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ADAPT (1019)
Houston Chronicle Tuesday May 21, 1996 photo by: Carlos Antonio Rios / Chronicle: An African American woman with a stern face and an ADAPT T-shirt sits in a manual wheelchair, several other people in wheelchairs and walking are behind her. Over her head she holds poster that reads "I'd rather go to Jail than die in a nursing home!!" The word JAIL has bars drawn over it. [Headline] Building takeover Barbara Hines, 48, who lived in a nursing home for 11 years, was one of about 400 disabled people who took over the Katy Freeway offices of Living Centers of America in a protest Monday morning. The protesters want more federal funds shifted into long-term care at home instead of nursing homes. Five protesters were arrested: Page 21A
ADAPT (816)
This Week in Healthcare Photo: Protesters in wheelchairs sit in a group chanting. Their signs read: "Is there a nursing home in your future?" and "Our Homes not Nursing Homes." Front row left to right is George Roberts with Larry Biondi and another person behind him, and Stephanie Thomas and Karen Tamley with signs. Caption reads: Wheelchair-bound members of ADAPT, a patient-advocacy group, disrupt AHCA’s meeting. Title: Disabled protest AHCA approach in lobbying for reform by John Burns [This article contines in ADAPT 815 but the entire text is included here for easier reading.] Nursing home providers weren’t the only ones recommending comprehensive long-term-care reform last week during the American Health Care Associations convention in Nashville, Tenn. More than 250 people, many of them disabled and wheelchair bound, demonstrated outside—and inside—the convention's Opryland Hotel headquarters to protest the AHCA’s lobbying of the Clinton administration for increased federal funding for nursing home care. The incident was the latest in a series of clashes between healthcare provider and consumer groups reacting to President Clinton's healthcare reform plan. Last month, the American Association of Retired Persons and Families USA, a consumer advocacy group, launched separate advertising campaigns attacking the lobbying efforts of several healthcare special-interest groups (See related story, p. 60). Early in the week, Paul Willging, AHCA’s executive vice president, outlined the associations agenda for reform to an audience of more than 2,000 nursing home administrators. More than 4,000 people attended last week's convention, the largest turnout in eight years. The group represents about 10,000 for-profit facilities. Mr. Willging commended the Clinton administration for the inclusion of steps in its reform plan to improve long-term-care financing. The plan calls for the creation of a long-term-care insurance market to help residents pay nursing home costs. “We've argued for years that the private sector offers an answer to escalating Medicaid spending... and to the forced impoverishment of millions of Americans due to their long-term-care needs,” Mr. Willging said. The AHCA’s platform for reform calls for a private-public partnership for long-term-care financing. Under their vision of coverage, private insurance would pay a large portion of nursing home costs, while the federal government would pay for the poor. However, eliminating the "imprisonment” - not impoverishment—of nursing home residents was the battle cry of hundreds of protesters from a group called Americans Disabled for Attendant Programs Today. The organization is a Denver-based patient advocacy group representing people with disabilities who would rather live at home than in nursing homes. Throughout the week, ADAPT members protested outside the Opryland Hotel, demanding that the group be allowed into the convention to debate its agenda. The group’s primary goal is to shift at least 25% of Medicaid spending now designated for nursing homes so the money could be used to develop home- and community-based long-term-care programs. The AHCA, which denied access to ADAPT members, did offer to meet with them in a closed-door session, said Claudia Askew, an AHCA spokeswoman. However, after talks broke down on Sept. 28, ADAPT protesters stormed the hotel, disrupting the convention and hotel traffic for hours. Nearly 100 ADAPT members were arrested. “We think we share a common goal of supporting additional funding for home-care services,” Ms. Askew said. “But, after today, I don’t know if we can come to any agreement.” This isn't the first time the association and ADAPT have clashed. Last year, ADAPT staged a similar protest during the AHCA’s convention in San Francisco, resulting in numerous protester arrests, she said.
ADAPT (1018)
Houston Chronicle Tuesday May21, 1996 Headline: 5 arrested after building is taken over in protest [page has a crease down the middle so some text is hidden, most was able to be figured out] by Lisa Teachey -- Houston Chronicle About 400 disabled people took over a westside building Monday until police arrived to move the protest outside. Members of American Disabled for Attendant Programs Today, most of them in wheelchairs, blocked the entrance and elevators leading to Living Centers of America at 15415 Katy Freeway at about 10:30 a.m. Five people who refused to leave the building were arrested for criminal trespass, said Houston police Capt. D.E. Watkins. None of the arrested was wheelchair bound. The protest was staged because ADAPT wants a larger share of the federal money dedicated to nursing home care to go to programs that provide in-home care or community-based care for the disabled. “We're tired of the nursing home industry keeping a lock on over 85 percent of the long-term care money,” said protester Diane Coleman. “If a person needs long-term care, they should be able to say where they [obscured partially here] get, not the system.” Federal money is set aside through Medicaid for nursing home care as well as for attendant-care and community-based programs, said Katherine Hinson, of the Texas Health Care Association, a trade organization that represents long-term care facilities. “They want to take money from one under funded program and put it in another under-funded program,” Hinson said. “There’s not enough money to go around. We've asked them to join us to get more funding for all.“ Living Centers is a long-term health care corporation that operates nursing facilities, rehabilitation centers a other types of facilities. “Their main quarrel is with the government,” said Edward Kuntz, Living Centers chief executive officer. “They want additional funding." Kuntz said he agrees with ADAPT's call for more money, “but not at the cost of long-term nursing facilities."
