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Úvodná stránka / Albumy / Washington DC, Spring 1997 Two week action 47
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[This page continues the article from Image 1049. Full text is available under 1049 for easier reading.]
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ANA AMERICAN NURSES ASSOCIATION 600 MARYLAND AVENUE, SW SUITE 100 WEST WASHINGTON, DC 20024-2571 202 651-7000 • FAX 202 651-7001 HTTP://WWW.NURSLNGWORLD.ORG BEVERLY L. MALONE. PHD. RN, FAAN PRESIDENT GERI MARULLO, MSNI RN EXECUTIVE DIRECTOR June 18, 1997 To Members of ADAPT: The American Nurses Association (ANA) has long believed that clients are the primary decision makers in matters concerning their own health, treatment, and well-being. The goal of nursing actions is to support and enhance the client's responsibility and self-determination to the greatest extent possible. The American Nurses Association is cognizant of the difficulties under our current health care system of assuring that all Americans have full access to appropriate health care in all appropriate settings including their homes if they so choose. Until we have a health care system that truly recognizes the health care needs of our citizens, it will be necessary to continue to identify solutions that address the rights and concerns of all consumers, including people with disabilities, while ensuring quality health care. ANA has been supportive and will continue to be supportive of the principles contained in ADAPT's CASA including: ► control of the consumer, within the parameters state laws and regulations, to select, managed and control their attendant services; ► community-based, not institutional ► eligibility based on function need regardless of age and/or disability ► services available in-home, and other locations; ► services available 24-hour days a day, 7 days a week; ► back up and emergency services must be available; ► program should allow for co-payment/cost sharing for people with higher incomes; ► delivery of services must include options for vouchers, direct cash payment, individual provider model, as well as a consumer directed agenda model; ► health related tasks can be assigned, delegated or done by unlicensed personal attendants in accordance with state licensure and scope of practice laws and regulations; ► voluntary training should be available for consumers; ► personal attendants should receive a livable wage and benefits, and ► attendant services should be based on an agreed upon a individual service plan. ANA will provide avenues for communicating these concerns through our National organization and State affiliates so that we can continue a productive dialogue and work together toward resolution of these issues. We continue to believe a full resolution will be possible when the nation develops a consensus on health care. Specifically, I will request to the ANA Board of Directors that they consider: *a presentation for ADAPT members at the next ANA National Convention; and *the creation of a task force with ADAPT as a member to work on de-medicalizing home and community based services. In addition, we welcome your written comments on the UAP proposal which will be brought before ANA's House of Delegates at the end of this month. If you provide us with those comments no later than Friday, June 27, 1997 we will disseminate those comments to our policy making body. Furthermore, we will request that representatives of ADAPT be invited to present their views to ANA's policy making body on Saturday, June 28, 1997. Finally, we will send you our State Nurses Association a list of contracts for local ADAPT groups in order to encourage dialogue on ways to create consumer driven attendant. We would welcome the opportunity to review and comment on any Federal legislation that is of importance to your organization. Sincerely, [Signed] Christine M. de Vries [Typed] Christine M. de Vries Deputy Executive Director for Geri Marullo, MSN, RN Executive Director I:\ADAPT.LTR
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PHOTO Frank Lozano stands speaking through a megaphone in front of the National Home Care Association (NHCA) building. Beside him is Val J. Halamandaris, President of the NHCA. A few protesters at the front of the crowd are visible. The building is fancy red and black brick in intricate designs. Frank is announcing our victory at this protest.
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PHOTO Photo of a mass of people gathered by a federal building that is up on columns so people can pass under the building. (Perhaps the DOT building.) It's a solid mass of people in wheelchairs and people standing. Mike Oxford stands near the center with a megaphone, the speaker cord goes to someone in a wheelchair who is blocked by others in the crowd.
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PHOTO Photo of the north side of the US Capitol. In the plaza in front groups of ADAPT people are gathered talking and visiting.
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PHOTO: A crowd of ADAPT protesters some inside two ropes that make an aisle, others on the near side of the ropes, and still others on the far side. They are in front of a large government-type building with glass doors across the front. One person is holding up a pink sign that reads Endorse HR 2020. A woman in a white dress is holding onto the back of a chair, and on the back of her dress it reads "Jesus loves you he really does" in red under a red cross. There are at least 6 sets of doors which are all closed.
