Times, 3/13/92 TWO PHOTOS by Sun-Times photographer Al Podgorski: First photo is of a person (Eilene Spitfire Sable) in a helmet and white sweatshirt making a peace sign as she faces off with a uniformed Chicago police officer, over a police barricade. Spitfire faces away from the camera and teh officer's face is somewhat obscured by her hand and the visor on his hat. On Spitfire's back are the words "NEVER SURRENDER." Second picture is of two trim uniformed Chicago police officedrs holding on to the wheelchair and arm of a large man in a manual chair (Jerry Eubanks,) Jerry, who has no legs, is leaning to one side and has his head hanging over. His button down shirt has come mostly open and hs is grimmacing. Behind this trio, a crowd of ADAPT protesters (including Lujuina Votaw) are sitting together, guarded by more uniformed officers. Caption reads: Disabled rights activists keep police busy Tuesday at the American Medical Associatlon building. LEFT: Eileen Sabel of Phlladelphia takes a peaceful approach. RIGHT: A protester is removed after blocking a van that contained an arrested demonstrator. Disabled take home-care protest to AMA's doorstep By Larry Weintraub, Staff Writer ln a third day of protests in support of home care instead of nursing home admissions, disabled rights activists Tuesday disrupted traffic and activities at the American Medical Association headquarters at Grand and State. Four demonstrators were arrested and one was injured. Two police officers were hurt and streets around the AMA building were blocked—first by protesters in wheelchairs and later by police. The demonstrators arrived at about 11:30 a.m. and surrounded the building at 515 N. State, said police Area 6 Chief of Patrol John Walsh. About six hours later, police officers escorted a caravan of wheelchairs south on State toward the Bismarck Hotel, where the group, American Disabled for Attendant Programs Today (ADAPT), has been staying. In the interim, the activists pounded on windows, shouted slogans, blocked entrances and generally tried to shut down the building. When the AMA began sending workers home at 3:30 p.m., about 20 demonstrators dropped out of their wheelchairs and crawled to confrontational positions. One man, Michael Auberger, 38, of Denver, was charged with battering a police officer. Officials said he rammed his mechanized wheelchair into East Chicago District Patrol Officer Robert Weston, injuring Weston's leg. The injured protester, a 38-year-old man who asked that his name be withheld, was treated for bruises at Northwestern Memorial Hospital and released. The other disabled persons arrested, a man and two women, were charged with disorderly conduct. ADAPT members, about 300 from 40 cities in 25 states, are holding a national convention here. They have been protesting the amount of federal and state funds spent on housing disabled people in nursing homes, rather than on attendants whose assistance would permit them to live at home, according to one spokesman, Mark Johnson of Atlanta. Johnson said his group targeted the AMA Tuesday “because nobody can go into a nursing home without a physician's referral, so they can play a pivotal role in reforming the system." Johnson said the lack of money for in-home care forces disabled people who could get along on their own with minimal assistance “to go on public aid and to live where they don't want to live." In-home care is far cheaper than nursing home residence, he said, and 80 percent of disabled people who live in nursing homes would rather live at home. Joanne Schwartzberg, director of the AMA‘s department of geriatric health, said the association agrees that “home care is the first choice for long-term care" and the AMA has a long history of support for it. However, the organization can only suggest guidelines to its members, she said. “Most disabled persons obviously don't belong in nursing homes." said Schwartzberg, “and we offered at a meeting last Thursday to work with them toward mutual goals—increasing the amount of home care and possibly drawing model home-care legislation for states that have no such provisions." The group demonstrated Sunday at the University of Illinois at Chicago, where Health and Human Services Secretary Louis Sullivan was speaking, and Monday at 105 W. Adams. where the department has offices. ADAPT plans to move its protest to the State of Illinois Center today. Meanwhile Tuesday, two women who use wheelchairs filed a class-action federal lawsuit charging that "oppressive" security measures Monday at the State of Illinois Center denied them equal access to facilities there. An emergency hearing on the matter is scheduled for today before U.S. District Judge Milton I. Shadur. Contributing: Jim Casey, Rosalind Russi - ADAPT (714)
