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主页 / 相册 / Washington DC, Spring 2002 29
创建日期 / 2013 / 七月 / 18
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Dear Colleague: Please join join us as a co-sponsor of H.R. 3612, the Medicaid Community-Based Attendant Services and Supports Act (MiCASSA) - long-awaited legislation that helps bring our Medicaid system into accord with the Supreme Court's 1999 Olmstead decision. The Olmstead ruling called upon States to end unnecessary institutionalization for people who can remain at home with community support services. At present, Medicaid funding is biased against the financing of individual care in community and home-based settings. As a result our aging parents and hundreds of thousands of younger adults with disabilities who would prefer to receive care in more integrated settings are relegated to living in institutions. The only Medicaid long term care service currently guaranteed by Federal law in every State is nursing home care. Only 27 States have adopted the benefit option of providing personal care services under the Medicaid program. Although every State has chosen to provide certain services under home- and community-based waivers, they are unevenly distributed, have long waiting lists and reach just a small percentage of eligible individuals. We can do better. The MiCASSA bill has been put together based on what we have learned from pilot programs and best practices throughout the States. Instead of creating a new entitlement, MiCASSA makes the existing Medicaid entitlement more flexible. It amends Title 19 of the Social Security Act and creates an alternative service called Community Attendant Services and Supports. This allows individuals eligible for Nursing Facility Services or Intermediate Care Facility Services for the Mentally Retarded, regardless of age or disability, the choice to use these dollars for "Community Attendant Services and Supports." These attendant services and supports range from assisting with activities of daily living, such as eating, toileting, grooming, dressing, bathing and transferring, as well as other related activities. Although such community-based services have been shown to be less costly than institutional services, the bill also allows states to limit the total amount spent on an individual's long-term care in a year to what the state would have spent on institutional services. Whether a child is born with a disability, an adult has a traumatic injury or a person becomes disabled through the aging process, we can and must do better. If you have any questions, please contact Robert Hartt in Congressma n Davis' office (ext. 6-7817) or Kelly Childress in Congressman Shirnkus' office (ext. 5-5271.) Sincerely, Danny K. Davis Member of Congress Congress John M. Shimkus Member of 9/6/02
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5-14-02 The Columbus Dispatch [headline] Seeking help for disabled people [image] [image caption] Members of ADAPT, a national organization of disabled activists, block an intersection near the White House. The group lobbied yesterday for Medicaid funding to help disabled people live in their own homes.
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American Federation of Labor and Congress of Industrial Organizations JOHN J. SWEENEY PRESIDENT Richard L. Trumka Secretary-Treasurer Linda Chavez-Thompson Executive Vice President Vincent R. Sombrotto Frank Hanley Douglas H. Dority Patricia Friend CArroll Haynes Arturo S. Rodriguez Martin J. Maddaloni Boyd D. Young John W. Wilhelm James P. Hoffa Edwin D. Hill Clyde Rivers Leo W. Gerard Gerald W. McEntee Michael Sacco Stephen P. Yokich Michael Goodwin James La Sala Robert A. Scardelletti John M. Bowers Dennis Rivera Elizabeth Bunn Capt. Duane Woerth Joseph J. Hunt Cecil Roberts Melissa Gilbert Morton Bahr Frank Hurt Clayola Brown Joe L. Greene William Lucy Andrew L. Stern Sandra Feldman Bobby L. Harnage Sr. Michael E. Monroe Terence O'Sullivan Cheryl Johnson Edward C. Sullivan Edward J. McElroy Jr. Gene Upshaw Gloria T. Johnson M.A. "Mac" Fleming Sonny Hall Leon Lynch Edward L. Fire R. Thomas Buffenbarger Stuart Appelbaum Michael J. Sullivan Harold Schaitberger Burce Raynor William Burrus 815 Sixteenth Street, N.W. Washington, D.C. 20006 (202) 637-5000 http://www.afIcio.org Ms. Stephanie Thomas National Organizer ADAPT of Texas 1339 Lamar Square Drive Suite 101 Austin, TX 78704 Dear Ms. Thomas: May 14, 2002 The AFL-CIO supports the effort to move care for people with disabilities into the communities where they live and work, allowing them to retain their independence, while getting care and services in the most appropriate setting. We believe that can be done in a way.that ensures a living wage and other important employment protections for the workers who assist the disabled. As you may know, we have a long history of supporting people with disabilities, including passage of the Americans with Disabilities Act of 1990 and currently, election reform. On these issues and others, we work closely with Disability Rights, Education and Defense Fund and American Association of People with Disabilities. On other