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Tuis / Albums / Sleutelwoord in-home services 5
ADAPT (635)
Different TIMES, September 24, 1990, p. 6 ADAPT fights for attendant services (Reprinted with permission from the Disability Rag; Box 145; Louisville, KY 40201.) [This story continues on 623 but the text is included here in full, for ease of reading.] “People with disabilities have the civil and human right to dependable attendant services that meet our daily needs in the location and manner of our choice." This simple declaration, made in Denver this summer, signaled the offensive being launched by ADAPT against “the nursing home lobby feeding off peoples' lives." It's ironic, says ADAPT member Mark Johnson. "Here we've finally got our rights now, in a law, and here you have more and more severely disabled people wanting to kill themselves—literally kill themselves—because they're being forced into nursing homes." “That Ken Bergstedt in Nevada [who petitioned the court in May to disconnect his respirator] is literally saying, “l'll end my life before I'll go in a nursing home," Johnson said. “What do you expect when people only have institutionalization to look forward to?" adds actress Nancy Becker Kennedy, one of the group that conducted a hunger strike in Los Angeles in July to protest the cut of California’s In Home Supportive Services. “Their attempts to stay in their homes are thwarted." lt’s the same with Georgia's highly publicized Larry McAfee, who was just put into a “group home," says ADAPT. Even after all the publicity, the State of Georgia will not put any money into funding attendant services in one's own home. And ADAPT is fed up. Recalling the phrase the transit industry used to argue that each city should decide whether or not to put lifts on buses, ADAPT calls the patchwork system of funding in-home services “the old ‘local option’ stuff all over again." “We're sick of it,"says Johnson. There needs to be a national commitment. In California, activists battled for several months to restore their In Home Support Services program which had been entirely cut from the state budget—and succeeded only in restoring it to its former level, which allows a disabled person to hire an attendant only at minimum wage and for no more than eight hours a day. People who need an attendant around the clock, like Ken Bergstedt, have little hope of avoiding a nursing home even in California, often cited as the state with the best attendant services program in the nation. Yet such battles sap the energy of disability activists for the larger fight for a national commitment. ADAPT has modified its former name, “American Disabled for Accessible Public Transportation" to “American Disabled for Attendant Programs Today" to reflect its new focus. ADAPT says attendant services are a right. The group wants the program it's calling for to make attendant services available "based on functional need" rather than “whether a person can work or not." They don't want "employability" to be a "condition for getting services. And they don't want eligibility based on any specific disability, as it is in many states now. They want it to be available “to people of all ages, 24 hours a day, seven days a week, with back-up emergency services."They stress they're not asking for “someone to hold your hand" but are speaking of the realistic needs of people like McAfee, Rick Tauscher, and Bergstedt who need an attendant available around the clock. They also say a program that allows the disabled person maximum control over an attendant is mandatory. Maybe a disabled person won’t want that control; maybe they'll want someone else to handle the paperwork and hiring decisions. That should be the disabled person‘s option, they say. There’s a quality-control issue here, they insist; they want to make sure disabled people get quality care but are allowed maximum say over personal services they receive—which is all too often not the case today as home "health" agencies muscle their way into the home "care" field. They‘re sick of the word “care.” They want a program that doesn’t keep anyone from services because they make too much money; they're willing, they say, to deal with a sliding scale for fees for such a program; but they want it available to anyone who needs it—regardless of income. It's a right, and cost is simply not an issue, they say. Keeping disabled people in institutions is ludicrously more expensive than providing in-home services in this country today. They blame that lack for the problems Larry MeAfee's constantly found himself in; they blame the nursing home industry for siphoning off the money that could go to fund such services. And they charge that home health agencies are nothing more than “the new nursing homes." Home health agencies “take people on Medicare and give them services and then bill them for $60 a pop," says ADAPT organizer Wade Blank. “Then when their Medicare coverage runs out after six months, they drop ‘em." The group says it’s also targeting “the big insurance companies like Prudential" and health maintenance organizations, who they say have a vested interest in keeping the system like it is. “We're saying that ethically and morally, nursing homes are not the place to