ADAPT (768)
San Francisco Examiner TITLE: Disabled protest for more funds for home attendants Subheading: Entrances to downtown Marriott are blocked By Wylie Wong of the Examiner Staff, October 19, 1992 About 300 demonstrators in wheelchairs blocked the entrances to the San Francisco Marriott, calling for more funds to allow the disabled to live outside of nursing homes. Sunday's protest was designed to drew attention to the 16 million disabled people who have no choice but to live in nursing homes, said the Rev. Wade Blank, a co-founder Americans Disabled for Attendant Programs Today (ADAPT). The protesters targeted the American Health Care Association, a nursing-home trade group whose members are staying at the Marriott on Fourth and Minion streets while attending a convention at nearby Moscone Center. ADAPT wants 25 percent of the $27 billion paid to nursing home operators under the Medicaid program to be used to help disabled people pay for personal attendants. But the Bush administration and the health care association, which represents about 10,000 nursing homes, oppose the plan. Only $600 million of that money currently is used for in-home attendant care, said ADAPT co-founder Michael Auberger. Police escorted the protesters on the eight-block trip from their Market Street hotel, and watched as they barricaded themselves at the Marriott's entrances. The protesters chanted. "Down with nursing homes, up with attendant care.” Police were able to keep some entrances open for hotel guests. No arrests were made. Kimberly Horton, who lived in a nursing home from age 6 to 21, described her experience as “living in a prison." "They take away your personal dignity," she said. "You had to eat what they put in front of you. They'd get angry at me for wetting my bed, but wouldn't help when I had to go.” Protester Blane Beckwith, a Berkeley resident, has a personal attendant who takes care of his everyday needs, from taking a bath to preparing food. But state budget cuts have slashed eight hours of care per month. As a result, he has only half an hour per week for grocery shopping with his attendant. "No one can shop for groceries in half an hour, My mother helps me, but she's 62 and can't do it forever." he said. Horton, who wants to take writing classes and become a free-lance writer, fear that more budget cutsar will force him to live in a nursing home. "A nursing home is stifling," he said, "You have no social life. You can't work." Conventioneers who walked past the protesters were unimpressed. "I have no argument with wanting more attendant care,” said John Jarrett, who runs a 79-bed nursing home in New York. "But they shouldn't take it from the elderly,” who would be hurt if ADAPT funding plan were implemented, he said. The demonstrators plan to protest the convention through Friday. A police commander said 90 police officers were on hand. “They haven’t been violent,” he said. “They’ve been very cooperative.“ Last week, officers took two hour classes at the Police Academy to learn how to arrest and search disabled people without harming them. PHOTO by Michael Macor, Examiner: The front of the ADAPT group marching down a downtown street and in the background the line of marchers goes out of sight. Paulette Patterson, Julie Nolan, Carla Laws, Brooke Boston? and Bob Kafka among those leading the march. Photo caption: Disabled people from the group ADAPT make their way down Mission Street to the Marriott Hotel.
ADAPT (674)
New York Times, National, Thursday October 10.1991 Title: Militant Advocates for Disabled Revel in Their Roles as Agitators by Steven A. Holmes, special to the New York Times [compare with ADAPT 673] Boxed text: Forcefully trying to change images of the nation’s disabled. ORLANDO, Fla., Oct. 6 — The melee‘ at a meeting of nursing home representatives here was, in many ways, a typical for the demonstrators: After smashing their wheelchairs into police barricades and blocking a hotel entrance, 73 of them were arrested, creatmg front page headlines and a successful day's work for Adapt, the militant advocacy group for the disabled. The aim of the action today at the Peabody Hotel in this resort city was to focus attention on the organization's call to divert Federal money from nursing homes to a form of in-home care. But the means the group uses, like Sunday's chaotic demonstration, have often exasperated its allies as much as its adversaries. But even those who criticize Adapt acknowledge that the searing images of people with physical limitations engaging in civil disobedience often succeed in shattering stereotypes of how meek and pliant “cripples” are supposed to act, stereotypes often held by many disabled people themselves. “Adapt is about the issue," said Mary Johnson, editor of the Disability Rag, a weekly magazine that is devoted to disability issues. “But it is also about showing you that though you are disabled you have power already. For people who feel they don't have any power, who are often dependent, that is such a liberation." The Denver-based group's style has drawn its share of criticism from other advocates for the disabled. These critics note that the group played little part in the negotiations that led to the passage of the Americans with Disabilities Act and that their methods had often antagonized allies in the stniggle. “I think they do get attention," said a Washington-based disabled advocate who asked not to be identified. “But that's true when they are playing to an audience that is not politically sawy. For people out in Middle America, sitting in front of the TV, seeing people in wheelchairs demonstrating is something new. But to folks in Washington who are used to sit-ins, it's passe." [Subheading] An Effective Weapon But leaders of Adapt, which originally stood for Americans Disabled for Accessible Public Transportation, say it is `groups` like theirs that push others to press forcefully ior expanded rights for the disabled. “l think that even for the people with disabilities who don't participate directly in Adapt, we give them heart," said Diane Coleman, an Adapt organizer from Tennessee. And even those who sometimes criticize Adapt acknowledge that it is an eiiective weapon. lt is a role Adapt readily takes on. "We make all the other `groups` seem real rational," said Mike Auberger, one of Adapt’s founders. The group was begun in I983 in Denver by people who worked to persuade the city to make all local buses accessible to people in wheelchairs. Over the next few years they held protests over the issue of accessible public transportation in Cincinnati, St. Louis, Phoenix; Detroit and Atlanta. In addition to picketing, the protesters often would lock their wheelchairs together in front of city buses or chain themselves to a bus’s bumper. Early on, Adapt made a prime target the American Public Transit Association, a group representing mass transit systems. The protesters disrupted meetings and harassed officials of the group. “You have to have a bad guy in political organizing, somebody you can go after," said Mr. Auberger. These days that role is filled by the nursing home industry and Louis W. Sullivan, Secretary of Health and Human Services. After Congress passed the Americans with Disabilities Act last year, requiring that all new buses be equipped with hydraulic lifts for people in wheelchairs, Adapt began protesting for Federal subsidies for personal attendants, individuals hired by those with physical impairments to help them with basic everyday needs. Adapt wants 25 percent of the more than $20 billion paid to nursing home operators under the Medicaid program to be diverted from nursing homes to help the disabled pay for personal attendants. Though many mainstream proponents of help for the disabled have endorsed the goal of government subsidies for attendants, the diversion of funds sought by Adapt is opposed by the American Health Care Association, the trade group for nursing homes, and by the Bush Administration. As a result, Adapt has spent the last few months harassing the nursing home association and “Mr. Sullivan. This spring they blocked his car during a visit to Chicago and heckled him in a speech in Washington. in August, a handful of Adapt members rolled their wheelchairs along side Mr. Sullivan and harangued him as he took part in a fitness walk on Martha's Vineyard. Whether such methods will achieve Adapt‘s stated goals is uncertain. But leaders of the group say that when they first began to put pressure on the public transportation industry, no one felt their methods would bear fruit. "You have to give complete and utter credit for that to Adapt," said Evan Kemp, Jr., the head of e Equal Employment Opportunity Commission.