issues, including employment, we have worked closely with the former President's Committee on Employment of People with Disabilities. We have many interests of mutual concern with the disability community, including the Medicaid program. The AFL-CIO and our affiliate unions are currently working to increase federal funds for the Medicaid program and fight state efforts to use Medicaid waivers to reduce benefits and restrict eligibility for Medicaid. These issues affect all Medicaid beneficiaries, including people with disabilities. As a democratic organization, the AFL-CIO develops policy in consultation with our affiliate unions. Until we have had an opportunity to review S. 1298 and H.R. 3612 with our affiliates, we cannot take a position on the legislation. Please be assured that we will work with the bill sponsors, Senator Harkin and Representative Davis, and the disability community to pass a bill that recognizes the needs and dignity of both people with disabilities and the workers who care for them. As part of that process, we will schedule a meeting with President John Sweeney in the next 60 days. Sincerely, [signed] William Samuel [typed] William Samuel, Director Department of Legislation
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[logo SEIU] Stronger Together ANDREW L. STERN International President ANNA BURGER International Secretary-Treasurer PATRICIA ANN FORD Executive Vice President ELISEO MEDINA Executive Vice President TOM WOODRUFF Executive Vice President [letters begins] May 14, 2002 To concerned members and leaders of Adapt: For many years, SEIU has worked with Adapt across the country on issues of mutual concern to both organizations. The leaders of Adapt have requested to meet with President Stern to discuss federal legislation which Adapt is interested in promoting. President Stern welcomes the opportunity to meet -with the leaders of Adapt to discuss this legislation and other issues of concern to Adapt. We will meet with Adapt by July 14, 2002, at a mutually agreeable time. We will contact Babs Johnson at 303-277-9324 to set up this appointment. Sincerely, [signed] Orrin Baird [typed] Orrin Baird Associate General Counsel
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Stronger Together ANDREW L. STERN International President ANNA BURGER International Secretary-Treasurer PATRICIA ANN FORD Executive Vice President EUSEO MEDINA Executive Vice President TOM WOODRUFF Executive Vice President SERVICE EMPLOYEES INTERNATIONAL UNION AFL-CIO, CLC 1313 L Street, N.W. Washington, D.C. 20005 202.898.3200 TDD 202.898.3481 www.SEIU.org May 21, 2002 Babs Johnson Lead Organizer, ADAPT 201 South Cherokee Denver, CO 80223 Dear Ms. Johnson: The 1.5 million member Service Employees international Union (SEIU) — including our 200,000 home and community-based workers -- endorses the MICASSA legislation (S 1298 and H.R. 3612). We join with ADAPT, as we have many times, to call on states, Congress and the Administration to expand consumer-directed attendant services that provide real choices to consumers and good jobs for attendants. In California, Illinois, Oregon, and most recently in Washington State, SEIU members have worked in partnership with ADAPT to make improvements in publicly funded consumer-directed services and supports. We pledge our continued support for efforts to improve the lives and choices of people with disabilities, and we hope to work with you and your organization in the future to expand opportunities for independent living and jobs with dignity. We look forward to meeting with you and your representatives. cc: Bob Kafka Sincerely, [signed] Andrew L. Stern [typed] Andrew L Stern International President
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West Virginia Beacon Digest National Newspaper Publishers Associated and the Associated Press Wire Service Volume 01 Number 21 The State's Only Minority Newspaper Publication 35 Cents May 29, 2 [cut off] [Headline] Disability Rights Activists Shut Down Union Buildings Washington-On May 14th, the national disability rights group ADAPT blocked all entrances of the buildings that serve as the headquarters for three of the country's largest unions, AFL-CIO, AFSCME, and SEIU. ADAPT seeks meetings with the heads of all three unions, to get union support of legislation currently before Congress, The Medicaid Community Attendant Services and Supports Act. Also known as MiCASS A, S.1298 introduced by Sen. Arlen Specter (R-Pa.) and H.R. 3612 introduced by Rep. Danny Shimkus (R-I11.), this federal legislation would reform Medicaid to allow people real choice in where they receive long term care services. The current system forces people into nursing homes and other institutions, offering little or no sup-port so that people of all ages can receive the services they need to remain in their own homes, in their own communities. While ADAPT strenuously opposes persons with disabilities being held hostage to protect the institutional jobs of union members, ADAPT wants to work with union officials to assure that displaced institutional workers can perform similar jobs in the community with a liveable wage and good benefits.