go," says Blank. “When I see my severely disabled friends, living in their own homes, when l visit them in their apartments, listen with them to records or order in a pizza—and then I see my friends living in nursing homes, wasting away, waiting to die, I get very, very angry,” said Southern California ADAPT member Lilibeth Navarro. A survey of ADAPT members through their newsletter, Incitement, led them to decide to shift the focus to attendant services, said Navarro. And they're emphatic about the term too. “It’s not ‘attendant care‘ anymore," said Blank. “Whenever anybody said ‘care’ everybody booed,“ he added. It is fitting that ADAPT, whose original members came from Denver‘s Atlantis Community, will focus on attendant services. It was that need which led to the start of Atlantis, a “community” of disabled people and attendants. Atlantis “has a neat system,"agrees Navarro, noting that the 24-hour rotary attendant services allows any Atlantis person to have an attendant available whenever it's needed. “We could call an attendant at 11:30 p.m. and have somebody here," she said. “People who are having trouble with attendants can call and get an emergency back-up." Navarro, like others, said she knew of people “who endured abuse because they were afraid to lose their attendant"—"because it's so hard to find somebody, and nobody to turn to in an emergency situation." She related the story of a man whose attendant simply walked out on him and left him, unable even to reach a phone, for four days. “If his father hadn't checked on him, he'd be dead." “Only a national attendant program," she stressed, “will free us from emotional slavery Nancy Becker Kennedy agreed with Navarro. “The linchpin for independent living is in-home attendant services. It’s humane; it gives us a future." The group has sent a letter to Health and Human Services Secretary Louis Sullivan demanding a meeting in Atlanta Oct. 1; they've given Sullivan until Aug. 15 to reply. ADAPT activists from around the nation will descend on Atlanta the first week of October to launch the fight. They’ll be calling for a quarter of the money now going to the nursing home industry to “go into a pot for attendant services." As usual, ADAPT doesn’t expect this to happen without a fight -- primarily from the “nursing home lobby.” “This October," says Blank, “we will serve notice on those groups who are the enemies of a national attendant services program." TEXT BOX: ADAPT will converge on Atlanta — home of Morehouse College, HHS Secretary Louis Sullivan’s alma mater — on Sept. 28 for week-long direct action protest and training. Nationally known organizer Shel Trapp will conduct the session Saturday, Sept. 29. For more information on travel and hotel arrangements, contact ADAPT in Denver at (303) 936-1110. — Reprinted with permission from the Disability Rag; Box 145; Louisville, KY 40201.
ADAPT (714)
Chicago Defender, Vol. LXXXVII [87] No. 7 Wednesday May 13, 1992 (40¢ outside Chicago and suburbs) Editorial Listen to disabled on in-home funds A group of "disabled rights activists, who on Tuesday continued their protest against the federal government's failure to allocate more funds for handicapped individuals, should be taken seriously. They are protesting for the right to remain at home, rather than being warehoused in nursing homes. “Six times the (amount of) money goes to nursing homes and other institutions,” compared to the sums going “to community-based services. We want 25 percent of that nursing home budget to go to home care,” said Diane Coleman, an organizer for the group. There are various reasons why authorities should lend an ear to the protesters’ demands. Some of them are: * Disabled people would rather live at home than in an institutionalized environment, just like anyone else would. Many physically challenged individuals are wheelchair-bound but would have no trouble at home turning on a computer and working on it; going to the refrigerator to get their own food; operating their own TV, radio, or CD player; reading books, teaching younger members of the family, making their own bed and doing countless other constructive things to make them feel useful and relatively independent. * Additional money for home-based and community-based assistance would permit thousands of disabled individuals to receive help from part-time home attendants or nurses. The tab to the taxpayers might, in many instances, be smaller than the current cost for such services. * Many disabled protesters argue that being housed in a nursing home may actually prohibit some physically challenged people from developing into more productive citizens. These pundits stress that some of the disabled individuals being cared for in nursing homes could, if given home-based fund support, live a life with more quality to it and a few of them could even participate in home-based employment or other legal business. The bottom line is that disabled individuals deserve to be treated with as much respect as any other group in society. Other protesters have been given serious consideration by the federal government on various causes. The current cause espoused by many of America’s physically challenged individuals deserves equal attention from government authorities.
