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Domov / Albumi / Oznaka home care 7
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Chicago Defender, Thursday May 14, 1992 ADAPT shuts down Illinois center ADAPT protests budget cuts by Dobie Holland Hundreds of wheelchair-bound demonstrators shut down the State of Illinois Center after they converged on the building Wednesday to protest the impending budget cuts in the Home care program for the disabled. The shut down occurred after members of the Americans Disabled for Attendant Programs Today (ADAPT) were denied access to the governor’s 16th floor offices. The group retaliated with a blockade of escalators and elevators. Although ADAPT members faced barricades outside the center, once they had stormed inside, security police operating the elevators refused to allow most of the wheelchair-bound protesters upstairs. Mike Ervin, one of the Chicago coordinators for ADAPT, said they had no choice but to block the paths of pedestrians in the building by setting up wheelchair blockades of escalators and elevators in the center. They demanded a meeting with the governor. Gov. Jim Edgar was in Springfield but it was not clear by the Chicago Defender's press deadline if he would meet with the group. Gary Mack, a spokesman for the governor, said the State of Illinois has one the most “liberal programs" in the country for the disabled and cuts are being made “across the board” in the wake of a severe budget deficit. Mack said the program will lose $3 million — “a small amount" — a reduction from $68 million to $65 million. Mack added the governor was not responsible for denying the protesters access to the elevators. "They (security) have been trying to keep this place operating," Mack said. “But as l understand it, we are letting some people up here (on the 16th floor). One oi those people allowed up in the elevators to sit in the governor’s 16th floor lobby was Paulette Patterson. Patterson, who was not a member of the protest group, said she was denied access to the elevators on Tuesday when she came to the building to eat breakfast. Patterson, 35, of Chicago, said she has filed a discrimination suit against the state because she was not allowed free passage through the building “simply because I was in a wheelchair. “l was not with this group before,” she said. “But I am a member now." Illinois Attorney General Roland Burris, commenting on the conflict between security personnel and protesters, said during a Tuesday press conference: “My job is not to judge anybody but to make sure no one's rights have been violated."
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Title: Protesters hit Illinois center in wheelchairs By Neil Steinberg, Staff Writer Disabled protesters from around the country used their wheelchairs to block access to the State of Illinois Center on Wednesday, the fourth day in their call for state funds to be directed toward home care instead of nursing homes. “The people united will never be defeated," chanted about 200 protesters, blocking elevators, escalators and stairways at the building. “No more cuts.” There was no violence and no arrests, though protesters did scuffle briefly with police outside the governor's office, where they demanded a meeting with Gov. Edgar, who is in Springfield. Government business slowed to a near halt as state workers crowded the rings of balconies at the center, watching the chanting wheelchair activists on the main floor. Although employees could move among the upper floors by using the unblocked exterior staircases, it was often difficult to reach the ground floor. Two employees from the lieutenant governor's office found themselves trapped in a fire stairway when their attempt to take a garage elevator out of the building failed. “They captured the car elevator,” a maintenance man told the two young workers. Swearing, they tried another route. “This is starting to inconvenience me," one said. Tourists and school `groups` visiting the building got a surprise introduction to special-interest advocacy. An architecture club from Reading, Pa., here to appreciate the 16-story curving edifice designed by Helmut Jahn, stopped to reprimand protesters for keeping them off the elevators. State workers, some of whom literally climbed over the wheelchairs of protesters, also put in a word or two. “You are a lawless mob,“ a worker for the Department of Rehabilitative Services told a group of protesters blocking the elevator. “They have a right to protest," the worker said. “They don’t have a right to interfere with our lives." PHOTO by SUN-TIMES /Al Podgorski: A man walks up escalator steps with another man in his arms, as two other men stand on the side of the steps. Below on the floor level, a mass of people in wheelchairs, and a few standing, crowd the entire rest of the scene. Some are wearing ADAPT t-shirts. A security guard stands at the bottom of the escalator to one side. Caption: Joe Potter of Denver carries a men who usually uses a wheelchair up a stopped escalator at the State of Illinois Center on Wednesday. The protest by disabled activists was the fourth in four days.