ADAPT (682)
Orlando Sentinel Weds October 9, 1991 Photo by Joe Burbank/Sentinel: Elizabeth Dole standing at a podium smiling broadly, and beind her on a huge screen is a reversed picture of her smiling. Caption reads: Like Elizabeth Dole, ADAPT members had their say at civic center. Title: Protesters testify outside convention by Mary Brooks, of the Sentinel Staff Disabled activists talked of being beaten and coerced into abortion as they continued their protest Tuesday outside a convention of the nursing home industry. While about 100 members of ADAPT — Americans Disabled for Attendant Programs -— gave testimonials outside the Orange County Convention and Civic Center, 73 of their colleagues who had been arrested in protests Sunday and Monday were preparing to be released early from the Orange County Jail. Two of the protesters were released Monday night. The group has been demonstrating before the annual convention of the American Health Care Association, which represents nursing home operators. ADAPT members say they want a fourth of the $23 billion Medicaid is spending on nursing homes and other institutions to go toward programs so people can get the help they need at home. Some of the protesters — many disabled by cerebral palsy or auto wrecks -— related the degradation they said they experienced in health institutions. Perhaps the most moving story came from Theresa Monroe, 30, of Atlanta, who said she was coerced into having an abortion when she was five months pregnant. “I was 18 and I fell in love and got pregnant. They said the baby wouldn’t be ‘right’ and that I had to have an abortion. I didn’t know what an abortion was," said Monroe, who spent four years in an institution. The protesters rallied in front of the Peabody Hotel and the convention center on International Drive. By 7 p.m., all of the protesters had been released from jail. They had said they would not post bail that had been set at $1,000 apiece, and jail officials had said they would not be released until Friday. But attorneys for ADAPT reached an agreement with Judge Jose Rodriguez to release the protesters for time served, as long as they agreed not to try to bar the entrances of the convention. Also, those who could afford to must pay $100 within 90 days to help cover the costs of additional law enforcement. The day's convention activities started quietly with a speech by Elizabeth Dole, president of the American National Red Cross. Deputies had expected a conflict since Dole had refused to meet with ADAPT when she was U.S. Secretary of Transportation, but protesters did not arrive until after she finished. Dole told convention-goers that America’s graying population is prompting a new set of medical challenges, especially for people in need of long-term care.
ADAPT (641)
DISCLOSURE JULY-AUGUST I991 From Coast To Coast ADAPT Battles For Home Attendant Care by C.I. Zander Photo by Tom Olin: Two protesters in wheelchairs curl forward with arms raised to their faces as police or security tip them back on their back wheels. The person in the front (possibly Barb Guthrie) has a bumper sticker on the side of the chair that reads "I support my country." Capiton reads: ADAPT protestors being removed from HHS entrance in April action. “Almost everywhere we go, we meet somebody who has a friend or relative who's disabled — a brother, a cousin, a father or mother. That's why people support us. That's why they believe in what we are doing." Danny Saenz of ADAPT (American Disabled for Attendant Programs Today) was talking about the recent string of direct actions which has taken them from Baltimore to Washington to Dallas to Chicago and back to Washington again. ADAPT's primary issue: put Medicaid money into direct home attendant care of the disabled and get them out of nursing homes. ADAPT 's primary target: HHS Secretary Dr. Louis Sullivan, also known as “Lonesome Louie" and “Dr. No" because whatever ADAPT asks for, he refuses. “All we want is a meeting. . ." “All we want is a meeting," says Saenz, who is from the Austin, Texas ADAPT chapter. “But he always finds some excuse.” Tom Olin of Tennessee Adapt adds: "When we were in Washington recently, we thought that we had a meeting with Sullivan. But HHS went back on their word. So we closed down their building." Adapt members blocked the exits of the Health and Human Services building and forced guards to close it down for two hours on June ll. Police were reluctant to make arrests not only because it is bad publicity for them to be seen carrying off the disabled but also because most police stations do not have adequate care facilities. Tuesday, June 11, may go down as the biggest day in ADAPT's history for more reasons than the shutting down of HHS. Members began early at the American Health Care Association Convention where Sullivan was scheduled to speak. AHCA is a particularly galling organization to ADAPT because it is a lobbyist for the nursing home industry which receives billions in federal and state money for healthcare that ADAPT leaders describe as "inadequate," “wasteful” and “sometimes criminal." ADAPT estimates that over 1.5 million disabled could be moved from nursing homes to attendant home care if the Medicaid benefits were the same or comparable. Getting To Sullivan Although many ADAPTers got into the Hyatt Hotel where the AHCA convention was being held, security forces were able to head them off and lock the auditorium where Sullivan was scheduled to speak. All except for one person. She was able to sneak in and got down to the front of the room in her wheelchair. When Sullivan started his lecture, she also began speaking and gesturing to the audience, asking why Sullivan supported the agenda of nursing homes instead of the agenda of the disabled themselves. Several security police carted her off but ADAPT had, once again gotten Sullivan's attention. Eventually, Sullivan snuck out of the hotel, reputedly through the back kitchen entrance. But, even then, several ADAPT members caught up with him at his expensive limo and shouted their demands for a meeting at him as he drove away. Then ADAPT moved over to the HHS building where they blocked entrances and closed doum the building for a few hours. As National People's Action had done on their April visit, a few people got past the guards to some upper floor offices. But, of course, Sullivan was “not there." To cap off the day, ADAPT met with Senator Kennedy's staff to talk about the proposed health care bill. “We called for a meeting when we were