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Degemer / Rummadoù / Merker This Brain Has a Mouth 2
ADAPT (634)
This Brain Has A Mouth (The Mouth) Jan/Feb 1991 PHOTO by Gary Bosworth: A small neat looking white woman in a motorized wheelchair, Cindy from Mass., sits in a revolving doorway. Wrapped loosely around her shoulder, wheelchair and the door frame is a long metal chain. She has a poster sign across her legs, but in the photo it is too dark to read. On her left side and slightly in front and partially in the picture, another small neat looking woman in dark sunglasses, Lillibeth Navarro, sits in her chair and appears to be talking over her shoulder. Below the picture is a text box that reads: In March of 1990, 104 members of ADAPT were arrested in the Capitol Rotunda for lobbying the old-fashioned way — with their stubborn bodies and loud mouths. Four months later President Bush sent a personal invitation to every one of those arrestees to attend the ceremonies at the signing of the Americans with Disabilities Act in the White House Rose Garden. ANGER can make you a hero, or put you in jail, or both. written and photographed by Gary Bosworth. I was one of 200 people with disabilities who converged on Atlanta three months after the historic ADA was signed, to raise the banner of ADAPT’s new demand: a clear-cut national policy on attendant service programs. The lack of basic attendant services keeps one million disabled Americans imprisoned in nursing homes when they could be full-fledged, contributing members of society. While it costs $30,000 a year to keep one of us in a nursing home, the cost of providing attendant care services for the same person is $4,000 to $6,000 a year. In an ever-deepening federal budget crisis, ADAPT’s simple proposal will cost not a single penny, but simply redirect 25% of the funds currently spent on nursing home care. Attendant services in fact save money and cut the deficit by allowing all Americans — not just the able-bodied — to be productive workers, taxpayers. October’s action for disability rights at Morehouse College in Atlanta was the national kickoff for this vital issue. Morehouse College’s most famous graduate is Martin Luther King, Jr. Our protest there followed in King's grand tradition of non-violent passive civil disobedience. Morehouse College is also the alma mater of U.S. Secretary of Health and Human Services, Louis Sullivan — the man with the power to push for a new national policy on attendant services. ADAPT had written to Secretary Sullivan months in advance, asking for a meeting. Sullivan was scheduled to be in Atlanta the week before. ADAPT asked for an hour of his time. Sullivan did not respond. More than fifty of ADAPT’s demonstrators took over the President's office at Morehouse College for the night of October 1st. A young boy saw news of our protests on TV that evening. He stayed up late into the night to make a sandwich for each demonstrator, pack each sandwich into a bag, and write on every bag: "You are my Hero." The boy and his mother delivered those hero sandwiches to the demonstrators the next morning. When we returned from the college, street vendors along the route stood up and applauded our wheelchair parade. At another protest in Decatur, Georgia, traffic stopped several times on a four-lane highway while the drivers honked their horns in support of the issues we raised. On October 3, we forced the issue further, blockading the doors of the Federal Building. [See photos...] During the four hours it took for the police to arrest 64 people with disabilities who were blocking the entrance, one police officer took a break to speak with a woman in a wheelchair who waited to be loaded onto the arrest bus. The cop said that his wife had just suffered a stroke. Because there is no attendant services program in Georgia, he expected to see his wife go into a nursing home — against both their wishes — within the next six months. The woman he had arrested told him that's why she was demonstrating: to speak for people like his wife who couldn’t speak out themselves. After the woman was loaded onto the arrest bus, the policeman asked to hold her hand. She reached out the window. He took her hand. Then he cried. Please, let us all put our anger into action and speak out for attendant services. Whatever happens — jail or heroism or both — we're going all the way. PHOTO by Gary Bosworth: A group of about 7 protesters, all but one in wheelchairs, stand in front of the mirror glass walls and front door of a building. One person standing and one person in a wheelchair hold a giant ADAPT flag behind a man in a wheelchair giving the power fist. Bob Kafka is sitting behind the flag and Cindy from Boston and another wheelchair user hold the end of the flag. The end Gary Bosworth has been active in disability rights for 8 years, is co-founder of Desert Access of Palm Springs, California, and member of the Board of Directors of Southern California ADAPT.