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AFSCME American Federation of State, County and Municipal Employees, AFL-CIO 1625 L Street, N.W.,Washington, D.C. 20036-5687 Telephone: (202) 429-1000 Fax (202) 429-1293 TDD: (202) 659-0446 Website: http://www afscme.org [left margin] Gerald W. McEntee President William Lucy Secretary-Treasurer Vice Presidents Ronald C. Alexander Columbus, OH Linda Ard Indianapolis, IN Henry L. Bayer Chicago, IL Peter J. Benner St Paul, MN George Boncoragllo New York NY James H. Butler New York. NY Anthony Case Boston, MA Jan Cordertnan Des Moines, IA Danny Donohue Albany, NY Chris Dugovich Everett WA Michael Ferrucci, Jr. New Britain, CT David R. Fillman Plymouth Meeting PA Albert Garrett Devon. MI Sherryl Gordon Trenton, NJ Helen Greene New York, NY Edward J. Keller Harrisburg, PA Josephine LeBeau New York, NY Roberta Lynch Chicago, IL Glenard S. Middleton Sr. Baltimore, MD Patricia A. Moss Worthington, OH Michael D. Murphy Maclison, WI Henry Nicholas Philadelphia, PA Russell K. Okata Honolulu, HI George E. Popyack Oakland. CA Greg Powell Austin, TX Lawrence A. Roehrig Lansing, MI Joseph R Rugola Columbus, OH Kathy J. Sackman Pomona, CA Mary E. Sullivan Albany, NY Garland W. Webb Baton Rouge, LA Jeanette D. Wynn Quincy, FL [letter begins] May 14, 2002 To Whom It May Concern: Members of ADAPT COMMITTEE As discussed in today's meeting, within 15 days, I will broker A meeting with the President John Sweeney (AFL-CIO) and President Andy Stern (SEIU) to discuss issues related to MiCasa. [signed] GERALD W. McENTEE [typed] GERALD W. McENTE International President
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SEIU Stronger Together [left margin names. titles illegible] ANDREW L STERN ANNA BURGER PATRICIA ANN FORD EUSEO MEDINA TOM WOODRUFF SERVICE EMPLOYEES INTERNATIONAL UNION AFL-00 CLC 1313 L Street NW. Washington D.C. 20005 202.899.3200 TDD: 702.898.3481 [letter begins] September 12, 2002 Dear SEIU Leader: I am writing to you to share our recent discussions with ADAPT (Americans Disabled for Attendant Programs Today) and other members of the disability rights movement around changes in home care and the Medicaid Community-based Attendant Services and Supports Act (MICASSA) legislation in particular. In an effort to strengthen alliances with consumers of services for people with disabilities and to broaden support for increased federal and state funding of consumer-directed personal attendant services, the Service Employees International Union (SEIU) has endorsed MiCASSA (S.12981H.R.3612), for the following reasons. SEIU worked closely with consumers to develop its public authority model, pioneered In Califomia and now underway in Washington and Oregon. The public authority is a model for states looking to address workforce issues in a manner that links consumer direction with a voice at work for personal attendants. Our endorsement of MICASSA shows our sincere interest in working with ADAPT and other disability rights organizations at the national level as we have at the stale level on numerous occasions to pursue an agenda that promotes consumer choice and improves working conditions for personal assistants. We believe this goal is best accomplished through a consumer-oriented long-term care financing system that recognizes the rights of workers to organize. The current Medicaid system lacks a clear directive in Hs .policies and procedures that give consumers who need personal care a choice of long-term services and supports. Some call this "Institutional bias,- arguing that the greater share of Medicaid funding is apportioned to institutional services rather than to home and community-based services. Finally, as our nation ages, the baby boom generation will bring numbers and additional poidical influence to the consumer movement in long-term care. ADAPT and other consumer advocacy organizations are well positioned to mobilize consumers and to contribute the kind of grassroots leadership that will make change happen. In addition to 250,000 home care members, our union includes working families who will continue to confront disability and aging issues. As the nation's largest home care union as well as the largest health care union, SEIU has taken the lead in building a system that provides