here before in April," says Olin. “But they said they didn't know who we were. So we told them to just watch the news on TV and they’d see us.” What Kennedy’s staff and many other Washingtonians saw on TV then were another two direct actions which included blocking the HHS parking lot and the busy Baltimore intersection in front of the Social Security and Health Care Funding Administration building. ADAPT members said they wanted to illustrate what happens when they are locked in nursing homes. “It’s the same kind of feeling —— you can't leave when you want to. You need my permission," said Mike Auberger of Denver's Atlantis Community afterwards. “I’m sympathetic. . ." "I'm sympathetic to all these folks not able to get home, but this is a really minor inconvenience compared to the inconveniences suffered by those in nursing homes," said protester Nate Butler. A Washington Post photo showed ADAPT members lying down in front of police cars in a scene reminiscent of civil rights demonstrations of the 1960s. Some federal workers were irritated but many expressed sympathy for ADAPT’s views. Other ADAPT actions this spring included cornering Sullivan in Chicago on May 14 and, again in Dallas on May 22 at the President's Committee on Employment of People with Disabilities Conference. ln Dallas, according to the June issue of Incitement, ADAPT’s national newsletter: “(Sullivan) began his talk, and, slowly and silently, one by one, ADAPT members dropped to the floor and began crawling toward his podium, waving the proposed meeting dates in the air. Though he tried to ignore us, Sullivan stumbled over his words several times. in the end, a sea of bodies lay on the floor before him. . -" Sullivan's staff repeatedly says they won‘t meet with "radical" `groups`, but ADAPT leaders believe that this is just an excuse to avoid them. They note that Sullivan has plenty of time to meet with big money `groups` and lobbyists but that he ignores community-based `groups` whether they are "radical" or not. One of ADAPT's strongest arguments for reallocating Medicaid nursing home funds to a home attendant care system is financial. Leaders believe that, in the same way that health insurance administration costs eat up money that should go to the people who have the medical problems, nursing homes end up making large profits while the disabled suffer. Auberger says that nursing homes’ care costs are in the range of $30,000 to $60,000 a person a year but home care is in the $15,000-30,000 range. Auberger himself receives home care that averages about $2,000 a month. "Not only is it cost effective," he concludes, “it‘s the right to dignity and freedom of choice." The bottom line for ADAPT is the redirection of 25% of the $23 billion that Medicaid currently spends on nursing homes to community-based attendant services programs. While some states have adequate home care services, most do not. So ADAPT believes the primary change must come through the allotment of federal funds. “The nursing home industry is a billion-dollar industry — they give political contributions to politicians who protect their interests," says Lillibeth Navarro, an ADAPT member from California. “This is going to be a difficult struggle. But because our cause is right, because it touches practically everybody, we will prevail." For more information on ADAPT programs, call 303 733-9324 in Denver, or S12 4420252 in Austin, Texas.
ADAPT (706)
Chicago Tribune Tuesday, May 12, 1992 Title: State thwarts protest, so disabled switch site By Rob Karwath A threatened demonstration by wheelchair-bound protesters prompted an unprecedented show of force Monday at the 16-floor glass-and-steel State of Illinois Center. The demonstrators instead targeted federal offices several blocks south, leaving 3,000 state workers walking along barricaded corridors and past security checkpoints in the building at 100 W. Randolph St. Workers had to tell uniformed police where they were going. Security guards manned the elevators. A trip from an upper floor to a main-floor coffee shop became a half-hour journey. The preparations were made for a group that has become increasingly militant, with members at times chaining themselves to objects and forming chains of wheelchairs. After experiencing a day of the clampdown, most employees interviewed said they thought the state Department of Central Management Services, which runs the building, has overreacted. “It's ridiculous," said Peggy Craddieth, a secretary at the Illinois Pollution Control Board. “Even during Operation Desert Storm they weren’t this tight.” State officials said the tight security will continue all week, or at least until the protesters from Americans Disabled for Attendant Programs Today (ADAPT) leave town. The heavy security seemed out of place to those familiar with the idea behind the wide—open state building. Architect Helmut Jahn created the building to symbolize the openness of a properly run democracy. Jahn’s concept was former Gov. James Thompson's frequent retort to anyone who criticized the building as a poor use of space. “There’s a general discomfort all across the office about this,” said Rob Cushing, a lawyer in the lllinois attorney general‘s office. He said of the demonstrators, “We shouldn't have to go through all of this to deny them their right to protest.” Central Management Services officials said they never intended to create a problem with the extra security, which included calling all department police in on their days off and hiring l6 private security guards at a cost of about $2,000 a day. Instead, department spokeswoman Helen Adorjan said the state was simply trying to keep the building open after receiving a call from ADAPT warning that the group might try to block doors and elevators at the building this week. The group is protesting what it believes to be a lack of government funds for programs that allow disabled people to live at home and avoid nursing homes. ADAPT did block doorways and elevators Monday in at least one Loop building where federal offices are housed. Diane Coleman, an organizer in ADAPT, said Monday that the group went to 105 W. Adams, the Bankers Building, because it houses one of the regional offices of the Department of Health and Human Services. “There have been movements by `groups` like this before, but they were neglecting civil rights tactics—taking it to the streets,” she said. “And we'll do it until we win this issue. Six times the money goes to nursing homes and other institutions than to home