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[Headline] WANTED ALPHONSO JACKSON SECRETARY OF HUD FOR CRIMES AGAINST PERSONS WITH DISABILITIES [ADAPT LOGO]
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[Headline] ADAPT Locks Horns With Union [Subheading] 120 Arrested in Chicago When ADAPT Refused to Sign Statement Supporting Institutions By ADAPT Staff [image] [image caption] Roxan Perez, an ADAPT organizer from Wisconsin, being arrested last month in Chicago while protesting AFSCME's stand in support of institutions. Photo by Tim Wheat of ADAPT Chicago-Last month, ADAPT confronted Council 31 of the American Federation of State, County and Municipal Employees (AFSCME) on their support of reopening the state's Lincoln Developmental Center institution, and AFSCME's refusal to endorse any legislation supporting home and community-based services for people with disabilities. AFSCME responded by asking ADAPT to sign a statement supporting institutions authored by AFSCME director Henry Bayer, and when that didn't happen, Bayer had over 120 people arrested for blocking the doors, elevators and parking lot of the AFSCME building. "They typed up a statement supporting institutions and asking for money, and then couldn't understand why we didn't want to sign it," said Mike Oxford, Kansas ADAPT organizer. "It's impossible to negotiate human and civil rights issues with people whose only concern is their own pockets...no matter how many people are warehoused and deprived of their liberty as a result." ADAPT has met repeatedly with AFSCME leadership, receiving a commitment from Gerald McEntee, the union's president, to sign on to legislation that supports home and community-based services and supports for people with disabilities and the elderly. That promise was never kept, and was one of the reasons ADAPT visited the Council 31 offices. "For an organization that has its roots in the civil rights movement, their treatment of people with disabilities is even more despicable, said Randy Alexander, Memphis ADAPT Organizer. "The union and its members make a lot of money by advocating to keep people with disabilities and older folks stuck in nursing homes and other institutions instead of being able to live in their own homes like other people. It's unconscionable that the union fights for workers' rights at the expense of our rights. In ADAPT, we know that you can't have one without the other." The arrests at AFSCME concluded a week of ADAPT action in Chicago. The week began with a national forum on affordable, accessible, integrated housing, attended by federal officials who heard testimony from people with disabilities about the lack of adequate housing and the discrimination they have experienced when trying to secure a place to live. The forum was followed by three days of action on the streets that included gaining a commitment from Governor Blagojevich for permanent closure of the Lincoln Developmental Center, and assuring ADAPT a seat at the table as Illinois enacts its Money Follows the Person demonstration. The next ADAPT action will be in Washington, D.C. April 26-May 2, 2008, when ADAPT celebrates its 25th anniversary. This article is a press release issued by ADAPT, and is repainted here with permission.
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ADAPT Continued from page 3 program funds to projects that are integrated. Currently, the 811 program primarily funds segregated housing situations for people with disabilities. Two hours of testimony about the lack of affordable, accessible integrated housing articulated by disability rights activists from across the nation followed. But HUD officials remarks reportedly in-cited the crowd to anger. "We just heard the same old rhetoric, lots of promises, but no action," said Cassie James, ADAPT Organizer from Philadelphia who moderated the Housing Forum. In a May meeting in Washington, D.C., ADAPT con-fronted Secretary Jackson about the 58 percent loss in housing vouchers that the dis-ability community suffered due to a combination of federal budget cuts, and misappropriation of the vouchers by local entities that administer the voucher program. Jackson promised to report to ADAPT before the action in Chicago how many of those housing vouchers for people with dis-abilities he has recovered. Jackson, who had also promised in May to meet with ADAPT three times a year, failed to show in Chicago, sending Kim Kendrick, Assistant Secretary for Fair Housing and Equal Opportunity, and Paula Blunt, Deputy Assistant Secretary for Public and Indian Housing in his place. Neither Kendrick nor Blunt provided the numbers promised by their boss in May. "As we have begun to make progress in getting people out of institutions, and prevent-ing people from being forced into institutions, the lack of affordable, accessible, integrated housing in typical neighborhoods has become glaringly apparent," said Beto Berrera, a member of Chicago ADAPT and a Chicago housing expert.
