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Pradžia / Albumai / Free Our People March, 144 miles Philadelphia to DC, September 2003 85
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Rally End of the Road [image] [image caption] Making a point: Bob Kafka, head of the disability group ADAPT, takes part in a rally in Washington Wednesday. He was with a group that traveled from the Liberty Bell in Philadelphia to support the Medicaid Community Attendant Service and Supports Act currently in Congress. - ADAPT (1464)
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[Heading] ADAPT For 20 years, ADAPT has been a leader in the fight for accessible public transportation, the redirection of public funds from nursing homes and institutions to community-based services, and for a national personal assistance policy based on functional need, not diagnosis. MiCASSA (Medicaid Community-based Attendant Services and Supports Act) is the anchor for that policy. ADAPT strategies include using civil disobedience as a tool to garner public attention and effect needed change in the laws, policies, and services affecting persons with disabilities. While members of ADAPT are willing to sit at the table to change policy, we are also not afraid to go to jail if that's what it takes for change to occur. Chaining ourselves to buses resulted in accessibility in city transportation. Due to ADAPT's earliest efforts, Denver had 100% accessible mass transit prior to the passage of the Americans with Disabilities Act. The same is true in other cities. ADAPT's demonstrations, protests and marches have had a significant impact on the redistribution of Medicaid dollars in long-term care. Just 10 years ago, more than 80% of long-term care dollars went to nursing homes. Today it's less than 70%, which has resulted in great numbers of people with disabilities being freed from institutional set-tings. It is time to assure that ALL our brothers and sisters have that same opportunity for freedom. ADAPT wants MiCASSA passed in 2003! [Subheading] Free Our People March 2003 marks the fourth time MiCASSA has been introduced in Congress. ADAPT is demonstrating its commitment to get MiCASSA passed in 2003 by organizing a 140 mile march from Philadelphia to Washing-ton, D C.—the Liberty Bell to Capitol Hill. Over 100 members of ADAPT, with allies who are committed to "freedom and justice for ALL," will be-gin this historic March in Philadelphia on September 4, 2003. We will march through Delaware, and Mary-land, all the way to the nation's capitol. Marchers (walking and rolling) will travel 8 to 12 miles per day, stopping at various locations along the way for food and sleep. This will not be going from hotel to ho-tel marchers will be sleeping on cots, on the ground and in tents. We expect to be joined by another 300 people in Baltimore for the trip into Washington, D. C.. Arriving on September 17, our journey will culminate at a rally attended by more than 10,000 people as we deliver our message to Congress NO MORE STOLEN LIVES, PASS MiCASSA NOW! By enduring the obvious discomforts and inconven-iences of the march, we will be demonstrating our un-dying commitment to all persons, young and old, hav-ing the choice AND the opportunity to live in the community with the supports and services they need. This is not going to be easy. This will not be cheap. But, this will happen. And we need your support If you want to participate in the march, or volunteer, make a donation, or assist in some other way, please contact ADAPT's Free Our People March using the form and contact information on the following page. [Subheading] America Needs MiCASSA Now! In 2003, states are cutting Medicaid and services to people with disabilities in order to balance budgets. The ADA is under attack. MiCASSA is essential to safeguard our freedom to live in the community. Mi-CASSA gives people real choice in long-term care And for everyone eligible for nursing facilities or Intermediate Care Facilities for the Mentally Retarded (ICF-MR), the concept and dream of "money following the individual" will become reality under Mi-CASSA. MiCASSA will provide community-based attendant services and supports that are: • Based on an assessment of functional need • Provided in home or community settings, such as schools, work, recreation or religious facilities • Selected, managed, and controlled by the consumer of the service (or a representative designated by the consumer) • Supplemented with back-up and emergency services • Furnished according to a service plan agreed to by the consumer • Enhanced by training available to consumers on selecting, managing and dismissing attendants. [Subheading] No More Stolen Lives ! Pass MiCASSA in 2003 - ADAPT (1447)
144 miles from Philadelphia to D.C. to set our people free! - ADAPT (1480)
METRO DC MD VA S WEDNESDAY, SEPTEMBER 17, 2003 B3 [Headline] Going the Distance for the Disabled [Subheading] 144-Mile March Urges Right to Live Free of Institutions By DARRAGH JOHNSON Washington Post Staff Writer Already, they had cruised 128.6 miles in their wheelchairs and eat-en too many jelly doughnuts for breakfast and too many peanut butter and jelly sandwiches for lunch. "I can't wait to have a hoagie," fantasized Topeka, Kan., res-ident Jo Ann Donnell yesterday morning, "with Genoa salami with provolone. That, and a scotch and soda." They had endured rain-soaked pillows and sunburned forearms and cars whizzing by way too close for comfort. And every night for almost two weeks, these 250 advocates for the disabled had wheeled into their campsites, plugged their chairs into chargers and spent the next 10 hours on their cots, sacrificing mobility for the chance to make a statement. Now there they were yesterday morning, lined up in blue tents next to a driving range in Beltsville, eating more jelly doughnuts and getting ready for another six hours. Another 10 miles. Another day of clogging traffic along one of Maryland's busiest roads, Route 1, as they zoomed two miles an hour in the right-hand lane and chanted, 'Free Our People!' In the midst of the preparations was co-organizer Bob Kafka, whose wild white hair and beard gave him an added presence as he turned on his cordless microphone and cried, "Today . . . we're heading to D,C.!" He