workers with better pay, benefits and more secure jobs. In partnership, workers and consumers are uniquely positioned to create a system that expands publicly funded home and community-based services and puts consumer interests ahead of provider profits in long-term care. The legislative changes included in MICASSA provide an opportunity for Medicaid-eligible consumers to choose between institutional services and home and community-based services and supports to meet their personal care needs. As an incentive to make these changes, stales that adopt the consumer-directed model of community-based services and supports specified in the bill would receive an enhanced Medicaid match for up to five years. A "hold harmless" clause in the legislation prevents reduction of Medicaid funding for existing home and community based supports. There is also some competitive grant funding for states to use to make improvements to consumer-directed personal assistance programs. We have much to gain from working cooperatively with the disability rights community. Both labor and disability rights groups have a proud history of struggle against formidable odds. In this spirit, I am asking that you make the MiCASSA legislation a topic of discussion with your officers, staff and members. Please consider joining ADAPTs national and stale efforts to bring changes to the long-term care system that help us build a partnership between consumers of home care services and working families. For more Information, please contact the SEIU Home Care Division at 202-89B-3275. In Solidarity, [signed] Andrew S. Stein [typed] Andrew S. Stein International President
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Incitement Incitement Incitement Volume 18 No 2 A Publication of ADAPT Summer 2002 [headline] What is a Homeland Without a Home? [Subheading] ADAPT DC Action: Let Freedom Ring [Subheading] Another Mother for Freedom Mothers Day 2002 was the kick off for the Spring ADAPT action in DC With 75% of those in nursing homes being women, and the majority of those who provide long-term services and supports being women this seemed only appropriate. So, on this beautiful spring day, we took off on the first of many long marches and brought the issue to the doorstep of the White House and to the wife and mother of the President of the United States. ADAPT delivered a giant five foot by eight foot mothers day card to First Lady Laura Bush and to Barbara Bush, mother of the current president and First Lady for the passage of [image] [image caption] [text resumes] the Americans with Disabilities Act. Both were asked to give American women the ?Gift of Freedom" by supporting Medicaid reform and the Medicaid Community-based Attendant Services and Supports Act (MiCASSA). The crowd included mothers, children and supporters who all believe our national long term care system needs massive reform to end the bias that pushes so many women (and men) into nursing homes and other institutions after a life-time of supporting others. After the presentation of the card, the crowd sang two versions of Mommas Don't Let Your Babies Grow Up and Put You in A Nursing Home, (takeoffs on Willie Nelson's famous Mommas Don't Let Your Babies Grow Up to be Cowboys song. see page 5) Meanwhile, in Houston, where Barbara Bush now lives, disability advocates including members of Houston ADAPT, the Houston Center for Independent Living and the Center on Women and Disabilities made a similar presentation. Children of women with disabilities spoke out against locking up their moms, urged all Americans to end this terrible national policy, and urged swift passage of MiCASSA. [Subheading] Follow the Money Day two ADAPT took to heart the old political saying ?follow the money." And where do all the bucks stop in DC? What is one of the biggest barriers to implementation of Olmstead, MiCASSA and similar efforts? The Office of Management and Budget, OMB. For years their name has been invoked in hushed tones, like the evil sorcerer Voldemort in Harry Potter, and for years OMB has quietly but firmly stepped on initiative after initiative to Free Our People. So ADAPT took to the streets around their building and closed down Pennsylvania Avenue, 17th Street and H Street, as well as blocking their front