Chicago Defender, Vol. LXXXVII [87] No. 7 Wednesday May 13, 1992 (40¢ outside Chicago and suburbs) Editorial Listen to disabled on in-home funds A group of "disabled rights activists, who on Tuesday continued their protest against the federal government's failure to allocate more funds for handicapped individuals, should be taken seriously. They are protesting for the right to remain at home, rather than being warehoused in nursing homes. “Six times the (amount of) money goes to nursing homes and other institutions,” compared to the sums going “to community-based services. We want 25 percent of that nursing home budget to go to home care,” said Diane Coleman, an organizer for the group. There are various reasons why authorities should lend an ear to the protesters’ demands. Some of them are: * Disabled people would rather live at home than in an institutionalized environment, just like anyone else would. Many physically challenged individuals are wheelchair-bound but would have no trouble at home turning on a computer and working on it; going to the refrigerator to get their own food; operating their own TV, radio, or CD player; reading books, teaching younger members of the family, making their own bed and doing countless other constructive things to make them feel useful and relatively independent. * Additional money for home-based and community-based assistance would permit thousands of disabled individuals to receive help from part-time home attendants or nurses. The tab to the taxpayers might, in many instances, be smaller than the current cost for such services. * Many disabled protesters argue that being housed in a nursing home may actually prohibit some physically challenged people from developing into more productive citizens. These pundits stress that some of the disabled individuals being cared for in nursing homes could, if given home-based fund support, live a life with more quality to it and a few of them could even participate in home-based employment or other legal business. The bottom line is that disabled individuals deserve to be treated with as much respect as any other group in society. Other protesters have been given serious consideration by the federal government on various causes. The current cause espoused by many of America’s physically challenged individuals deserves equal attention from government authorities. - ADAPT (701)
Title: Protesters hit Illinois center in wheelchairs By Neil Steinberg, Staff Writer Disabled protesters from around the country used their wheelchairs to block access to the State of Illinois Center on Wednesday, the fourth day in their call for state funds to be directed toward home care instead of nursing homes. “The people united will never be defeated," chanted about 200 protesters, blocking elevators, escalators and stairways at the building. “No more cuts.” There was no violence and no arrests, though protesters did scuffle briefly with police outside the governor's office, where they demanded a meeting with Gov. Edgar, who is in Springfield. Government business slowed to a near halt as state workers crowded the rings of balconies at the center, watching the chanting wheelchair activists on the main floor. Although employees could move among the upper floors by using the unblocked exterior staircases, it was often difficult to reach the ground floor. Two employees from the lieutenant governor's office found themselves trapped in a fire stairway when their attempt to take a garage elevator out of the building failed. “They captured the car elevator,” a maintenance man told the two young workers. Swearing, they tried another route. “This is starting to inconvenience me," one said. Tourists and school `groups` visiting the building got a surprise introduction to special-interest advocacy. An architecture club from Reading, Pa., here to appreciate the 16-story curving edifice designed by Helmut Jahn, stopped to reprimand protesters for keeping them off the elevators. State workers, some of whom literally climbed over the wheelchairs of protesters, also put in a word or two. “You are a lawless mob,“ a worker for the Department of Rehabilitative Services told a group of protesters blocking the elevator. “They have a right to protest," the worker said. “They don’t have a right to interfere with our lives." PHOTO by SUN-TIMES /Al Podgorski: A man walks up escalator steps with another man in his arms, as two other men stand on the side of the steps. Below on the floor level, a mass of people in wheelchairs, and a few standing, crowd the entire rest of the scene. Some are wearing ADAPT t-shirts. A security guard stands at the bottom of the escalator to one side. Caption: Joe Potter of Denver carries a men who usually uses a wheelchair up a stopped escalator at the State of Illinois Center on Wednesday. The protest by disabled activists was the fourth in four days. - ADAPT (706)