and community-based services. We want 25 percent of that nursing home budget to go to home care." Many State of Illinois building workers said they were concerned that everyone entering the building was barred from the Easement and first-floor elevators, which were roped of and guarded by Central Management Services police officers. Yellow and black paper signs directed workers and patrons to an escalator that took them to the second floor where they were allowed to board the elevators. The escalator guaranteed that any wheechair-bound protesters wouldn‘t make it beyond the ground level. But some state workers said they were concerned that wheelchair-bound employees and disabled people with state business had to specially request that an elevator descend to the first floor and then convince building police that they were not protesters. “ls it fair for someone who shows up in a wheelchair to have to declare their business?" asked Alex Des Chenes, a contractor with the state Department of Public Health. “Have you seen the tapes of what the have done in other cities?” Anforjan said. “This group completely immobilizes activity. They need to be able to express themselves, but we need to keep the building operating." But, in an effort to prevent a disruption, workers said all of the extra security only ended up causing a disruption. The building's Lake Street entrance was open, but a large steel gate inside the revolving glass doors sealed it off to all but riders of the CTA subway trains below. A newsstand and a Chinese restaurant located inside the entrance were empty as most of their customers were forced to bypass them. Even some of the Central Management Services police running the elevators said they disagreed with the security plan and would have tried less-disruptive measures. “Everybody’s complaining about this," said one officer, shaking his head as he punched elevator buttons. “It‘s crazy." Tribune photo by David Klobucar: A mass of people are clustered in one big not. ADAPT protesters in wheelchairs are on the street and people in suits and similar work outfits are making their way down the log jammed sidewalk, up to the police barricades. A woman in a dress is stepping over and through two of the protesters so she can continue in the street. Between the street and the sidewalk a metal police barricade is partially visible, and two uniformed officers appear to be casually trying to hold the barricades up. Caption reads: Protesters from Americans Disabled for Attendant Programs Today block an entrance to the U.S. Health and Human Services Department on West Adams Street Monday.
ADAPT (720)
Chicago Defender, Monday, May I I, 1992 Title: Sullivan speaks, get heckled at UIC by Dobie Holland Screaming slogans such as “You're killing us," a group of physically-disabled persons disrupted the commencement speech of Health and Human Services (HHS) Secretary Dr. Louis W. Sullivan Sunday at the University of Illinois-Chicago. Security personnel removed the partially wheelchair-bound group from the UIC Pavilion and escorted them outside, where they joined 500 other protesters from 25 states who picketed outside during the ceremonies. John Gladstone, a Americans Disabled for Attendant Programs Today (ADAPT) member from Philadelphia, explained the group's militant tactics: “These are radical times. You can only write so many letters. l wrote so many letters to Mr. Sullivan that I had writer's cramp." ADAPT, a national Civil Rights agency, is concerned with Bush Administration policies that have resulted in widespread budget cuts in state Medicaid funding. The reductions, ADAPT members say, will force disabled people to live in nursing homes. The group is calling for 25 percent of Medicaid funds to be ear-marked for community-based nursing centers, which will enable many disabled citizens to live independently from nursing homes. “They're warehousing us (in nursing homes)," Gladstone said. “I've lived in nursing homes for 14 years and I have seen some of the brutality that goes on there." Gladstone said nursing homes are guilty of inhumane treatment and neglect of patients who are unable to defend themselves. The environment in nursing homes, Gladstone added, is not conducive to leading a normal adult lifestyle. "When you live in these nursing home facilities, they take your life away. When I first went into a nursing home, I was in a walker but they wouldn't let me walk and they put me in a wheelchair — now I can't walk," he said. Sullivan, who was under tight security, was not available for comment after the ceremonies. The HHS secretary delivered his address despite the nterruptions and emphasized a need for sensitivity and caring toward all humans.
ADAPT (673)
Times Herald Record, Friday October 11, 1991 p. 36 Title: Heros for the handicapped? Militant group for disabled revels in its role of agitator The New York Times [compare with ADAPT 674 - the NYT clipping] ORLANDO. Fla. — The melee at a meeting of nursing home representatives here was in many ways a typical demonstration by members of Adapt. After smashing their wheelchairs into police barricades and blocking a hotel entrance, 73 members were arrested, creating front page headlines and a successful day’s work for the militant advocacy group for the disabled. The aim of the action last Sunday at the Peabody Hotel in this resort city was to locus attention on the organization's call to divert federal funds from nursing homes in a form of in-home care. But the means the group uses, like Sunday’s chaotic demonstration, has exasperated its allies often as much its adversaries. But even those who criticize Adapt acknowledge that the searing image of people with physical limitations engaging in civil disobedience often succeed in shattering stereo-types of how meek and pliant "cripples" are supposed to act - stereotypes often held by many disabled people themselves. “Adapt is about the issue," said Mary Johnson, editor of the Disability Rag, a weekly magazine that is devoted to disability issues. "But it is also about showing you that though you are disabled you have power already. For people who feel they don't have any power, who are often dependent, that is such a liberation." [Subheading] Antagonizing allies The Denver-based group’s style has drawn its share of criticism from other advocates for the disabled. These critics note that the group played little part in the negotiations thai led to the passage of the Americans with Disabilities Act and that their methods have often antagonized