doors. And many DC power movers and shakers were startled to find that, just like a nursing home, you could not get out. Terrible storms threatened, the skies [image] [image caption] [text resumes] blackened, clouds swirled and wind gusted. But ADAPT's troops stood firm, holding the doors and intersections until the giant was forced to react. Emissaries from the White House finally came out and tried to distract the ADAPT leadership with offers of discus-sions of the issues, in order to better under-stand what has been explained for over a decade now. At 4:00 it was absolutely impossible to arrange a meeting with Mitchell Daniels, Jr., the Director of OMB, and White House staff left the negotiations .... But ADAPT held firm. 1' I think the White House and the police really began to realize how important our freedom is to us," said Steve Verriden, ADAPT Wisconsin State Organizer. ?When it started to rain, they were surprised that no one made any move to leave. We all just pulled on rain ponchos, shared umbrellas, taped plastic over the electric controls on our wheelchairs, and settled in for however long it was going take to get the meeting. We would have been arrested or slept there if need be." At 4:45 the impossible became possible: we had a written commitment for the meeting. [subheading] Jobs for Justice? When looking at why the institutional bias remains so strong, there is one group of players that, perhaps most of all, should know better but remains a problem, year after year the unions. Jobs at any cost, lives for a pay-check, are the cynical view of the situation of union jobs in the long-term care arena. While progressives write summarily about the triad pushing for reform (families, workers and people with disabilities) there is a definite hierarchy to the picture, and guess who is on the bottom. Reform rarely means more than better wages for the institutional workers and ra break" for the family; guess who is the burden to all. Laguna Honda was a recent lesson in this regard with workers organizing to rebuild that monstrosity, stabbing the disability community in the back after getting dis-ability support for increased wages, and even within a single union $25 a hour in the institution, $10 or less in the community. But this story has been told again and again, at almost every state institution slated for downsizing or closure. AFSCME has even been rumored to fund the Voice of the Retarded from time to time. ADAPT shares the unions' goal of a living wage for the workers who assist us," said Bob Kafka, National ADAPT Organizer from Texas. That only increases the chances we will get better care from more qualified assistants, who will remain in their jobs over time. What we will not accept, though, is holding people with [image] [no image caption] disabilities hostage in nursing homes and institutions to protect jobs for unionized employees. ADAPT's strong message to union officials has been heard, and now we can work on solutions to our mutual problems." ADAPT took a three way approach. One group headed to the Service Employees International Union (SEIU), which organizes nursing home, ?home care" and some state institutional workers One group went to the American Federation of State, County and Municipal Employees (AFSCME), which organizes state institutional workers. The third group hit the American Federation of Labor and Congress of Industrial Organizations (AFL-CIO). Marching through the streets we took a route that let us split off at the last minute, since by this time the police were escorting us where ever we went Each group entered the lobby of their designated building and demanded a meeting with their heads to discuss support for MiC-ASSA In a relatively short time all three groups got a written commitment for meetings within 60 days. Gerald W. McEntee, President of AFSCME, and who also serves on the Executive Council of the AFL-CIO, committed to personally arrange a meeting with ADAPT representatives, himself, John J. Sweeney, President of the AFL-CIO, and Andrew Stern, International President of the SEIU. In fact, by the end of May SEIU had written and committed to supporting MiCASSA. [Subheading] A National Call for MiCASSA ADAPT's week in DC ended with a MiCASSA event held on Capitol Hill and hosted by MiCASSA's cosponsors and ably emceed by NCIL's Courtland Townes. 