Chicago Tribune Tuesday, May 12, 1992 Title: State thwarts protest, so disabled switch site By Rob Karwath A threatened demonstration by wheelchair-bound protesters prompted an unprecedented show of force Monday at the 16-floor glass-and-steel State of Illinois Center. The demonstrators instead targeted federal offices several blocks south, leaving 3,000 state workers walking along barricaded corridors and past security checkpoints in the building at 100 W. Randolph St. Workers had to tell uniformed police where they were going. Security guards manned the elevators. A trip from an upper floor to a main-floor coffee shop became a half-hour journey. The preparations were made for a group that has become increasingly militant, with members at times chaining themselves to objects and forming chains of wheelchairs. After experiencing a day of the clampdown, most employees interviewed said they thought the state Department of Central Management Services, which runs the building, has overreacted. “It's ridiculous," said Peggy Craddieth, a secretary at the Illinois Pollution Control Board. “Even during Operation Desert Storm they weren’t this tight.” State officials said the tight security will continue all week, or at least until the protesters from Americans Disabled for Attendant Programs Today (ADAPT) leave town. The heavy security seemed out of place to those familiar with the idea behind the wide—open state building. Architect Helmut Jahn created the building to symbolize the openness of a properly run democracy. Jahn’s concept was former Gov. James Thompson's frequent retort to anyone who criticized the building as a poor use of space. “There’s a general discomfort all across the office about this,” said Rob Cushing, a lawyer in the lllinois attorney general‘s office. He said of the demonstrators, “We shouldn't have to go through all of this to deny them their right to protest.” Central Management Services officials said they never intended to create a problem with the extra security, which included calling all department police in on their days off and hiring l6 private security guards at a cost of about $2,000 a day. Instead, department spokeswoman Helen Adorjan said the state was simply trying to keep the building open after receiving a call from ADAPT warning that the group might try to block doors and elevators at the building this week. The group is protesting what it believes to be a lack of government funds for programs that allow disabled people to live at home and avoid nursing homes. ADAPT did block doorways and elevators Monday in at least one Loop building where federal offices are housed. Diane Coleman, an organizer in ADAPT, said Monday that the group went to 105 W. Adams, the Bankers Building, because it houses one of the regional offices of the Department of Health and Human Services. “There have been movements by `groups` like this before, but they were neglecting civil rights tactics—taking it to the streets,” she said. “And we'll do it until we win this issue. Six times the money goes to nursing homes and other institutions than to home and community-based services. We want 25 percent of that nursing home budget to go to home care." Many State of Illinois building workers said they were concerned that everyone entering the building was barred from the Easement and first-floor elevators, which were roped of and guarded by Central Management Services police officers. Yellow and black paper signs directed workers and patrons to an escalator that took them to the second floor where they were allowed to board the elevators. The escalator guaranteed that any wheechair-bound protesters wouldn‘t make it beyond the ground level. But some state workers said they were concerned that wheelchair-bound employees and disabled people with state business had to specially request that an elevator descend to the first floor and then convince building police that they were not protesters. “ls it fair for someone who shows up in a wheelchair to have to declare their business?" asked Alex Des Chenes, a contractor with the state Department of Public Health. “Have you seen the tapes of what the have done in other cities?” Anforjan said. “This group completely immobilizes activity. They need to be able to express themselves, but we need to keep the building operating." But, in an effort to prevent a disruption, workers said all of the extra security only ended up causing a disruption. The building's Lake Street entrance was open, but a large steel gate inside the revolving glass doors sealed it off to all but riders of the CTA subway trains below. A newsstand and a Chinese restaurant located inside the entrance were empty as most of their customers were forced to bypass them. Even some of the Central Management Services police running the elevators said they disagreed with the security plan and would have tried less-disruptive measures. “Everybody’s complaining about this," said one officer, shaking his head as he punched elevator buttons. “It‘s crazy." Tribune photo by David Klobucar: A mass of people are clustered in one big not. ADAPT protesters in wheelchairs are on the street and people in suits and similar work outfits are making their way down the log jammed sidewalk, up to the police barricades. A woman in a dress is stepping over and through two of the protesters so she can continue in the street. Between the street and the sidewalk a metal police barricade is partially visible, and two uniformed officers appear to be casually trying to hold the barricades up. Caption reads: Protesters from Americans Disabled for Attendant Programs Today block an entrance to the U.S. Health and Human Services Department on West Adams Street Monday. - ADAPT (720)