ADAPT (707)
Access USA News June 1992 page 21 [This article appears to be in 3 parts, we do not have the first part. The article continues in ADAPT 702 but that text is included here for easier reading.] PHOTO in the center of the article: A mass of people in wheelchairs are lined up against the windows at the front of a building. The rows of people are 2 deep in many spots. Then there is a pathway along the sidewalk and another group of people is packed on the other side. One of the protesters in a manual wheelchair is facing away from the camera and on his back is a large poster that says "HELL NO! I Won't Go Back." Someone in a scooter (Rhona Schnall?) is rolling down the end of the pathway. Caption reads: ADAPT protestors converge on Chicago. ADAPT from page 3... "They're paying these people to work and, instead, they're standing out here and watching us. Yet I can't get my PCA money. What's going on?" asked 31-year-old Michael Graver, of Orland Park, Ill., during ADAPT's demonstration at the State of Illinois building on Wednesday. ADAPT shut down access to the upper floors of the building when the facility manager shut off the elevators and escalators so that protestors in wheelchairs could not reach the 16th floor, the office of Gov. Edgar. Many people employed by offices on upper floors chose to stand on the balconies overhead and gawk at the activities below. Graver has been attending Southem Illinois University at Carbondale - until now. He has cerebral palsy and uses a wheelchair. The college junior currently is unable to attend school at SIU because of the state cuts in PCA funding. No new clients have been accepted for in-home services since February 1. ”I can afford the apartment," he said, ”but not in-home services.” ”Tell them to give you the escalators and give us the elevators,” one ADAPT member told able-bodied individuals who complained about the group cutting off access to the upper floors. ADAPT blocked off the escalators with wheelchairs and bodies when members were told the elevators would not be made available to them. A small-framed, middle-aged woman attempted forcing her way through the unit blocking an escalator, emphatically stating, "I’m from Wisconsin, I can't do anything for you." She was detained. A man, approximately age 50, succeeded in forcing his way through the demonstrators, only after stepping over their wheelchairs, over people and finding himself crawling on the ground before getting to the other to the side. Another man of about the same age walked down the escalator and when he began trying to make his way through, said, "I have nothing against you people." A man in his 20's tried finding a route up an escalator, but met face to face with a female ADAPT protestor. ”Back off and try to understand what we're doing," she told the young man. ”This is beautiful," said the Rev. Hatcher, who uses a wheelchair and was at the State of Illinois building on behalf of the Coalition for United Community Labor Force, not with the ADAPT group. ”I really support this. I showed up to meet with the Governor's office to protest some things. This Governor is insensitive to the black community and handicapped community." Most able—bodied individuals continued trying to find elevators, escalators or stairs leading them to upper floors. Many stood on the ground-level floor in amazement, then complained that this was unfair to them. A few were curious enough to ask questions, read the fliers and express support. "James Edgar, shame on you. ”People are dying, shame on you. "Hey, hey, ho, ho, budget cuts have got to go." ADAPT’s verses were in unison, clear and loud as the crowded state building remained in chaos all day. "When l used to travel around the country, I would brag about Illinois and our in-home services,” said Judy Savage, Chicago ADAPT member and employee of Access Living of Metropolitan Chicago. "They've already limited the number of people who can get these funds and Democratic legislators are recommending more cuts.” Insert Text box: "In the nursing home, they don't let you do things yourself. I have to ask for permission to go out." -Louis Summers Article continues: As the fourth and final day of ADAPT’s demonstrations dragged on at the State of Illinois Building, able-bodied individuals became more irritated. ”Edgar's going to have to stop all this," one man said. “l have a grandmother in a nursing home and I know what they're like," a