allies in the struggle. “l think they do get attention," said a Washington-based disabled advocate who asked not to be identified. "But that‘s true when they are playing to an audience that is not politically savy. For people out in Middle America, sitting in front of the TV, seeing people in wheelchairs demonstrating is something new. But to folks in Washington who are used to sit-ins, it's passe." Leaders of Adapt, which originally stood for Americans Disabled for Accessible Public Transportation, say it is `groups` like theirs that push others to press forcefully for expanded rights for the disabled. “I think that even for the people with disabilities who don't participate directly in Adapt, we give them heart," said Diane Coleman, an Adapt organizer from Tennessee. And even those who sometimes criticize Adapt acknowledge that it is an effective weapon. It is a role Adapt readily takes on. “We make all the other `groups` seem real rational," said Mike Auberger, one of Adapt's founders and advocate who helped persuade the city to make all local buses accessible to people in wheelchairs. [Subheading] Drastic means to a questionable end Over the next few years they held protests over the issue of accessible public transportation in Cincinnati, ST Louis, Phoenix, Detroit and Atlanta. In addition to picketing, the protesters often would lock their wheelchairs together in front of city buses or chain themselves to a bus's bumper. Early on, Adapt made a prime target the American Public Transit Association, a group representing mass transit systems. The disabled advocates disrupted meetings and harassed officials of the group. "You have to have a bad guy in political organizing, somebody you can go after," said Auberger. These days that role is filled by the nursing home industry and Louis W. Sullivan, secretary of Health and Human Services. After Congress passed the Americans with Disabilities Act last year, requiring that all new buses be equipped with hydraulic lifts for people in wheelchairs, Adapt began protesting for federal subsidies for personal attendants, individuals hired by those with physical impairments to help them with basic everyday needs. Adapt wants 25 percent of the more than $20 billion paid to nursing home operators under the Medicaid program to he diverted from nursing homes to help the disabled pay for personal attendants. Though many mainstream advocates for the disabled have endorsed the goal of government subsidies for attendants, the diversion of funds sought by Adapt is opposed by the American Health Care Association, the trade group for nursing homes, and by the Bush administration. As a result, Adapt has spent the last few months harassing the nursing home association and Sullivan. This spring they blocked his car during a visit to Chicago and heckled him during a speech in Washington. in August, a handful of Adapt members rolled their wheelchairs along side Sullivan and haranged him as he participated in a fitness walk on Martha's Vineyard. Whether such methods will achieve Adapt’s stated goals is uncertain. But leaders of the group say that when they first began to put pressure on the public transportation industry, no one felt their methods would bear fruit. "You have to give complete and utter credit for that to Adapt," said Evan Kemp. Jr., the head at the Equal Employment Opportunity Commission.
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Chicago Defender, Tuesday May 12, 1992 Sengstacke Newspaper vol. LXXXVII- No.6 35 cents, 40 cents outside Chicago and suburbs Title: Disabled group blockades street by Dobie Holland Likening the plight of the disabled to that of the Civil Rights movement, Americans Disabled for Attendant Programs Today (ADAPT) staged a blockade of downtown streets Monday in an effort to gain an audience with Health and Human Services Director Dr. Louis W. Sullivan. Sullivan, however, refused to meet with the group and 10 ADAPT members were arrested on criminal trespassing charges according to HHS and police officials. “Our ghettos are the nursing homes and facilities for the mentally retarded. Society doesn't want to recognize us. They want to put us in these ghettos," said ADAPT coordinator Bob Kafka of Austin, Texas. Hundreds of ADAPT members rolled their wheelchairs and formed a human chain in the middle of Clark and Adams streets and swamed HHS’ regional offices to demand a meeting with Sullivan. The group wants 25 percent of Medicaid funds channeled to community-based nursing centers, which would permit many disabled citizens to live at home, ADAPT representatives said. "The American Disabilities Act is very similar to the Civil Rights Act of 1964," Kafka said. “Very few people want to talk about the discrimination against the disabled. "They don't want to consider us as people and they just want to put us all in nursing homes,” Kafka continued. “Most people think a nursing home is a nice place for little old ladies...well, it's not.” Kafka, who is wheelchair-bound, said he has never been in an institution but recent political policies of the Bush Administration are making it possible. Title: ADAPT blocks street The American Health Care Association, a formidable nursing lobby, and the American Medical Association are also responsible, Kafka noted. Kafka said nursing homes have become big businesses and doctors have become owners of nursing homes, which motivated both `groups` to, support the institutionalization of the disabled. The group has been attempting to meet with Sullivan for more than two years, Kafka said. with all of their requests being rejected. A spokesperson for HHS told the group that Sullivan was contacted but said his schedule would not permit him to meet with them. On Sunday, a small band of disabled activists disrupted Sullivan's commencement address at the Univelsity of Illinois at Chicago, although the secretary did not acknowledge the ADAPT members. Guests to the gaduation day ceremonis filed past police barricades, while the activists, many in wheelchairs, circled outside the doors of the UIC Pavillion, chanting “We want Sullivan.” The demonstrators made same demands. urging the Bush Administration to redirect 25 percent of Medicaid funds currently budgeted for nursing homes and other institutions to set up community-based programs to allow the disabled to live on their own. An estimated 1.6 million disabled people now live in nursing homes. which Kafka said is a more expensive and less humane option than helping the disabled live independently.