Chicago Defender, Monday, May I I, 1992 Title: Sullivan speaks, get heckled at UIC by Dobie Holland Screaming slogans such as “You're killing us," a group of physically-disabled persons disrupted the commencement speech of Health and Human Services (HHS) Secretary Dr. Louis W. Sullivan Sunday at the University of Illinois-Chicago. Security personnel removed the partially wheelchair-bound group from the UIC Pavilion and escorted them outside, where they joined 500 other protesters from 25 states who picketed outside during the ceremonies. John Gladstone, a Americans Disabled for Attendant Programs Today (ADAPT) member from Philadelphia, explained the group's militant tactics: “These are radical times. You can only write so many letters. l wrote so many letters to Mr. Sullivan that I had writer's cramp." ADAPT, a national Civil Rights agency, is concerned with Bush Administration policies that have resulted in widespread budget cuts in state Medicaid funding. The reductions, ADAPT members say, will force disabled people to live in nursing homes. The group is calling for 25 percent of Medicaid funds to be ear-marked for community-based nursing centers, which will enable many disabled citizens to live independently from nursing homes. “They're warehousing us (in nursing homes)," Gladstone said. “I've lived in nursing homes for 14 years and I have seen some of the brutality that goes on there." Gladstone said nursing homes are guilty of inhumane treatment and neglect of patients who are unable to defend themselves. The environment in nursing homes, Gladstone added, is not conducive to leading a normal adult lifestyle. "When you live in these nursing home facilities, they take your life away. When I first went into a nursing home, I was in a walker but they wouldn't let me walk and they put me in a wheelchair — now I can't walk," he said. Sullivan, who was under tight security, was not available for comment after the ceremonies. The HHS secretary delivered his address despite the nterruptions and emphasized a need for sensitivity and caring toward all humans. - ADAPT (707)
Access USA News June 1992 page 21 [This article appears to be in 3 parts, we do not have the first part. The article continues in ADAPT 702 but that text is included here for easier reading.] PHOTO in the center of the article: A mass of people in wheelchairs are lined up against the windows at the front of a building. The rows of people are 2 deep in many spots. Then there is a pathway along the sidewalk and another group of people is packed on the other side. One of the protesters in a manual wheelchair is facing away from the camera and on his back is a large poster that says "HELL NO! I Won't Go Back." Someone in a scooter (Rhona Schnall?) is rolling down the end of the pathway. Caption reads: ADAPT protestors converge on Chicago. ADAPT from page 3... "They're paying these people to work and, instead, they're standing out here and watching us. Yet I can't get my PCA money. What's going on?" asked 31-year-old Michael Graver, of Orland Park, Ill., during ADAPT's demonstration at the State of Illinois building on Wednesday. ADAPT shut down access to the upper floors of the building when the facility manager shut off the elevators and escalators so that protestors in wheelchairs could not reach the 16th floor, the office of Gov. Edgar. Many people employed by offices on upper floors chose to stand on the balconies overhead and gawk at the activities below. Graver has been attending Southem Illinois University at Carbondale - until now. He has cerebral palsy and uses a wheelchair. The college junior currently is unable to attend school at SIU because of the state cuts in PCA funding. No new clients have been accepted for in-home services since February 1. ”I can afford the apartment," he said, ”but not in-home services.” ”Tell them to give you the escalators and give us the elevators,” one ADAPT member told able-bodied individuals who complained about the group cutting off access to the upper floors. ADAPT blocked off the escalators with wheelchairs and bodies when members were told the elevators would not be made available to them. A small-framed, middle-aged woman attempted forcing her way through the unit blocking an escalator, emphatically stating, "I’m from Wisconsin, I can't do anything for you." She was detained. A man, approximately age 50, succeeded in forcing his way through the demonstrators, only after stepping over their wheelchairs, over people and finding himself crawling on the ground before getting to the other to the side. Another man of