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Home / Albums / Memphis, May 1998 22
- ADAPT (1135)
[Headline] Ten Worst States for Personal Attendant Services 1. Tennessee 2. Mississippi 3. Louisiana 4. Missouri 5. Georgia 6. Illinois 7. Indiana 8. Florida 9. Ohio 10. Kentucky [Subheading] Dishonorable Mention 1. Washington D.C. 2. Texas 3. Pennsylvania 4. New Jersey 5. Arkansas Information used, for ranking the Ten Worst came from a variety of sources including personal stones and recommendations of advocacy organizations. Two sources we used were: The State of the States in Developmental Disabilities published by the American Association on Mental Retardation and State LTC Profiles Report published by the Institute for Health Services Research, University of Minnesota. [Subheading] Tennessee * 94.8% of long term care spending goes to nursing homes. (1992) * Fiscal effort for community services for people with developmental disabilities 36% BELOW national average. * Total MR/IUD spending 38th in the country. * Spending for congregate facilities increased by 41% in Tennessee while spending for congregate facilities nationwide has declined 12%. * 50th in per capita spending for home and community-based care for people over the age of 65. * Number of people with developmental disabili-ties living in nursing homes increased 25% (1992-96) nationally a 13% decrease. * 50th in spending on home and community-based care as a percentage of long term care expenditures. * Commitment to home and community based services ranked 50th by the Institute for Health Services Research. (For specifics on other worst states, contact ADAPT of Texas 512-442-0252 or adapt@adapt.org) - ADAPT (1133)
PHOTO: In the foreground a stone platform with a huge metal seal partially visible that reads "..OF THE STATE..." Someone, mostly off camera, sits on this. Behind it two people in yellow ADAPT shirts (Claude Holcomb, left and Marsha Coleman, right) are sitting in their chairs. To Marsha's right another woman in a wheelchair, and behind her John Gladstone is sitting with his hands raised up. Behind Claude and Marsha a woman in a green t0shirt is interacting with someone behind Marsha whose fists are raised above Marsha's head. Behind Claude and up against the building Rand Metcalf in a dark ADAPT shirt, raises a fist above his head. To his right a man in a cap (possibly Kevin Seik) has his hand by his mouth as if he is yelling. The building is a dark speckled stone. - ADAPT (1129)
[This page continues the article from Image 1130. Full text available on 1130 for easier reading.] - ADAPT (1134)
PHOTO: The midst of a crowd of ADAPT people outside a large office building. In the forground a rasied fist. Behind, two women in different yellow ADAPT shirts, one standing and yelling or chanting, one sitting in her chair squinting and focusing. Behind them, more protesters including a man in dark glasses and a dark tshirt and in the center of the picture but back, Sue Davis is standing looking determined. - ADAPT (1142)
PHOTO: In front of some trees a man in a grey hat and glasses with a white beard (Bob Kafka) sits in his powerchair, holding a microphone for a bullhorn. There are two over his held being held by standing members of the group. To Bob's right is Alan Holdsworth (aka Johnny Creschendo) in a DAN (Disability Action Network, ADAPT's UK sister group) and to his right is LaTonya Reeves in a blue ADAPT shirt. She is looking down at a paper. Way behind her, up against a tree is Tom Olin with his camera. - ADAPT (1130)
Memphis, Sunday, May 10, 1998 [Headline] 500 tp push for Medicaid funds for home aides [Subheading] At issue is choice, supporters say The Commercial Appeal After living nearly 37 years with her parents and logging another nine years in a nursing home, 47-year-old Tena Murphy is settling into life on her own. "It's definitely home," said Murphy, surveying a one-bedroom apartment accepted by her doll and stuffed animal collections. A small inheritance from her father's death provided Murphy with money for a subsidized apartment and $72 weekly for a personal assistant. This week, the debate over whether to expand government funding for personal assistants gets a Memphis pivot point. About 500 are expected here to build support for national legislation to expand government funding for personal assistants. "The issue isn't to shot nursing homes down, but to provide real choice," said Michael Auberger, 42, of Denver. Auberger is national organizer and co-founder of ADAPT, a disability-rights group that has organized four days of workshops, meetings and demonstrations. Founded in 1983, ADAPT (American Disabled for Attendant Programs Today) has pushed for improved transportation and alternatives to nursing homes. Events kick off today with a 3:30 p.m. Court Square rally. The Memphis gathering comes shortly after the Tennessee legislative session ended without expanding the Medicaid funding for home and community services as an alternative to nursing home care. Instead, legislators created an advisor council to develop a comprehensive state plan for long-term care services, excluding nursing homes. The plan's expected in January. "I'm disappointed we didn't put money into (home and community services) now," said Rep. John Arriola (D-Nashville), the bill's House sponsor. The bill originally called for channeling half of any future Medicaid budget increase to pay for services, such as personal aides, meals and transportation, that could help people avoid nursing homes. Arriola said the funding provision was dropped because it lacked adequate support. Auberger said that's why ADAPT favors national legislation. "States could do a lot of this now, but have ignored the call of the disabled and aging community," said Bob Kafka, 52, an Austin-based ADAPT member. "Congress has to take action. This is a very passionate issue. We call this a civil rights issue. People are being forced into institutions" because state Medicaid programs won't pay for personal aides and other support services, Kafka said. Both Kafka and Auberger rely on wheelchairs. ADAPT members are in Memphis to highlight Tennessee's shortcomings and push a bill now before Congress. ADAPT uses workshops, street theater and nonviolent protest to intensify its message. At similar gatherings in other cities, ADAPT members were arrested in demonstrations that have included chaining themselves to the White House fence, blocking buses and driveways or piling into congressional offices. Auberger declined to discuss the group's Memphis plan. Deputy Chief Samuel Moses said the Memphis Police Department believes it includes action that could trigger arrest. But he said the group hasn't discussed anything with police. Murphy's plans include attending today's workshops and rally. She said without an aide who spends about 12 hours a week helping her shop, clean, dress and bathe, she'd still be in King's Daughters and Sons Home. Medicaid paid Murphy's nursing home bill, but it wouldn't pay for a personal assistant because she wasn't homebound and didn't need 24-hour help. Tennessee's Medicaid budget is about $672 million, most going to underwrite nursing home care for about 30,000 Tennesseans. Medicaid is separate from the state's TennCare health program. More than 70 percent of Tennessee nursing home residents qualify for Medicaid, which is funded with state and federal dollars. Eligibility is linked to a person's income and assets. Until Murphy could afford to pay her own assistant, a nursing home was her only option. An only child, Murphy lived at home with her parents until her mother died and a traffic accident eventually sent her father to a nursing home. Both parents are now deceased. "Tena is an example of what home and community-based services can do," said Bernarc Danzig, Plough Towers director. Murphy spent two years on its waiting list. Danzig said he and nursing home administrators were un sure if Murphy could handle life on her own. The first month was difficult Simple things like dressing were a problem. But now she's enrolled in computer class and plans to earn her GED and begin college. She helps in the Plough Towers library and handles resident E-mail. Murphy relies heavily on public transportation to visit friends in the nursing home and attend University of Men-phis basketball games. She serves on the local ADAPT board and a Memphis Area Transit Authority advisory council. Recently, she hosted her first party. "Iwant to show people in the community we (in the disability community) are active," said Murphy. "We need to be independent." To reach reporter Mary Powers, call 529-2383 or E-mail powers@gomemphis.com - ADAPT (1121)
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