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[Headline] ADAPT Activists Arrested in Chicago American Disabled for Attendant Programs Today (ADAPT) activists were arrested outside the American Medical Association (AMA) headquarters in Chicago following protests and presentation of a list of demands involving Medicaid reform and support of the Community Choice Act (S.799, H.R. 1621). An estimated 500 disability activists converged in front of the AMA building, ready to present a list of demands for the organization, including to endorse the Community Choice Act and actively promote its passage; to assure that people with disabilities and senior citizens get real choice in long term care services and supports and are able to live in the most integrated setting; and to provide medical providers with continuing medical education programs about community-based alternatives to institutionalization. Illinois is considered by ADAPT to be the poster child for this larger national problem. The crisis is directly caused by a record of bad decisions made by Illinois state officials, and the institutional bias built into the way the nation's long term care system is funded. Gov. Blagojevich has plans to reopen a state institution for per-sons with developmental disabilities. He has not shown support for Money Follows the Person legislation. Currently, Illinois ranks 41st in the nation for providing the community-based services that will allow disabled and older citizens to stay in their own homes. "It turns my stomach to know that my state, historically a home of civil rights in America for people of color, is the same state that is one of the worst civil rights performers in regard to people with disabilities," said Chicago native Larry Biondi, an organizer with Chicago ADAPT. "I'm ashamed of Illinois' record of institutionalizing people with dis-abilities. Right now there almost 20,000 people who have said they want to get out of Illinois' nursing homes- nursing homes they never wanted to go into in the first place. But they were forced to go there by the institutional bias in Medicaid funding." While in Chicago, ADAPT also held a national housing forum that was attended by HUD Fair Housing Assistant Secretary Kim Kendrick, and state and local officials. At the forum, ADAPT revealed its national housing agenda, and distributed information on pending visitability legislation, and the redirection of HUD's 811 Supportive Housing Continued on page 21
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[Headline] Seeking doctors' support for housing options other than nursing homes for long-term care, activists close down headquarters' entrances By Mary Owen Tribune staff reporter Larry Lawson says he lost his independence after a stroke and brain aneurysm four years ago. Paralyzed on his left side, the former Cook County employee now must use a wheelchair. His doctor gave him only one choice for long-term living: a nursing home on Chicago's South Side. "I've been a refugee in the nursing-home system," said Lawson, 57. "I am able enough to live in my apartment with the help of social services. I would like to have my own place." Lawson was one of 200 disabled protesters who blocked the entrances to the American Medical Association's headquarters in the River North area Monday for more than three hours in a demonstration over housing options for people with disabilities. The protesters from the advocacy group ADAPT want the AMA, the nation's leading physicians group, to endorse federal legislation that aims to pro-vide more access to community-based services. Under the cur-rent system, which advocates have criticized for more than a decade, seniors and disabled patients are often forced to live in nursing homes to get the services they need, organizers say. "There's a myth that nursing homes are a necessary and important option. But we disagree with that," said Rene David Luna, a wheelchair user who works for Access Living, a Chicago advocacy group for people with disabilities. "It shouldn't be an option at all." Protesters made their way from the Crowne Plaza, 733 W. Madison St., west of the Loop, to the AMA building at Grand Avenue and State Street. Police blocked traffic as protesters traveled in a single-file line along the sides of Madison, La-Salle, Lake and State Streets. When the demonstrators arrived at the AMA building, they blocked four entrances and a lower-level parking garage. About 1:30 p.m., police issued 42 tickets and removed protesters from the building's north entrance to allow for office employees to leave. About 2 p.m., the group ended its blockade of the other three entrances and the garage entrance. The AMA has more than 700 employees on 14 floors in the building. The other half of the building is occupied by other tenants, who also were left standing in the lobby as building officials locked the doors to the entrances. One woman in-side the building was taken away by paramedics when she became "hysterical" at the thought of being trapped inside the building, an AMA official said. Outside, protesters held signs that said "AMA don't lock us away" and "Now you know what it's like to be stuck in a nursing home." Protesters said doctors often refer disabled people to the nursing-home system without exploring possibilities such as home-care services that would allow them to live more independently. They want AMA officials to endorse the Community Choice Act, a bill introduced in Congress earlier this year that would provide more options, including allowing a patient to use Medicaid dollars to live in an apartment rather than a nursing home. "Literally, [doctors] force people into nursing homes with a swipe of a pen," said Randy Alexander, 37, a wheelchair user from Memphis. "It's