about the same age walked down the escalator and when he began trying to make his way through, said, "I have nothing against you people." A man in his 20's tried finding a route up an escalator, but met face to face with a female ADAPT protestor. ”Back off and try to understand what we're doing," she told the young man. ”This is beautiful," said the Rev. Hatcher, who uses a wheelchair and was at the State of Illinois building on behalf of the Coalition for United Community Labor Force, not with the ADAPT group. ”I really support this. I showed up to meet with the Governor's office to protest some things. This Governor is insensitive to the black community and handicapped community." Most able—bodied individuals continued trying to find elevators, escalators or stairs leading them to upper floors. Many stood on the ground-level floor in amazement, then complained that this was unfair to them. A few were curious enough to ask questions, read the fliers and express support. "James Edgar, shame on you. ”People are dying, shame on you. "Hey, hey, ho, ho, budget cuts have got to go." ADAPT’s verses were in unison, clear and loud as the crowded state building remained in chaos all day. "When l used to travel around the country, I would brag about Illinois and our in-home services,” said Judy Savage, Chicago ADAPT member and employee of Access Living of Metropolitan Chicago. "They've already limited the number of people who can get these funds and Democratic legislators are recommending more cuts.” Insert Text box: "In the nursing home, they don't let you do things yourself. I have to ask for permission to go out." -Louis Summers Article continues: As the fourth and final day of ADAPT’s demonstrations dragged on at the State of Illinois Building, able-bodied individuals became more irritated. ”Edgar's going to have to stop all this," one man said. “l have a grandmother in a nursing home and I know what they're like," a woman said, "but blocking off the elevators and escalators won't change that.” "This is wrong. This is even a fire hazard. You can't deny other people the right to go out and support their families. They’ re denying us our constitutional rights,” another man said, angry that he could not get to an upper floor. "This is wrong.” Thirty-nine year-old ADAPT member Mary Kay Strasser, who also belongs to Disabled Americans Rally for Equality (D.A.R.E.), sat at the opening of one of the elevators all day Wednesday, her personal attendant standing nearby. "This is a disgrace," she said. "We're human beings just like they are. People walk by and don't ask us what we're fighting for. You can tell their attitudes by the looks on their faces. The people in the nursing homes don't realize they treat us like we're nothing. I was in a nursing home for 3-1/2 years and it was the worst experience of my life." ADAPT passed out nearly 10,000 fliers during the Chicago rally. Fifteen people were arrested, mostly for trespassing, including 10 late Monday afternoon outside the Health and Human Services offices. The bulk of police-protestor interaction took place outside the AMA building Tuesday as demonstrators attempted to stop paddy wagons from leaving the area. One man being moved by police was dropped out of his wheelchair and his head struck the sidewalk; his injury appeared the next day to be a minor abrasion on the side of his head. At that time, a Chicago police officer wearing badge number 215 asked able-bodied ADAPT member Robin McGee why they were not protecting the people in chairs better, why they were allowing them to do this and get hurt. Louis Summers, age 31, was hit by a train while working and has lived in a nursing home the past three years. Father of three kids, Summers gets $422 a month in social security payments. He took his place among ADAPT members blocking an escalator on Wednesday. "I want a part-time job so I can pay child support and buy the things I need," said Summers, who uses a wheelchair and is deaf, but speaks clearly. "($422) is not enough for food and rent and payment on a loan." "I don‘t know why the government pays nursing homes more than they pay personal attendants. l can afford an apartment, but I can't afford the personal attendant. In the nursing home, they don't let you do things yourself. I have to ask for permission to go out." - ADAPT (716)