woman said, "but blocking off the elevators and escalators won't change that.” "This is wrong. This is even a fire hazard. You can't deny other people the right to go out and support their families. They’ re denying us our constitutional rights,” another man said, angry that he could not get to an upper floor. "This is wrong.” Thirty-nine year-old ADAPT member Mary Kay Strasser, who also belongs to Disabled Americans Rally for Equality (D.A.R.E.), sat at the opening of one of the elevators all day Wednesday, her personal attendant standing nearby. "This is a disgrace," she said. "We're human beings just like they are. People walk by and don't ask us what we're fighting for. You can tell their attitudes by the looks on their faces. The people in the nursing homes don't realize they treat us like we're nothing. I was in a nursing home for 3-1/2 years and it was the worst experience of my life." ADAPT passed out nearly 10,000 fliers during the Chicago rally. Fifteen people were arrested, mostly for trespassing, including 10 late Monday afternoon outside the Health and Human Services offices. The bulk of police-protestor interaction took place outside the AMA building Tuesday as demonstrators attempted to stop paddy wagons from leaving the area. One man being moved by police was dropped out of his wheelchair and his head struck the sidewalk; his injury appeared the next day to be a minor abrasion on the side of his head. At that time, a Chicago police officer wearing badge number 215 asked able-bodied ADAPT member Robin McGee why they were not protecting the people in chairs better, why they were allowing them to do this and get hurt. Louis Summers, age 31, was hit by a train while working and has lived in a nursing home the past three years. Father of three kids, Summers gets $422 a month in social security payments. He took his place among ADAPT members blocking an escalator on Wednesday. "I want a part-time job so I can pay child support and buy the things I need," said Summers, who uses a wheelchair and is deaf, but speaks clearly. "($422) is not enough for food and rent and payment on a loan." "I don‘t know why the government pays nursing homes more than they pay personal attendants. l can afford an apartment, but I can't afford the personal attendant. In the nursing home, they don't let you do things yourself. I have to ask for permission to go out."
ADAPT (713)
The Guardian, May 27,1992 Photo by Tom Olin: A disabled man dressed all in white (Tim Craven) lies on his back to crawl under a police barricade. Beside him a woman (Barbara Bounds) in a wheelchair leans toward him as if to support and protect him. She is facing the barricade and has a sign taped to the back of her chair that says "People Before Profits." Two police men lean over the barricade toward Tim and another sticks his arm in between them. Behind them are even more officers. On the near side of the barricade yet another officer stands, bending almost all the way forward toward Tim on the ground. Caption reads: Protesters in Chicago got our of their wheelchairs and lay down in front of the barricades, forcing employees to walk over them. Disabled militants bring hope to health reform By Mary Johnson Chicago-Hundreds of members and supporters of ADAPT (American Disabled for Attendant Programs Today) took to the streets here May 10-13 to continue their fight for in-home attendant services and to move the national health-Cate debate into the rights arena. The group is aiming to force the American Medical Association—whose headquarters are here—and the American Health Care Association, the nursing home lobby, to replace “home care" with "attendant services“ which consumers control “in the location and manner of our choice,“ says ADAPT. ADAPT, which under the name American Disabled for Accessible Public Transportation won the national fight for wheelchair lifts on buses, intend their street protests as the “flashpoint," says founder Wade Blank, for national health care reform. There is nothing medical about assistance to bathe, eat or dress, these activists charge. Target: Louis Sullivan Learning that Health and Human Services Secretary Louis Sullivan would be speaking at University of Chicago commencements on May 10, the 250-strong ADAPT contingent cancelled a Mother‘s Day march and stormed into the university‘s pavilion, planning to disrupt Sullivan's speech. Police and Secret Service agents promptly ejected