ADAPT (671)
Photo by Tom Olin: A woman with thin arms (Diane Coleman) sits holding a sign that reads "attendant services not lip service" and she looks off to her right. Her head is about waist height to a beefy police officer who stands looming beside her looking down with a hostile expression, his had on his hip. Behind them is some kind of barrier and a couple of other protesters. [This article starts on ADAPT 694 and continues on 678 and 670, The entire text of the article is included here for easier reading, but descriptions of the pictures are included on the pages the pictures appear on. 694 is just a picture and the headline of the story.] Title: ADAPT Activists and nursing home operators face to face: We will not stand for it any longer. Let our people go. You operators want to pretend it’s complicated. You raise a-lot of pseudo-issues to disguise the fact that it’s all about your money and your power. You want to pretend you’re trapped in this business, that union contracts prevent such and such... that legal liability prevents so on and so forth... We don’t want to hear any of that. It’s not complicated. It’s very simple. You will let our people go. >> We were arrested the first day, lots of us. They never expected us to come close to their hotel, the place where members of the American Health Care Association were staying while they held their convention across the street. Yes, they knew we were coming to Orlando. They briefed the locals, had the police waiting. So it was all set up in advance, cops on the rooftops, a police booking operation in the basement of the convention center. They were all set to cage us up for daring to interfere. They thought they had it covered. They were smugly going about their business, expecting only a minimum of trouble for a couple of hours. The intensity there — anyone driving by could feel it. The tons of security, the A.C.H.A. people retreating inside the hotel, aghast. It was like: “How dare they spoil our party!” The first wave of arrests was meant to stop us at all costs, keep us out of the convention. That first day, they thought they’d arrested all the “leaders.” But with ADAPT, when folks get arrested, other folks fill in and we just keep going. We will not be moved. It was our intent to send the message that nursing homes have one and a half million Americans locked up. We want the nursing home operators to be publicly accountable for that. Here we are, people who look like the folks the operators lock up at their home facilities. They’re on vacation, but they can’t escape. We are people with disabilities. We are everywhere. The operators were inside having seminars on how to manage the disruptive patient. We were outside holding a seminar with the press on the economics of managing people in nursing homes. Every place the A.C.H.A. people went they had to confront ADAPT people who had been in nursing homes. They can talk all they want about how homelike it is. We know better, firsthand. We are focusing the attention of the Bush administration through U.S. Health & Human Services Secretary Louis Sullivan and the whole Health Care Financing Administration. We are focusing public attention on the nursing home operators, the nurses, the families, everybody who had anything to do with our people being locked up. This will be a long struggle; we’re prepared for that. Five or ten years, a long struggle. Unless people like ADAPT are willing to stay focused and targeted, people in nursing homes and state schools are going to be forgotten all over again. We may not win at every action, but we will win the cumulative victory. We make people think about nursing homes. They don’t want to think about that. Put them away, put it out of mind, put it somewhere else. I want to say to people who say they don’t like ADAPT tactics: Do you really want our people out? Or are you sitting home saying, “Oh, those nursing homes shouldn’t do that!” How many people are going to get free because you hold that opinion? What are you doing about it? People are turned off by the arrests, by our confrontational style. “I’m not going to do ADAPT-style confrontations” — we hear that a lot. If you don't want to be on the front lines but you do want to help, there’s plenty to do: raising dollars so we can get to our actions, working with people in your community to make these issues known, forming your own group, bringing some attention to the issues in your own home town. We sure would welcome your help. ADAPT puts the edge on it, sets the margin. This is as far as we go, this is all we will take. We will not be moved. This article is taken from a conversation with Bob Kafka of ADAPT in Austin. The photographer is Tom Olin of ADAPT in Cumberland Furnace, Tennessee. You can reach ADAPT people at either of these telephone numbers: Colorado 303-733-9324 Texas 512-442-0252