Chicago Tribune Tribune photo by Carl Wagne: A march of ADAPT through the streets of Chicago. In front, left to right: a man in a red Chicago ADAPT "ADAPT or Perish T-shirt with a picture of man evolving from monkey to ape to man to wheelchair user, a man with no legs (Jerry Eubanks) in a manual chair chanting and holding a poster that reads "Free Our People" and being pushed by a man (Mark Pasquesi), a woman (Paulette Patterson) holds a bullhorn in front of her face, a man in a fishing hat (Bob Kafka) and yellow ADAPT shirt with a sign that reads "Attendant Services NOW!!". Behind the first man is a nab with a head pointer being pushed by a man (Tim Wheat) in a purple ADAPT shirt. Behind Paulette is a man in a suit in a wheelchair and beside him another man (possibly Michael Champion) and behind them a woman (Cassie James) in a power chair, and beside her a woman in a red shirt. As the line goes back it becomes less clear to distinguish people. Title: Disabled protest funds allocation Members of a disabled rights group begin a march from the Bismark Hotel to the regional offices of the Department of Health and Human Services at 105 W. Adams St. Monday to attempt to talk with representatives. The demonstrators, from the group American Disabled for Accessible Public Transit [sic](ADAPT), were protesting to have more money allocated for home care, rather than nursing home care. ADAPT wants the govemment to institute a policy to fund community-based attendant service allowing disabled people to stay home. - ADAPT (718)
Chicago Defender, Tuesday May 12, 1992 Sengstacke Newspaper vol. LXXXVII- No.6 35 cents, 40 cents outside Chicago and suburbs Title: Disabled group blockades street by Dobie Holland Likening the plight of the disabled to that of the Civil Rights movement, Americans Disabled for Attendant Programs Today (ADAPT) staged a blockade of downtown streets Monday in an effort to gain an audience with Health and Human Services Director Dr. Louis W. Sullivan. Sullivan, however, refused to meet with the group and 10 ADAPT members were arrested on criminal trespassing charges according to HHS and police officials. “Our ghettos are the nursing homes and facilities for the mentally retarded. Society doesn't want to recognize us. They want to put us in these ghettos," said ADAPT coordinator Bob Kafka of Austin, Texas. Hundreds of ADAPT members rolled their wheelchairs and formed a human chain in the middle of Clark and Adams streets and swamed HHS’ regional offices to demand a meeting with Sullivan. The group wants 25 percent of Medicaid funds channeled to community-based nursing centers, which would permit many disabled citizens to live at home, ADAPT representatives said. "The American Disabilities Act is very similar to the Civil Rights Act of 1964," Kafka said. “Very few people want to talk about the discrimination against the disabled. "They don't want to consider us as people and they just want to put us all in nursing homes,” Kafka continued. “Most people think a nursing home is a nice place for little old ladies...well, it's not.” Kafka, who is wheelchair-bound, said he has never been in an institution but recent political policies of the Bush Administration are making it possible. Title: ADAPT blocks street The American Health Care Association, a formidable nursing lobby, and the American Medical Association are also responsible, Kafka noted. Kafka said nursing homes have become big businesses and doctors have become owners of nursing homes, which motivated both `groups` to, support the institutionalization of the disabled. The group has been attempting to meet with Sullivan for more than two years, Kafka said. with all of their requests being rejected. A spokesperson for HHS told the group that Sullivan was contacted but said his schedule would not permit him to meet with them. On Sunday, a small band of disabled activists disrupted Sullivan's commencement address at the Univelsity of Illinois at Chicago, although the secretary did not acknowledge the ADAPT members. Guests to the gaduation day ceremonis filed past police barricades, while the activists, many in wheelchairs, circled outside the doors of the UIC Pavillion, chanting “We want Sullivan.” The demonstrators made same demands. urging the Bush Administration to redirect 25 percent of Medicaid funds currently budgeted for nursing homes and other institutions to set up community-based programs to allow the disabled to live on their own. An estimated 1.6 million disabled people now live in nursing homes. which Kafka said is a more expensive and less humane option than helping the disabled live independently. - ADAPT (727)
Reades Chicago May 29, 1992 Neighborhood News Insert Text Box: Prisoners of bureaucracy: state keeps the disabled in nursing homes at twice the price of home care. The reason? Budget cuts! Photo by LLoyd De Grane: A man, seen through the spokes of a manual wheelchair wheel, sits in a sporty manual wheelchair wearing no shoes. Looking at the floor thinking, he rests his chin on his fist. He is in a cinder block room with a crucifiction on one wall behind him, and a Virgin Mary statue in the corner on his other side. Caption reads: Louis Summers article: By Ben Joravsky It took Louis Summers, who is deaf and physically disabled, more than three years to prepare himself to live independently. But it took only a single directive issued by the state one day last February to keep him dependent in a nursing home. The nursing home is in south-suburban Harvey, where nurses and aides are available round the clock. Summers had been set to move to a less costly Chicago facility that emphasizes independent living