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Chicago Tribune Tribune photo by Carl Wagne: A march of ADAPT through the streets of Chicago. In front, left to right: a man in a red Chicago ADAPT "ADAPT or Perish T-shirt with a picture of man evolving from monkey to ape to man to wheelchair user, a man with no legs (Jerry Eubanks) in a manual chair chanting and holding a poster that reads "Free Our People" and being pushed by a man (Mark Pasquesi), a woman (Paulette Patterson) holds a bullhorn in front of her face, a man in a fishing hat (Bob Kafka) and yellow ADAPT shirt with a sign that reads "Attendant Services NOW!!". Behind the first man is a nab with a head pointer being pushed by a man (Tim Wheat) in a purple ADAPT shirt. Behind Paulette is a man in a suit in a wheelchair and beside him another man (possibly Michael Champion) and behind them a woman (Cassie James) in a power chair, and beside her a woman in a red shirt. As the line goes back it becomes less clear to distinguish people. Title: Disabled protest funds allocation Members of a disabled rights group begin a march from the Bismark Hotel to the regional offices of the Department of Health and Human Services at 105 W. Adams St. Monday to attempt to talk with representatives. The demonstrators, from the group American Disabled for Accessible Public Transit [sic](ADAPT), were protesting to have more money allocated for home care, rather than nursing home care. ADAPT wants the govemment to institute a policy to fund community-based attendant service allowing disabled people to stay home.
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[This clipping has 2 articles in it. Article 2 starts in the left top column. Article 1 continued from ADAPT 691 and the text of that article in included with ADAPT 691 for easier reading.] ARTICLE 2 Title: Health care activism on the rise Title: Special-interest patient `groups` are multiplying while the amount of money available is decreasing. By Delthia Ricks, of the Sentinel staff The dilemmas of increasing numbers of special-interest patient `groups` and a decreasing supply of health care dollars are spawning a growing militant movement in medical care. The opening of the American Health Care Association’s annual meeting in Orlando has drawn a spotlight to the activism increasingly associated with national health care issues. From AIDS to breast cancer to rare diseases, patients are organizing and resorting to demonstrations and protests — often violent ones — to express their views. Members of ADAPT — American Disabled for Attendant Programs Today — have formed human barricades, chained themselves by the neck to buildings, tacked up posters against the Health and Human Services secretary, and hurled themselves from wheelchairs. The group stages many of these demonstrations at AHCA's meetings, which ADAPT routinely follows around the country. The non-profit AHCA, headquartered in Washington, is a key lobbying organization for nursing homes and other long-term health care facilities, representing about 10,000 of them nationwide. At issue for both `groups` is the way the federal government spends it health care money. Nursing home executives would like to see long-term health care policies reformed. ADAPT members want a share of the federal dollars going to nursing homes now. “They're not looking at the real issue, which is long-term health care financing," Linda Keegan, an AHCA vice president said of ADAPT. “One of the biggest issues we face today is long-term health care financing reform." Among the issues her organization will address throughout the week will be ways in which the government can devise a long-term health care policy and meet the needs of elderly and disabled Americans, she said. But ADAPT's members see billions of dollars currently flowing into long-term health care facilities and would like to have 25 percent. This way, they say, the disabled would be kept out of special care homes and living independently. ADAPT sees using money allocated through the state and federally administered Medicaid program for in-home health care aides. The aides would be paid to cook, drive and do chores for people who are blind, have lost the use of their limbs, or suffer other disabilities. “The issue is the right to independent living," said Ida Unsain, director of home health care at ADAPT‘s Denver headquarters. “People with disabilities are being admitted into care homes. Some of these individuals don't belong there and could be taken care of through home health. The current structure of reimbursement is slated toward care home industries, and what ADAPT is stating is that a percentage of that budget be allocated to states for