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Michael Oxford ADAPT P.O. Box 9598 Denver, CO 80209 Dear Michael: The President has scheduled a meeting with leaders of the disability community for September 10, 1997 to discuss issues important to people with disabilities, including personal assistance services. We would like to include representatives of ADAPT in that meeting. As you know, the Office of Public Liaison has been actively pursing the scheduling of a meeting between the President and leaders of the disability community. Prior to the meeting with the President, the White House will continue its consultative process with ADAPT and, in particular, begin a policy discussion regarding the issue of personal assistance services. The Administration will be represented by the White House Office of Public Liasion, Domestic Policy Council, National Economic Council, and the Department of Health and Human Services during the policy discussions with ADAPT. We are ready to begin the substantive policy discussions immediately and are waiting for ADAPT to propose dates for the first meeting. Please contact Bill White at (2020) 456-7032 to coordinate the first meeting. Sincerely, [Signed] Maria Echaveste [Typed] Maria Echaveste Assistant to the President Office of Public Liaison
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WEDNESDAY, JUNE 18, 1997 THE WASHINGTON TIMES Regional News [Image] [Image caption] Photo by Karen Ballard/The Washington Times. Protesters park their wheelchairs in front of a Greyhound bus yesterday in an attempt to disrupt service. Disabled activists protest bus service THE WASHINGTON TIMES About 70 handicapped activists in wheelchairs blocked streets and disrupted bus service at the downtown Greyhound station yesterday afternoon. They blocked the 100 block of L and First streets NW near Union Station, complaining about Greyhound's lack of progress in implementing regulations required by the Americans With Disabilities Act. Protesters began massing at both ends of L Street and around the front bus exit onto First Street NW demanding a meeting with Greyhound officials. "We want them to make all the buses accessible," said Clark Goodrich, 25, who traveled from Grand Rapids, Mich., for the week of protests. The group protested in front of the Department of Labor earlier yesterday before going to the bus station. Five buses carrying about 80 passengers were delayed about 30 minutes until Greyhound officials moved outgoing buses into a parking lot across L Street from the terminal. From there, passengers left for their destinations. Emma Gray, Greyhound's terminal manager in Washington, said most stations across the country have chair lifts to get handicapped passengers onto buses. "We just want to do our business, so we're doing it around them:' Mrs. Gray said of the protest. --Gary Scheets
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NATIONAL ASSOCIATION FOR HOME CARE 228 Seventh Street, SE Washington, DC 20003 202/547-7424, 202/547-3540 fax MARY SUMER CHAIRMAN OF THE BOARD VAL J. HALAMANDARLS PRESIDENT HONORABLE FRANK E. MOSS SENIOR COUNSEL STANLEY M. BRAND GENERAL COUNSEL MEMORANDUM June 15, 1997 TO: Members of American Disabled for Attendant Programs Today (ADAPT) FROM: Val J. Halamandari Mary Suther, Chair . On behalf of the National Association for Home Care (NAHC), we want to thank you for coming to our offices to bring to our attention issues of critical importance to ADAPT. Together, I am confident that we can address these issues which reflect our mutual concern for those who rely on home and community based services. Our commitment to the consumer is underscored in the opening lines of our mission statement that has been in place since the founding of the organization in 1982: NAHC is a professional association representing the interests of Americans who need home care (including acute, long term, and terminal care) and the caregivers who provide them with in-home health and supportive services. We have made many efforts to ensure a productive relationship between people with disabilities, their families, caregivers and the home care community. NAHC sits on the steering committee of the National Institute on Consumer Directed Care, sponsored by the National Council on Aging, to foster better collaboration on these issues. We were pleased to cosponsor, with a number of organizations (including the World Institute on Disability, NCOA, and several nursing organizations) a symposium on consumer-directed long term care services. We welcome the opportunity to work with you to make public policy more responsive to the needs of people with disabilities. We included advocates for people with disabilities at our conference on home care aide issues in the spring. We would welcome the opportunity to have a presentation by ADAPT members at the 16th Annual Meeting of the National Association for Home Care. The meeting will be held in Boston, October 17-22, 1997. We will work together to determine the best possible time. NAHC supports the right of consumers to choose the type of care and the caregiver that best suits their needs. We believe that federal policy and regulations should never become so cumbersome as to pose barriers to consumers accessing essential care. We believe consumers have the right to self-direct their care or choose administration of care by an agency without diminishing quality or quantity of care received. Consumers should be permitted to receive services through a combination of service delivery modes. However, at the same time, NAHC believes that both the consumer and the caregiver have rights. This includes a caregiver's right to compliance with applicable state and federal labor health and safety laws and regulations. It is incumbent on our organizations to make certain that these laws do not create barriers, but maintain the ability to protect caregivers. Home care and ADAPT have much in common. While we cannot direct the actions of our state affiliates, we will encourage our state home care associations to meet with local ADAPT groups on ways to create consumer driven attendant services. NAHC has consistently endorsed the following CASA principles, including those which would: * empower consumers with maximum control to select, manage, and control their attendant services, * maintain emphasis on community-based, not institutional care, * base eligibility on functional need, regardless of age and/or disability, * ensure that needed services are available 24 hours a day, 7 days a week, * ensure that needed back-up and emergency services are available, * authorize programs that allow for the development of options, such as vouchers; direct case payments to individual providers, and consumer directed agency models, with appropriate standards and safeguards to ensure quality of care, * ensure the appropriate delegation of health related tasks, make available voluntary training for consumers, * ensure that personal attendants receive livable wages and benefits, and * base attendant services on agreed-upon individualized service plans. NAHC has longstanding concerns about the imposition of home care copays due to their regressivity and likelihood of creating barriers to needed home care. Certainly, though, creative ideas need to be developed that would allow individuals with disabilities who are not currently eligible for Medicare or Medicaid to more fully access these vital programs. In addition, NAHC believes that individuals in need of home health services should be entitled to the same high quality and standards of care, regardless of their levels of income or source of public funding for their care. NAHC believes that every effort must be made to avoid unnecessary institutionalization. The National Association for Home Care is proud of our advocacy of home and community based alternatives to institutionalization. NANC's visibility and credibility on Capitol Hill, with the White House, and throughout the Nation, is linked to its name. Our name will remain the same. Our commitment to ensuring that "home care" is accessible, responsive to consumer needs, and encompasses more than "medically related" services, will continue. NAHC is already in on-going discussions with a number of beneficiary and disability groups on ways to have home care more available and tailored to individuals with chronic care needs. We look forward to including ADAPT members in these discussions, and including in our discussions the importance of developing transition plans for people with disabilities coming out of institutions. Thank you again for the opportunity to enter into a more direct dialogue with you on these important issues. We look forward to working toward enactment of these goals and principles.