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[This clipping has 2 articles in it. Article 2 starts in the left top column. Article 1 continued from ADAPT 691 and the text of that article in included with ADAPT 691 for easier reading.] ARTICLE 2 Title: Health care activism on the rise Title: Special-interest patient `groups` are multiplying while the amount of money available is decreasing. By Delthia Ricks, of the Sentinel staff The dilemmas of increasing numbers of special-interest patient `groups` and a decreasing supply of health care dollars are spawning a growing militant movement in medical care. The opening of the American Health Care Association’s annual meeting in Orlando has drawn a spotlight to the activism increasingly associated with national health care issues. From AIDS to breast cancer to rare diseases, patients are organizing and resorting to demonstrations and protests — often violent ones — to express their views. Members of ADAPT — American Disabled for Attendant Programs Today — have formed human barricades, chained themselves by the neck to buildings, tacked up posters against the Health and Human Services secretary, and hurled themselves from wheelchairs. The group stages many of these demonstrations at AHCA's meetings, which ADAPT routinely follows around the country. The non-profit AHCA, headquartered in Washington, is a key lobbying organization for nursing homes and other long-term health care facilities, representing about 10,000 of them nationwide. At issue for both `groups` is the way the federal government spends it health care money. Nursing home executives would like to see long-term health care policies reformed. ADAPT members want a share of the federal dollars going to nursing homes now. “They're not looking at the real issue, which is long-term health care financing," Linda Keegan, an AHCA vice president said of ADAPT. “One of the biggest issues we face today is long-term health care financing reform." Among the issues her organization will address throughout the week will be ways in which the government can devise a long-term health care policy and meet the needs of elderly and disabled Americans, she said. But ADAPT's members see billions of dollars currently flowing into long-term health care facilities and would like to have 25 percent. This way, they say, the disabled would be kept out of special care homes and living independently. ADAPT sees using money allocated through the state and federally administered Medicaid program for in-home health care aides. The aides would be paid to cook, drive and do chores for people who are blind, have lost the use of their limbs, or suffer other disabilities. “The issue is the right to independent living," said Ida Unsain, director of home health care at ADAPT‘s Denver headquarters. “People with disabilities are being admitted into care homes. Some of these individuals don't belong there and could be taken care of through home health. The current structure of reimbursement is slated toward care home industries, and what ADAPT is stating is that a percentage of that budget be allocated to states for independent care for the disabled." In 1989, the most recent year federal figures are available, the federal govemment paid $23 billion in nursing home costs through the Medicaid system. Another $23 billion was paid by a combination of family assets, Veterans Administration benefits and private insurance to meet additional nuising home costs. In Florida, nearly $850 million is paid to nursing homes from a Medicaid budget of about $4 billion, By 2020, federal officials estimate Washington's contribution to nursing homes will be $100 billion if the nation maintains the current Medicaid payment system. Lack of a long-term health care policy that will carry the nation into the 21st century has been as big a problem for established `groups`, such the AHCA, as it has been for patients. President Bush repeatedly has said that a long-term health care policy is an administration goal, but a plan that meets the needs of both the elderly and disabled has yet to be approved. ADAPT's Unsain said her group does not want to wait for the administration to produce a new long-term health care policy. Money may not be allocated for them in a new health-care pie, she said, and that's why ADAPT members are seeking money now. “The violence is part of the outcome," Unsain said. “lt's what happens when we try to express our views. It's not what we're all about." She attributes passage of last year's federal Disability Act mandating increased access for the disabled on public transportation systems, and in buildings, to ADAPT's militancy throughout the 1980s. Keegan of the nursing home association said ADAPT members, who stage protests every time the AHCA meets, are not concerned about changing the way the government finances long-term care. “I think the reason they follow us is because they are looking for attention, and the method they've chosen to got mention is confrontation and disruption.“ she said.
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The Washington Post, Metro Section 5/6/93 [Headline] The Disabled Plan to Show Washington They're Enabled—and Entitled By Liz Spayd, Washington Post Staff Writer Michael Auberger has shackled his wheelchair to city buses in Dallas. He has barricaded hotel entrances in San Francisco, and he has thrown himself in front of federal buildings, government officials, even oncoming traffic, all to draw attention to the rights of the disabled. This weekend, Auberger and hundreds of other activists from across the country plan to converge on Washington for a three-day blitz of demonstrations and marches in what promises to be the largest protest in history for people with disabilities. “We've written the letters, made the phone calls, had the meetings, and the bottom line is we're still being treated like second-class citizens." said Auberger, co-founder of ADAPT, an activist group that is spearheading the activities. “lf those channels don't work, you take to the streets." Organizers say the immediate purpose of the demonstrations is to demand that the federal government commit more money to helping disabled people live at home, instead of in institutions. At the same time, they want to continue the larger campaign for equal rights that produced the Americans With Disabilities Act, landmark legislation that went into effect last year. A march to the White House and a memorial service for Wade Blank, who was a leader in the movement, are expected to draw the largest crowds, both on Sunday. What may draw the most attention, however, are demonstrations on Monday and Tuesday, when protesters are expected to disrupt Washington with human blockades of buildings and streets. The exact places and times for those actions aren't being disclosed, but the targets could include public buildings, such as the Capitol and the White House, and some federal agencies. “We like to preserve the element of surprise," Auberger said. ADAPT — an acronym for American Disabled for Attendant Programs Today — has been staging protests every six months for more than a decade to fight what it says is the inhumane treatment of the disabled at nursing homes and other institutions. The group said it hopes to redirect 25 percent of the $23 billion in Medicaid funds currently budgeted for nursing homes into programs that would enable those with disabilities to have attendants in their homes. Currently, each state sets policy for how much Medicaid money will go toward attendant care programs, but there is no national policy. [Subheading] Disabled Activists Plan 3-Day Protest The strike on Washington is timed to pressure the Clinton administration into focusing on people with disabilities as part of its package of health care revisions, due out soon, activists said. "Clinton has talked about change and says he wants people to be able to live at home, but what we're looking for is more than just words," said Bob Kafka, an ADAPT organizer in Texas who plans to bring a caravan of about 50 people to Washington. In the past, ADAPT activists have drawn attention to their cause by employing sometimes sensational tactics. They have done belly crawls across hotel lobbies in San Francisco, clawing at passersby. They have taken sledgehammers to street curbs in Denver to protest sidewalks that were inaccessible to wheelchair users. And they have swarmed and blockaded buildings in virtually every major U.S. city; a demonstration in Chicago last spring forced the evacuation of more than 1,000 American Medical Association workers and created disruptions in a half-dozen other downtown facilities. Though such events have attracted media attention, some individuals and `groups` sympathetic to ADAPT’s cause question how effective they are in achieving the larger goal of attaining more money for in-home care. “We're sympathetic to their concerns, but we think the tactics they use bring attention to ADAPT and not the problem," said Claudia Askew, a spokeswoman for the American Health Care Association, which represents 11,000 nursing homes and is a frequent target of ADAPT protests. Disabled people also are somewhat splintered over whether ADAPT's approach helps or hurts their cause. “There are people with disabilities that think ADAPT is a little extreme," said Patrick McCurdy, vice president of Marylanders for Adequate Attendant Care, a group that generally relies on peaceful protests and negotiations to lobby for in-home care. McCurdy did defend ADAPT's technique as a necessary part of an overall approach to force change in a society that he said has long ignored the rights of disabled people. Few spoke up for those rights until recently, but the Americans With Disabilities Act provided new protections to disabled people and helped forge a civil rights movement among the 43 million people with physical or mental impairments. “A great byproduct of the [disabilities act] is the new sense of confidence and empowerment it has instilled within the disability community," said Justin Dart, chairman of the President's Committee on Employment of People with Disabilities, a small federal agency. “It's generated an enormous infusion of dignity and pride." Gregory Dougan, a District resident, said the renewed sense of hope is one reason he will take part in Sunday's march. Dougan, who was born with cerebral palsy and uses crutches, said he is fortunate to be able to live at home. But several of his friends live in institutions because they can't get the in-home care they need. And on Sunday, Dougan said, he will be thinking of them. "I'll be tired at the end of the day," he said, "but my crutches and me are going to that march."