500 supporters crammed into the spacious meeting room in the Rayburn building to hear the cosponsors and supporter groups speak on behalf of the bills HR 3612 and S 1298. Yet despite the huge room, so many were there that a sound system was set up for those who flowed over into the halls of the Senate office building. What made the event especially momentous was that 81 sites across the nation were hooked up by telephone so over 3,000 people participated From New Hampshire to California, from Florida to Washington state, from Montana to Texas, advocates were in-volved and empowered to recommit to the fight to FREE OUR PEOPLE! Speakers from Congress included original cosponsors of S.1298, Sen. Tom Harkin (D-IA), Sen. Arlen Specter (R-PA); cosponsors of H.R. 3612, Rep Danny Davis (D-IL), and Rep. John Shimkus (R-IL), as well as Rep. Dennis Moore (D-KS) and Rep. Joseph Hoeffel (D-PA) Disability organization and grassroots participants included Barbara Toomer, ADAPT Utah State Organizer; Mike Oxford, President of the National Council for Independent Living (NCIL); Howard Bedlin of the National Council on Aging (NCOA); Marty Ford of the Arc representing the Consortium for Citizens with Disabilities (CCD), nursing home escapee Rick James of Denver ADAPT; Jim Ward of ADA Watch; Marcie Roth, Executive Director of the National Spinal Cord Injury Association (NSCIA); Becky Ogle and Brian Rasmussen of United Cerebral Palsy (UCP); institution escapee Marie Anderson of Knoxville Tennessee ADAPT; Maureen McCloskey of Paralyzed Veterans of America (PVA); Andy Imparato, Executive Director of the American Association of Persons with Disabilities (AAPD); and nursing home escapee Shelly Perrin of Rochester, New York ADAPT. After the event, people broke into state teams and visited the Congress people and Senators to pass the word of MiCASSA and to ask for their cosponsorship of the House or Senate version of the bill, and eight more House members signed on with several others considering it! Though the War on Terrorism and Homeland defense are eclipsing almost every item of domestic policy including our "homeland defense" of MiCASSA, and may delay passage of this bill until next session, these events greatly strengthened the foundation for MiCASSA for the next session. So even if the bill needs to be reintroduced, the momentum for passage is building. photos by Tim Wheat [next article/poem/song] [Headline] Mommas Don't Let Your Babies Put You in a Nursing Home by Mike Oxford Mommas, don't let your babies put you in a nursing home With strangers alone, And you're never at home, Not with the ones that you love... Mommas, don't let you're babies put you in a nursing home Where dignity's blown, And the bed's not your own, Stranger no place to call home... Mommas, don't let your babies put you in a nursing home With strangers alone, And you're never at home, Not with the ones that you love... Mama's there's blue sky, there's rain There's joy and there's pain Live where you want to Stay where you will Support MiCASSA, our bill! [third article/song/poem] [headline] Mommas Don't Let Your Babies Grow Up And Put You in a Nursing Home! by Anita Cameron Mommas, when you get old, your kids you know, they start to worry, About how you're gonna get along in this world of stress, strife and hurry So, they'll take you to a place with a cute name where they think you'll be safe Never knowing your golden years Will be filled with many tears, Living with strangers and strange smells all day. Refrain: Mommas, don't let your babies grow up And put you in a nursing home. 'Cause a nursing home ain't your home, And you'll be all forlorn, Wondering why you are living this way. Mommas, don't let your babies grow up and put you in a nursing home 'Cause even with money, it ain't peaches and honey, Livin' without respect or dignity each day. Mommas, all over America from Barbara to the woman who's out on the street There's a thing called MiCASSA that'll give you a choice where you wanna be. You can stay in your own home, and have all the help that you need to be happy and free So come lift up your voice And speak out for real choice And support MiCASSA with met
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