about dignity. People have a right to decide where they want to live." Organizers acknowledge that doctors are not the sole deci-sion-makers when determining long-term care for patients, but they do provide guidance and outline patients' options. And too often nursing homes are portrayed as the only viable option, they said. "What we're trying to change is the long-term health-care system," said Gary Arnold of Access Living. "The AMA has a lot of influence over that. We feel like their word would carry a lot of clout." In an Aug. 30 letter to ADAPT, AMA Executive Director Michael Mayes told the group that the association "supports home and community-based care, when medically appropriate, as an alternative to institutional care." An AMA official said the organization met with ADAPT this summer. The meeting led to the association's council on legislation to review the proposed act. A council recommendation is expected later this month. At that point, the AMA's board of trustees could decide whether the association will endorse the legislation or put it to a vote by the membership. The protest was part of a biannual national meeting of people with disabilities from across the country. ADAPT held a forum on affordable and accessible housing Sunday, and its planning two more protests this week. The group would not dis-close what or where the other demonstrations would be. mowen@tribune.corn
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2 CHICAGO TRIBUNE METRO SECTION 2 TUESDAY, SEPTEMBER 11, 2007 [image] [image caption] Disabled demonstrators head north on State Street in the River North area Monday, making their way toward the American Association's headquarters. Tribune photo by Michael Tercha [Headline] Disabled protesters blockade AMA
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arrests will be made and they will start at this spot. As I look around I don't see anyone that is new to arrest. I take a position where I can video the event. The arrest is a statement that we will not move. I think it is to say that, despite the talk, ADAPT believes strongly in our right to live in the community and that in this we are stronger than AFSCME. I stand with those who are about to get busted, but I doubt I am in much danger of being arrested. Cassie will certainly be arrested. Sue, Frank and Toni, who I just met, are going to jail. My friend and roommate, Mike, is out there to get busted. [subheading] 1:04 pm The arrests are being made. I have to stop with this journal and start with the video and photos. [subheading] 1:18 pm The arrests are made quickly in the back. Everyone cooperated and moved away. I head around to the lobby to see if there will be arrests there. I see Marsha and tell her that I think about 30 people have been arrested. Right after I said that that I see Tim, who got stepped on yesterday at the transit entrance of the Thompson building. He writes on my notepad that he counted 15 arrested. My guesswork and speculation are off today. [subheading] 2:19 pm The arrests are completed and ADAPT is on the Chicago Streets again. I spoke with Randy, who led the march back to the hotel. He said AFSCME does not respect people with disabilities nor its workers. Randy, from Memphis, wore a piece of paper on his chest that read: "I am a man," in reference to the 1968 garbage workers strike. He said that MLK would likely stand with us against AFSCME because of ADAPT's struggle for equality. Indeed, Martin Luther King III spoke at the ADAPT March for Justice in October 2000 where he said: "Our destinies are tied together." The group is festive. People are joking and disorganized. Already, people are telling their "war stories" from the action. [subheading] 2:37 pm On the way back we mingle with the police one applauds us. The single-file cannot even be imagined from the meandering group headed back. We get close to the hotel and the final "big meeting." I miss Bob Kafka. He is not at this action and no one can frame our issues like he can. I feel very strongly about today's action, and I am proud of how ADAPT did not back down. Being out here in the street with everyone I am more certain that we will overcome.
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[Headline] Harass them until they agree Protests are good fun, often compelling theater, and give participants the illusion of accomplishing something. Occasionally they actually do accomplish something. But I have to wonder whether the disabled activists who shut down the American Medical Association building Monday actually served their cause or undermined it. The group behind the protest--ADAPT--has been doing this for years. They appear at various locations and jam up the works with their wheelchair-bound bodies, though how denying access encourages somebody to care about your own access issues is a mystery. In my understanding of the world, annoying others generates hostility, not support. Had the AMA already rejected the chance to endorse the issue at hand--a federal bill that would make it easier for disabled people to live independently instead of in nursing homes--I could see how a little vindictive guerrilla action might be in order. [image] [image caption] The protesters who were at the AMA building Monday took over the Thompson Center (above) on Tuesday. Joseph Amari-For the Sun-Times [text resumes] But given that the AMA--not my favorite organization--met with ADAPT to hear its arguments, and is considering the issue with apparent sincerity, it strikes me that this sort of protest is counterproductive. Those within the AMA who share ADAPT's view will have a tougher time selling it now than they would have last week. Anger can disable you as handily as any physical malady. Yet who protests against that?