independent care for the disabled." In 1989, the most recent year federal figures are available, the federal govemment paid $23 billion in nursing home costs through the Medicaid system. Another $23 billion was paid by a combination of family assets, Veterans Administration benefits and private insurance to meet additional nuising home costs. In Florida, nearly $850 million is paid to nursing homes from a Medicaid budget of about $4 billion, By 2020, federal officials estimate Washington's contribution to nursing homes will be $100 billion if the nation maintains the current Medicaid payment system. Lack of a long-term health care policy that will carry the nation into the 21st century has been as big a problem for established `groups`, such the AHCA, as it has been for patients. President Bush repeatedly has said that a long-term health care policy is an administration goal, but a plan that meets the needs of both the elderly and disabled has yet to be approved. ADAPT's Unsain said her group does not want to wait for the administration to produce a new long-term health care policy. Money may not be allocated for them in a new health-care pie, she said, and that's why ADAPT members are seeking money now. “The violence is part of the outcome," Unsain said. “lt's what happens when we try to express our views. It's not what we're all about." She attributes passage of last year's federal Disability Act mandating increased access for the disabled on public transportation systems, and in buildings, to ADAPT's militancy throughout the 1980s. Keegan of the nursing home association said ADAPT members, who stage protests every time the AHCA meets, are not concerned about changing the way the government finances long-term care. “I think the reason they follow us is because they are looking for attention, and the method they've chosen to got mention is confrontation and disruption.“ she said.
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The Denver Post 2/28/1975 (Handwritten note at top of the page: Hey Bar - Congratulations! What's your projected involvement in it?) [Headline] Cooperative Project Disabled to Get Apartments By Sharon Sherman, Denver Post Staff Writer Fourteen young disabled persons are expected to move from nursing homes into apartments of their own within three months as part of a cooperative project paid for by city, state and federal funds. The young people would rent at a reduced rate renovated apartments in the Las Casitas Homes, at 11th Ave. and Federal B1vd., operated by the Denver Housing Authority. They would receive medical, rehabilitative and counseling services from community agencies. The project, named the Atlantis Community Early Action Program, will be funded through the Denver Mayor's Commission on the Disabled. It was designed by members of Atlantis Community, Inc., a committee of disabled and able-bodied persons working to create a planned community for the young physically handicapped. "I don't think this is the final answer (to problems of the young disabled in nursing homes), but it's a beginning with good possibilities,” said Dr. Parnell McLaughlin, director of the Colorado Division of Rehabilitation, through which the money for the project will come. The early-action program is expected to cost $16,417 initially. A little more than $3,000 of that has already been committed by Dr. Henry A. Foley, director of the Colorado Depart Social Services. That money will make it possible for McLaughlin to tap unused federal matching funds available to Colorado for rehabilitation projects. "We're still about $400 short, but I think we can work that out,” McLaughlin said. Las Casitas was chosen for the early-action program because it is built on relatively flat terrain, with some open space available, has access to bus service and is near the Westside Neighborhood Health Center. The aim of the program, according to the written proposal, is “to offer a normal way of life to the severely disabled.” In addition to rent subsidy, the project would provide residents with a program coordinator and home-care attendants who will see that medical, education, transportation and other services are available. Residents will receive the attendant care needed and will be billed only for the actual hours of service they receive. [Subheading] SCREENING PROCESS Those persons renting the units will be selected by a screening committee of disabled persons from Atlantis Community, Inc. The screening process will include a written application, supplying background, medical and financial information, and an interview. If the Atlantis Community is achieved, the units at Las Casitas would become “satellite" housing for the community.