them, but the group spent the afternoon handing leaflets to graduates‘ families. Sullivan has been a perennial ADAPT target for his refusal to meet with them to discuss Medicaid policy on nursing homes. The next day, ADAPT surrounded the HHS regional offices in downtown Chicago, managing to get up to 15th-floor offices before being blocked by police. Others in the group cordoned off exits, forcing building employees to climb over them, and at one point succeeded in getting department officials into the street to listen to the group‘s demands. Ten protesters were cited and released. On May 12, ADAPT moved to AMA headquarters, blocking adjacent streets and crawling up to bang on office windows. Police barricaded the doors, but protesters got our of their wheelchairs and piled themselves at barricades, forcing AMA employees to step over them when their offices shut down early. Police moved to arrest four people they believed to be in command. The four included Mike Auberger of Denver and Arthur Campbell of Louisville, Ky., who were released later in the day. Garnering media attention Though ADAPT planned to press state targets only on May 13, the state barricaded its downtown State of Illinois Building on the two days before. Guards locked wheelchair access doors and forced wheelchair users to submit to police escort on elevators. On May 12, Chicago ADAPT member Paulette Patterson sued the state over discriminatory denial of access. Though District judge Milton Shadur failed to grant a requested temporary restraining order, Patterson’s attorney, Matthew Cohen, said he had “no doubt the suit had an effect.” On May 13, ADAPT took over the building while city police squabbled with state police over jurisdiction and mostly kept their hands off protesters. Longtime Chicago activists noted ADAPT‘s success in garnering media attention. Chicago Lawyers Guild member Ora Schub said ADAPT‘s protests got more coverage than Gulf war demonstrations in the city — even when antiwar protesters shut down Lake Shore Drive. There seems little question ADAPT has begun to have an impact beyond disability rights. As one of the only groups to take the health reform issue into the streets, ADAPT, says Blank, sees its role “as focusing the debate on a bigger political issue” within health-care reform: services as a legal right. “What the disability rights movement can do is humanize society,” he says. Tennessee ADAPT recently forced the hospital power structure there to accept a state financing fee that will fully fund Medicaid (see sidebar). Lawyer Gordon Bonnyman, who was involved in the Tennessee campaign, remembers a “poverty advocate friend" sending him a clipping about an ADAPT protest in Orlando, Fla., in 1990, when the group first took on the American Health Care Association over the attendant services issue. He and his friend “were despairing about health reform," he said, “asking ourselves when the people who were really affected were going to begin to influence the discussion. "l said, ‘l just don‘t see that ever happening until people are willing to stage some direct actions,‘ " Bonnyman recalls. “Then she sent me that clipping from ADAPT's Orlando action and she said, ‘Here are the folks who could do that.'" “My response at that time was, ‘That’s nice, but how many people is that?‘ I now think: ‘Enough.' ADAPT really does have the ability to have an impact nationally on health care issues-far beyond their own issue of personal attendant services." The group plans similar actions in San Francisco this fall. Second, sidebar, article inserted on this page: Saving Medicaid in Tenn Six people in wheelchairs moved swiftly a cross across the drive-way of the Tennessee Health Care Association in Nashville on March 31. Chaining themselves together, the small band waited for members of the Tennessee Hospital Association to come out of their meeting. It was a classic ADAPT action. This time ADAPT was leading a coalition of health care reformers that would force the state‘s powerful hospital lobby to drop its opposition to a state licensing fee intended to prevent a $1.1 billion loss in federal Medicaid funds. Tennessee pioneered the concept of leveraging matching federal Medicaid funds by levying a state financing fee against hospitals that took Medicaid patients. With its 70-30 match, the state took the $300 million collected from participating hospitals to obtain another $700 million in federal matching