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The Orlando Sentinel, Thursday October 10, 1991 the best newspaper in Florida PHOTO by Phelan M Ebenhack/Sentinel: Three people (left to right: Frank Lozano, Bunnie Andrews? and Sue Davis) are standing in front of a wall. On the wall a cross with "Nursing Homes Kill" written on it is partially visable, as is the ADAPT flag (an American Flag with the stars arranged to form the wheelchair/access logo). The three are lifting up an old fashioned folding E & J manual wheelchair to hang it on the cross. Frank, who is blind and wears a headband and T-shirt with ADAPT on them, has his hand raised. Caption reads: Frank Lozano and Bunnie Andrews, both of Colorado Springs, and Sue Davis of Louisville, Ky., chain a wheelchair to a cross marked ‘Nursing Homes Kill.‘ Title: Disabled saw their message on many faces by Sharon McBreen of the Sentinel Staff Protesters say they made their message clear this week after 250 activists in wheelchairs converged on Orlando. “It’s almost as though they never felt it before we've gotten in their faces,” Diane Coleman said. “You can feel the impact of that. You can see it in their eyes." The members of ADAPT — Americans Disabled for Attendant Programs Today — carried a message to the American Health Care Association, which attracted 3,500 delegates to a convention this week at the Peabody Hotel. ADAPT membels want an alternative to nursing home care. And they want to live at home. During the convention, which ends today, ADAPT members tried to block the Peabody’s doors with their bodies and wheelchairs. Police arrested 75 protesters on trespassing charges. The group wants a fourth of the $23 billion Medicaid spends on nursing homes and other institutions transferred to at-home care. “We need to reach the `rank`-and-file members of AHCA and the American public," Coleman of Tennessee said at a Wednesday news conference. At least one convention delegate said he wanted to hear more, she said. Nursing home association representatives have asked ADAPT members to meet with them. But what the activists really want is a national policy giving the disabled a choice, said Mark Johnson of Atlanta. Johnson said the nursing home industry doesn't want to allow the disabled to live at home, because it would lose out on the Medicaid money they receive. Wednesday night's news conference had to be moved from the front of the Orange County Convention and Civic Center to a room in the Clarion Plaza Hotel because police threatened to arrest them, one of the organizers said. Orange County sheriff's spokesman Doug Sarubbi denied that. He said an agreement reached with the judge who released the protesters from jail prohibited them from trespassing on Peabody Hotel property. Sarubbi said the Sheriff's Office was tabulating the time and money — estimated at least $100,000 —- it spent on the protest.
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Protest by disabled ends Demands not met, group plans new try today By Ben Smith Ill Staff writer Handicapped protesters who blockaded an Atlanta college administration building and a health-care facility in Decatur ended their siege of both buildings Tuesday without having their demands met. But group leaders of American Disabled for Attendant Programs Today (ADAPT) called their protests successful and planned to carry their demonstrations for increased funding for home care for the disabled to the Richard B. Russell Federal Building today. The protesters are demanding that the federal government redirect 25 percent of funding for the disabled from nursing homes to home care. They argue that 250,000 disabled people are being held in nursing homes against their will, and that this shift in funding is more humane and cost-efficient. “The ghetto in Soweto is no different than a nursing home,” said Michael Auberger, an ADAPT co-founder. “You're locked in there. You don't have the freedom to leave. You don't have a choice of what you eat, what time you go to bed or what time you get up.” The activists ended their occupation of a Morehouse College administration building Tuesday, leaving with what they said was a statement from the college saying it sympathized with the group's concerns. The disabled activists, who occupied the building for a day and a half, had demanded that Morehouse President Leroy Keith arrange a meeting between the demonstrators and Secretary of Health and Human Services Louis Sullivan. Dr. Keith refused. The group on Tuesday tried to enlist the support of the Georgia Health Care Association (GHCA). Nearly 100 protesters blocked the entrances and driveway of the GHCA office, demanding that officials agree to support their cause. While GHCA executive vice president Fred Watson agreed to send a copy of the group’s demands to the American Health Association, with which the Georgia organization is affiliated, he refused to sign an ADAPT letter supporting the redirection of federal funds. “Allocating 25 percent from nursing homes to their cause would only hurt the people who are in nursing homes now,” Mr. Watson said. The protest lasted nearly five hours, but the group's blockade was broken by police. The protesters contend that Georgia is one of the worst states in caring for disabled people and offers no state-funded home care or matching supplements for federal disability benefits.