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Disabled occupy Morehouse office ATLANTA (UPI) — About 60 wheelchair-bound protesters occupied the Morehouse College president’s office Monday, demanding a meeting with Health and Human Services Secretary Louis Sullivan. The group, American Disabled for Attendant Programs Today, or ADAPT, targeted the predominantly Black college for the demonstration because Sullivan is a former president of the Morehouse School of Medicine. The disabled protesters hoped Morehouse officials would use their influence to arrange a meeting with Sullivan. Morehouse spokesman Robert Bolton said the college’s president was trying to decide on a response to the situation, and was discussing what to do with Health and Human Services officials. ADAPT wants Sullivan to redirect 25 percent of Medicaid’s $17.5 billion nursing home budget to programs that would provide home care for the disabled. “People commit suicide, they die in nursing homes because they don’t have attendant care,”' said Michael Auberger, an organizer of the demonstration. Auberger said ADAPT was not asking for more money. Instead, the group wants funds reallocated to community programs, so disabled people can live at home with assistance. “We’re not talking about nurses,” said Auberger, who is wheelchair- bound. “Typically, most disabled people aren’t sick. For instance, I mostly just need help getting dressed and getting in my(wheelchair). “A national attendant service program would allow people to conceivably become employed when they otherwise wouldn’t" he said. Auberger said ADAPT sent a letter to Sullivan in July requesting a meeting, but had received no response. Dozens of protesters have come to Atlanta from 22 states and as far away as California for a week of demonstrations to dramatize the plight of the disabled.
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Edition USA/Colorado ADAPT seeks home care for all by Kerri S. Smith A national disabled persons’ advocacy organization based in Denver has launched a campaign aimed at moving people from nursing homes to home care. American Disabled for Attendant Programs Today (ADAPT) has at short-term goal: to re-direct 25 percent on the government's annual nursing home care budget. That money—estimated at $5.5 billion federal money and $5.5 billion from state coffers-would fund a national home care program instead. Under the ADAPT proposal, nursing home residents whose care is covered by Medicare or Medicaid could live at home. The government would pay home are attendants to care for them, rather than paying the facility. ADAPT spokesperson Mike Auberger said the group seeks “the ultimate demise of the nursing home system," and contends that paying an attendant to provide home care for a person usually costs less than nursing home care. In theory, the ADAPT plan would spend government money more efficiently-the same money would be used to care for more people who need assistance. The government is not enthusiastic about the idea, and a local nursing home industry spokesperson said ADAPT's demands are unrealistic. Auberger said Health and Human Services secretary Louis Sullivan declined to meet with ADAPT representatives. "We've been going back and forth with them, and the outcome is he doesn't meet with radical groups," Auberger said. And Arlene Linton, executive director of the Colorado Health Care Association (CHCA), said moving nursing home residents out of facilities “would isolate many of them from the community. “They'd also be without the 24-hour-care and rehabilitative services provided in nursing homes," Linton said. CHCA is the local branch of the American Health Care Association, which represents the nursing home industry. Linton added that ADAPT "is talking dollars, not people. Some residents have outlived their family and friends, and need the support a nursing home offers." A national campaign to publicize ADAPT's proposal began Jan. 15. Members demonstrated at government offices (including Health Care Financing Administration offices) and nursing homes in 24 cities. Auberger said media coverage was minimal, due to the Persian Gulf Crisis. Locally, ADAPT representatives demonstrated in Lakewood at Bethany Care Center. In the mid-'70s, the facility was operated by different owners and was known as Heritage House. Conditions at that time sparked a 13-year lawsuit over nursing home residents’ rights. The Federal Omnibus Reconciliation Act (OBRA) of 1988 also addressed quality of life issues for nursing home residents. The bill became effective Oct. 1, 1990. ln 1974, former Heritage House residents joined with Denverite Wade Blank and others to form the Atlantis Community, a local home care agency that currently cares for 135 people in Denver and Colorado Springs. Later, Atlantis Community leaders founded ADAPT. The group mobilized the civil rights movement for disabled persons, and ultimately affected the way nursing homes are inspected and regulated nationally. Auberger claims many current nursing home patients don't require intensive medical care, and "end up there only because they're out of money or their families can't care for them." Linton said CHCA met with ADAPT representatives twice to discuss the attendant proposal, "but they rejected our request to form a task force to find common ground." While Linton endorses home care as “a part of the long-term care continuum," she called the ADAPT proposal “robbing Peter to pay Paul. "We cannot support the concept of lowering funding for nursing home patients, to set up another funding to attendant services," Linton said. “We need new, additional funding for that." Recent federal budget cuts may make additional funding unlikely, at least in the near future. Atlantis and ADAPT are determined, however, and they are prepared for a long campaign.