for the disabled when the stare cut the funding for its home-services program and froze the number of people eligible to have personal assistants. That meant there would be no money to pay for the assistant he would have needed to help dress and bathe him, the cost of which he couldn’t pay himself. So he's still in the nursing home. “I feel trapped,” he says. "I want to get out and become more independent. I want to get job training. I want to get a job. But the state is keeping me in a nursing home where I am fully dependent on the staff." State officials blame the home-services cuts on the rising deficit. Yet it will cost the state far more to keep Summers in a nursing home than it would to provide him with independent health care. “For health and financial reasons it's bad to foster dependence,” says Karen Gerbig, a public educator for Access Living, a Chicago based not-for-profit advocacy group for the disabled. “In the name of saving money the state is actually spending more money. lt doesn‘t make sense any way you look at it." The irony is not lost on state officials, who acknowledge that roughly 4,000 disabled residents have lost the right to a personal assistant since the freeze went into effect in February. By midsummer that number could rise to 5,000. “It costs about $1,200 a month for the state to pay for someone to be institutionalized; the average home oust is about $600 a month," says Melisa Skilbeck, a spokeswoman for the state Department of Rehabilitation Services, which oversees the home-services program. “We are proud of our home-services program. We hope there’s a way to fund it so we can reopen intake." Summers, however, doesn’t want to wait. He was bom and raised in southern lllinois, and he's been in and out of hospitals and nursing homes since 1989, when he was hit by a train. "I was walking along the tracks, and l didn't see the train coming," says Summers, who was born deaf. “l‘ve been in a wheelchair ever since the accident.” He stayed briefly in a hospital, after which doctors transferred him to the Rehabilitation Institute of Chicago. "Louis has a dual disability, so he‘s more vulnerable to being shuffled around the system," says Tom Benziger, an organizer with Access Living who first met Summers about two years ago. “l lost track of him for a while. He was in and out of hospitals. Then I discovered that he was in a nursing home in Harvey." Benziger and therapists at RIC encouraged Summers to think about living independently. Along with other organizations for the disabled, Access Living members have fought to force public-transportation agencies to fit buses with electronic lifts so that people in wheelchairs would not be dependent on special shuttle services. They have also pressed for laws that require access ramps in restaurants, theaters, and other public places. "Disabled people are often marginalized," says Gerbig. "But disabled people are capable of living independent lives if public facilities are made more accessible." One major issue for the disabled is changing federal and state rules so that more money is provided for personal assistants. "l don't need around-the-clock care," says Summers. “I don't need to be in a hospital room all night. I can get training. I can still use my hands. l can work. l‘m not happy in the nursing home. lt's lonely there. Most of the people are older. It’s not the right place for me. I'd be much better off somewhere else where I could be more independent." With help from Benziger, Summers was able to secure a spot in the Silent Co-op apartments on the city's northwest side. Then the state announced the freeze on personal assistants. “I needed a personal assistant to work at least a few hours a day to get into the co-op," says Summers. "But the state said that since I was already in a nursing home I couldn't get a personal assistant. That means I could never get out of the nursing home: It was a catch-22.” Most agencies that provide personal assistants charge about $14 an hour —as Stephanie Renner discovered when her son Patrick was disabled last year after he was shot. “Right now my mother, myself, and Patrick's girlfriend are taking care of him, but it's very hard," she says. “We don't have the money to pay $14 an hour. If I got some assistance, I could pay someone $5 an hour. But the state won't help us at all. All Patrick needs is someone for a couple hours in the morning. Someone to help him get out of bed, get dressed, take a shower, and help him with his bowel program." In addition to its freeze the state also now requires all those who want it to continue paying for a personal assistant to demonstrate every year that they're severely disabled. “I have cerebral palsy, and yet I have to be tested each year to see if I qualify for a personal assistant," says Gwendalyn Jackson, a south-side resident who uses a wheelchair. “I have to prove yearly that I am disabled. That's ludicrous." Many activists believe the freeze and the changed eligibility requirements are first steps toward eliminating all funding for personal assistants. “They want to make people more dependent on nursing homes or their families," says Gerbig. “That's only going to cause more strain on the families.