started waving a piece of pa-per, as cheering erupted around him, and men in ball caps and women in chic, Juicy Couture-esque sweat suits and red-spangled sandals leaned closer. "I have a letter here, dated September 15, on White House stationery," he continued, and with the mention of "White House," the crowd immediately quieted down. On Sept. 4, the members of the advocacy group ADAPT had started this 144-mile wheelchair march at the Liberty Bell in Philadelphia, and with every town they stopped in, they tried to whip up support for bills in the U.S. House and Senate that would "allow all Americans to receive long-term care services in their own homes, instead of being forced into nursing homes, as they are under cur-rent Medicaid policy," as their mission statement on their Web site describes. Currently, Medicaid funds automatically pay for nursing homes, but the funds can be diverted to pay for home health care only by the most diligent and seemingly connected of patients. So nearly all the march participants live in fear that someday if, for example, pneumonia further disabled them, they would be forced to spend the rest of their lives in an institution. "I would rather die," said Terri Stellar, 40, her voice cracking and her eyes tearing up as she talked. "I would rather die than go into a place like that." She knows because she was there, she said. Stellar, a social worker in Austin, was in a car accident four years ago that broke her left hip and foot and landed her in a rehabilitation hospital that she said was no different from a nursing home. She was supposed to spend two weeks there. She spent three months, until the insurance money ran out. "We would like to invite you and five of your fellow representatives of ADAPT back to the White House," Kafka read, to continue our discussion . . . of policies to promote home and community-based care for individuals with disabilities. We have reserved the Lincoln Room at the White House Conference Center." "The letter is signed," Kafka finished, "by the special assistant to the president!" "Whoo hoooo!" surged the group. Everyone was tanned after almost two weeks in the sun. On every third chair flapped an American flag with the stars arranged in the shape of a person in a wheelchair, and chanting started up: "Free Our People! Free Our People!" From there, the chairs wheeled toward Route 1, where three Maryland State Police cruisers and a Prince George's County police car waited with lights flashing to escort them to the District line. The mood was cautiously jubilant. Just one more day and 14 more miles before their big rally this afternoon on Capitol Hill, where they hoped Congress members and 5,000 supporters would show up to join them. Already, Sens. Tom Harkin (D-Iowa) and Arlen Specter (R-Pa.) and Reps. Danny K. Davis (D-111.) and John M. Shimkus (R-111.) have sponsored legislation to help their cause. But on whether anything will change dramatically as a result of this odyssey that brought advo-cates from all over the country [image] [image caption] BY SUSAN BIDDLE--The Washington Post. Advocates for the disabled make their way along Route 1 In Maryland en route to today's rally In Washington. [text resumes] from Salt Lake City and Boulder, Colo., and Missoula, Mont., and West Haven, Conn.-46-year-old Albert "Sparky" Metz was reserving judgment. "Actions speak louder than words," he said gravely. Cerebral palsy has garbled his speech to the point where he often needs his attendant, Andy Rowe, to "translate" for him. But after spending his childhood in a state-run home in Oklahoma, and his adult years until 1990 in a nursing home, Metz uses whatever plat-form he can find to describe the difference between life in an institution and life on his own. "Freedom," he said, straining back his head. In the institution, he said, "I had to tell them where I was going." But today, he lives in a duplex in Austin with his wife, Laurie, and their dog, Elvira, "and now I go shopping, and (or walks around Town Lake." He has visited Hippie Hollow, the nudist colony near his house, and wheeled his chair to the edge of the lake. Though he hasn't gone skinny-dipping—"it isn't accessible," he said—he didn't wear a shirt for the occasion. But better than just the freedoms of movement and decision-making, he said yesterday, surrounded by friends in chairs, is the freedom he now has to make a difference. "Ten years ago..." he said, the words pushing forth with more vowel sounds than consonants, requiring the listener to lean in and concentrate. "Ten years ago, Austin didn't have accessible cabs." Today, Austin does. "And l—he smacked his heart with his hand, beaming—"I helped with that." - ADAPT (1470)
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Award Winning New York Able THE NEWSPAPER POSITIVELY FOR, BY &ABOUT THE DISABLED [Headline] FREE OUR PEOPLE: ADAPT Leads March for MiCASSA [image] [image caption] PHOTO BY TOM OLIN. Rep. Dennis Moore, center, plays Woody Guthrie's "This Land Is Your Land" while, left to right, Rep. John Shinkus, Sen. Tom Harkin and Rep. Danny Davis join in at ADAPT's MiCASSA rally. More than two hundred people from more than 25 states and two from Switzerland, most using wheelchairs, traveled 144 miles from the Liberty Bell in Philadelphia, Pa. to Washington, D.C. in ADAPT's Free Our People March, Sept. 4 through 17 to emphasize to Congress the need to pass MiCASSA, the Medicaid Community-based At-tendant Services and Supports Act (S971 and HR 2032). Marchers endured thunder-storms and intense heat to emphasize the need to keep people out of nursing homes. Federal law guarantees funding for nursing horns., but does not guarantee that the same dollars are spent to help people stay in their own homes, which most feel would be a significant sayings to taxpayers. "We've been working for over ten years to get this legislation passed," said Eric von Schmetterling of Philadelphia ADAPT at the start of the march, "and Congress keeps re-fusing to act, despite the fact that there are 600 organizational supporters and despite the fact that every additional day they keep their heads in the sand, they are wasting the lives of older and disabled Americans who remain warehoused in this Continued on page 10 [we do not have the next page]