funds. With that tactic, Tennessee was fully funding its Medicaid program and feeling no financial crisis. By 1991 it was in use in 37 states, with many reporting similar success. The federal government, alarmed at having to pay out increased Medicaid funds to stares that used this method, devised a plan to derail it. A little-publicized 1991 law made such licensing fees illegal unless levied against all hospitals equally. It counted on opposition from hospitals that took no Medicaid patients (and therefore had no reason to agree to the fees) to fight state passage of licensing fee bills. That opposition was swift in coming in Tennessee. The state is home to Hospital Corporation of America and HealthTrust, two of the nation's largest hospital chains, and numerous other hospitals. The Tennessee Hospital Association, of which Hospital Corporation of America is a powerful member, opposed the fee. A state bill to extend the fee to all hospitals was virtually dead, said Tony Garr, head of the Tennessee Health Care Campaign, until ADAPT of Tennessee, led by organizer Diane Coleman, got involved. “The only way we could bring attention to the issue was to hit the streets,” said Garr. “ADAPT played a very important role" in helping other groups in the Tennessee Health Care Campaign “move to direct action,” said Gordon Bonnyman, a lawyer who has worked with Medicaid issues in Tennessee. Beginning in January, Coleman and Tennessee ADAPT members staged weekly actions, targeting the large hospitals as villains who were destroying the state’s Medicaid program. The first week a group of nearly 200 people, headed by ADAPT, marched to the Hospital Association's offices. The next week the group staged a protest in front of Baptist Hospital, which opposed the fee. The group hung a sign asking “Are you Christian?" on the hospital administrator's portrait. The group‘s fifth action targeted Thomas Frist, who heads Hospital Corporation of America. “We had a small casket, with dollar bills draped over it, and a sign that read, “Thomas Frist, how many must die for your $1.235 million in annual cash compensation?” said Coleman. The protests had the desired effect. Frist, reportedly upset by the negative publicity, capitulated the day the group surged on Health Care Association headquarters with the cross and withdrew his corp0ration’s opposition to the fee—reportedly urging legislators to vote swiftly to pass the law to avoid more unfavorable publicity. “There have been Medicaid cuts for the last 15 years in this country, and they have gone mostly unreported," said Bonnyman. “ADAPT galvanized people. Without them, the whole thing would have gone down the toilet." M.J.
ADAPT (997)
The Atlanta Constitution, Local News Wednesday, Nov. 6 1996 c5 Disabled block DeKalb demand in-home care by Michael Weiss, Staff Writer Fresh off a pair of protests that led to promises from President Clinton and U.S. House Speaker Newt Gingrich, about 100 members of a disabled advocacy group spent part of Election Day sitting in the street," blocking evening traffic at a busy DeKalb County intersection. Members of Americans with Disabilities for Attendant Programs Today (ADAPT), in town for a five-day conference on disabilities and human rights, first arrived at the corner of Memorial Drive and Covington Highway about 3:30 p.m., DeKalb police said. They were still in the street when the polls closed at 7 p.m., police said. The sit-in was ADAPT’s third protest in three days. On Monday, police broke up a 500-person sit-in at Clinton's Georgia campaign headquarters downtown, arresting 86 demonstrators and charging them with trespassing. They were released later Monday. Demonstrators were calling for the president to support programs that would provide in-home care for people with disabilities instead of forcing them into nursing homes. After he was notified by telephone of the protest, Clinton promised that, if re-elected, he would meet with representatives of ADAPT next year to discuss the issue, said ADAPT spokesman Mark Johnson. “Maybe he’s finally going to make good on his 4-year-old promise," said Johnson, of Atlanta. “We sure hope this isn't more political rhetoric.” On Sunday, ADAPT members paraded into Centennial Olympic Park to demand better funding for in-home care. Thirty of the protesters met that day with Gingrich (R-Ga.), who pledged to introduce legislation that would guarantee home-and-community-based services.