“ State oflicials say they want to keep some funding for personal assistants. They say the changes have less to do with health policy than with the fact that the state owes about $748 million in overdue bills—the reason Governor Edgar called for across-the-board cuts or freezes in government services. “The home-services budget was $69 million for this year," says Skilbeck. "Next year it will be about $65 million—that‘s a 6 percent cut. The governor‘s directive was to do everything we could to preserve people who were receiving care. That means we have to close intake, while maintaining the program for those who already have personal assistants." State officials say that the federal government must share some of the blame for the cutbacks. "The federal dollars that support these programs are provided as reimbursements,“ says Skilbeck. “We can't be reimbursed on a dollar until we spend a dollar. Well, if we don't have the money up front, it's hard to pay for the services. And with the state owing so much money, we don't have a lot of money up front." It would be irresponsible for the state to continue full home-care programs if it doesn't have the money to pay personal assistants on time, Skilbeck says. "You're dealing with an individual who may not get by without a paycheck. A nursing home or an institution has more cash in reserve.“ Advocates for the disabled don’t buy this argument. They contend that state and federal policies are shaped by the powerful nursing-home lobby. “It's easier for the bureaucracies to stay the same than to change," says Gerbig. "We need a whole new way of looking at these things." So far activists have had little impact on the powerful Republicans in Washington and Springfield who shape health-care policy. For months they have asked Louis Sullivan, secretary of the federal Department of Health and Human Services, to set aside a larger portion of medicaid funds for home care. But Sullivan has spurned their requests. He argues that such decisions should be made by individual states. ln early May ADAPT took the issue to the streets, protesting a speech Sullivan made before the University of Illinois here. Sullivan ignored the protest and refused to meet with the group, which seems to be a policy with him. ADAPT members staged another protest at the State of Illinois building, but Governor Edgar also refused to meet with them. “ln the past the governor has promised to meet with us, but he never does," says Gerbig. “So last week we took over the 16th floor of the State of lllinois building. We had about 30 people up there until they shut the power off for the elevator. lt was incredible to see the non-disabled people saying ‘Turn on these elevators-—l have to get somewhere. Why are you punishing us?’ We said, ‘Now you know how we feel.‘ They said, ‘lt’s not my fault.’ We said, ‘Please understand. This is what we go through all the time."' Summers did not intend to take part in those demonstrations. But he was downtown on other business and got swept up in the protests. "The transportation system that brought Louis downtown failed to pick him up,” says Gerbig. “He was in a bind. And he wound up staying overnight at a hotel and meeting a lot of the protesters. He's been politicized by this. His life will never be the same." At the very least Summers hopes the actions will change the home—services policy so he'll be able to leave the nursing home. “I want to move ahead with my life. I don't want to be stuck in Harvey." - ADAPT (732)
Photo Tom Olin?: A view from on high of the line of the ADAPT march down a Chicago street. The line is mostly single file with a T at the front. On the sides a few walking people with ADAPT are helping and police are walking along the street side of the march. On the sidewalk a TV cameraman is filming. From the front of the march left to right you can see Jerry Eubanks being pushed by Bill Henning, Bob Kafka, and Paulette Patterson. Behind them is another row of three activist including Paulette Sanchez and one woman pushing a wheelchair with a small coffin in it. Behind them is another row of three Dorothy Ruffin, a small person behind the coffin and Debbie ______, behind them is someone in a white shirt and Sparky Metz, then George Roberts in a cap and behind him Janette Roberts is holding his chair, next to her San Antonio Fuentes, behind him is possibly Walter Hart and Bobby Thompson is a bit out of the line, then three people, then someone being pushed possibly by Bill Scarborough, then Danny Saenz, then Jennifer McPhail in a purple shirt behing pushed by Richard Zapata, someone is rolling beside them and Babs Johnson is walking beside them too. Behnd that group it gets more difficult to make out faces, but the line goes on out of the top of the picture.